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January 9th, 2009
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This is World Diabetes Day, the first annual, and the international community is embracing its message by flying high the striking blue symbol of the disease. The message is about waking up the world to the growing impact of diabetes on our young and old- this year's theme focusing on children and adolescents. The innocent faces of the disease give a hammering reminder of what we are striving for, worldwide awareness, more scientific breakthroughs, and a much needed cure. (READ MORE)


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On rare occasions, diabetes fades into the background like the hum of a distant freight train or barely audible elevator music. If I have nothing to write, that's likely a good thing. Last weekend was not one of those times.

 

On Friday night, Charlie muttered "damn, diabetes!" angrily after I put the kibosh on the candy push-pops being handed out at the baseball field.

 

On Saturday, in the shower, Charlie asked what all the little marks on his fingers were. He asked if the marks would go away. I weakly said "I think so."

 

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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.

 

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I've swallowed my pride and decided to apply for disability services here at school. They can offer me a few resources that I do not have access to otherwise. Most importantly, they give me the ability to register early for class and to notify my professor's that there is a legitimate health issue that I deal with.

 

The past two semesters, I've considered doing it, but I've also thought it was too embarrassing. But finally, things have gotten to the point where I'm realizing that it's not embarrassing, it's reality. So I've taken the initial steps to go through with it.

 

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I watch as a girl with braces sets down a tower of pizza boxes at lanes 18 and 20. I shift my eyes to Charlie, who has just launched a bowling ball overhand onto the wood floor baseball style, scaring the children in the neighboring lanes. I watch him manipulate the air like a mime; steering the ball off the bumpers to the left then to the right before pumping his fist in victory.
"I got eight!" he yells excitedly from about 15 feet away.
I look over at the pizza again as the other kids start to filter in around the table. I look at Charlie. Charlie looks at the pizza. Charlie looks at me. I look at him. Like a dog at the dinner table, Charlie takes one more look at the kids munching on the pizza. (READ MORE)


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Like many in the diabetes community, my wife and I were pretty disturbed when we heard the premise of Hannah Montana's "No Sugar, Sugar" episode that was scheduled to air last night.

 

The episode tackles the issue of juvenile diabetes, but not as we know it to be. A major, recurring character on the show gets diabetes. Oliver, one of Miley's best friends, is ashamed at first and tries to hide his disease from his friends.

 

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I went out to lunch with a group after church today. I have not been going to this church very long and this was my first time joining this group. I didn't know any of the people very well at all.
I had the 4 year old and the 6 month old along and they were keeping me hopping. (Actually just the 4 y.o.) We all perused the menu. It was a Mexican restaurant.
[I can hear the gasps from you now. Mexican food is very high carb, high fat and difficult to judge as far as blood sugars. It's also a big fat no-no for most diet plans.]
I made a not-wise selection but justified most of it by substituting whole black beans for the refried beans that came with the lunch special. Yes, the fiber would undo the 100 grams of carbs I was about to ingest. Then I tuned into the discussion across the table. (READ MORE)


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What the hell just happened?

 

Remember me blabbing away about being so fortunate and grateful to the school for providing classroom aides for Charlie? Aides, who would blend into the background and seamlessly check Charlie's blood sugar, count out carbs and give him insulin? Remember how Susanne spent the first day of school training the aides in how to use the pump? Remember how we met with the school officials and how they all signed off on the 504 plan? Remember how it was the school's idea in the first place to hire these aides for the very purpose of testing blood sugar and administrating insulin?


Well, forget all that.


Oh, and remember the morning aide who has type 2 diabetes? She has really been working out great.


She's leaving. Found another job apparently. Leaving the glamorous life of pricking fingers and counting crackers.

(READ MORE)


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Scott Marvel
Scott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.(Read More)


Latest Posts: Get Emotional On World Diabetes Day | Bring On Flu Season | Out of Pocket Pumping

Julia
Julia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)

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