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On rare occasions, diabetes fades into the background like the hum of a distant freight train or barely audible elevator music. If I have nothing to write, that's likely a good thing. Last weekend was not one of those times.
On Friday night, Charlie muttered "damn, diabetes!" angrily after I put the kibosh on the candy push-pops being handed out at the baseball field.
On Saturday, in the shower, Charlie asked what all the little marks on his fingers were. He asked if the marks would go away. I weakly said "I think so."
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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.
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I've swallowed my pride and decided to apply for disability services here at school. They can offer me a few resources that I do not have access to otherwise. Most importantly, they give me the ability to register early for class and to notify my professor's that there is a legitimate health issue that I deal with.
The past two semesters, I've considered doing it, but I've also thought it was too embarrassing. But finally, things have gotten to the point where I'm realizing that it's not embarrassing, it's reality. So I've taken the initial steps to go through with it.
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Like many in the diabetes community, my wife and I were pretty disturbed when we heard the premise of Hannah Montana's "No Sugar, Sugar" episode that was scheduled to air last night.
The episode tackles the issue of juvenile diabetes, but not as we know it to be. A major, recurring character on the show gets diabetes. Oliver, one of Miley's best friends, is ashamed at first and tries to hide his disease from his friends.
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What the hell just happened?
Remember me blabbing away about being so fortunate and grateful to the school for providing classroom aides for Charlie? Aides, who would blend into the background and seamlessly check Charlie's blood sugar, count out carbs and give him insulin? Remember how Susanne spent the first day of school training the aides in how to use the pump? Remember how we met with the school officials and how they all signed off on the 504 plan? Remember how it was the school's idea in the first place to hire these aides for the very purpose of testing blood sugar and administrating insulin?
Well, forget all that.
Oh, and remember the morning aide who has type 2 diabetes? She has really been working out great.
She's leaving. Found another job apparently. Leaving the glamorous life of pricking fingers and counting crackers.
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