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February 10th, 2012
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This is World Diabetes Day, the first annual, and the international community is embracing its message by flying high the striking blue symbol of the disease. The message is about waking up the world to the growing impact of diabetes on our young and old- this year's theme focusing on children and adolescents. The innocent faces of the disease give a hammering reminder of what we are striving for, worldwide awareness, more scientific breakthroughs, and a much needed cure. (READ MORE)


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"The 'Diabetes Police' are everywhere, telling us what we may or may not eat or do, on pain of losing a leg, going blind, or -- G-d forbid -- dying like their father's great-aunt by marriage did thirty years ago."

 

  • --"They" tell us we may not eat breads and cakes
  • --"They" tell us we may not eat fruits or sweets
  • --"They" tell us we may not eat that nice, juicy bacon cheeseburger -- especially if it's accompanied by a plate of crispy French fries and a frosty tankard of microbrew ale
  • --"They" tell us we may not drink anything other than tap water, or black coffee sweetened with Splenda
  • --"They" tell us we must eat tons of cinnamon, bitter melon extract, and a myriad of other "cures du jour" that cure diabetes only in Halle Berry's pipe dreams

 

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This past weekend has seen a lot of DOC heat over Type 2 Diabetic and former Arkansas Governor Mike Huckabee's analogizing signing up for medical insurance with a pre-existing condition to trying to insure a home after it has been completely burned to the ground, or a car that has been completely totaled. Our peers have been enraged at the idea that Governor Huckabee is discounting productive lives to the point that, if the analogy were allowed to be continued, we should be completely culled from society (read: euthanized) -- either at the point of diagnosis, or at the point at which we can no longer pay the cost of our medical upkeep ourselves.

 

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On rare occasions, diabetes fades into the background like the hum of a distant freight train or barely audible elevator music. If I have nothing to write, that's likely a good thing. Last weekend was not one of those times.

 

On Friday night, Charlie muttered "damn, diabetes!" angrily after I put the kibosh on the candy push-pops being handed out at the baseball field.

 

On Saturday, in the shower, Charlie asked what all the little marks on his fingers were. He asked if the marks would go away. I weakly said "I think so."

 

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I wish he didn’t love food so much. I wonder if it would be different if he wasn’t raised with so many food restrictions and limitations. I wonder if we created this monster. This monster that if given the green light would eat a whole penguin in one sitting if it was fried and could be dipped in some sort of sauce.

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There has been much heat in the diabetes online community concerning the new Medicaid/Medicare restrictions on paying for blood glucose testing supplies for people with diabetes, including the belief that these limitations will quickly replace current private-insurance coverage policies. We're seeing some of those repercussions here as The Other Half has just been informed that instead of covering testing supplies ad libitum (as many as his doctor writes for, for whichever brand she writes for), they will only cover OneTouch or Accu-Chek strips, to a maximum of 51 strips per month for people with diabetes who do not require injectable insulin, and 204 strips per month for those who do require it. (READ MORE)


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After I was diagnosed with congestive heart failure at the end of December 2008, I spent a good deal of time researching the condition, treatment options, and the various limitations that the condition would place on my activities. One such limitation that I came across was air travel.

 

I read countless articles, studies, etc… that indicated that patients with CHF should, in general, avoid air travel because of potential problems and the additional stresses the body endures during high altitude flights. And those who did travel by air, needed to meet certain parameters, like being able to walk certain distances and climb stairs without getting winded, and have doctor approval, etc… before doing so.

 

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There are enough issues with the data from our diabetes devices to make the average PWD's head spin.

 

First off, there's the sheer volume of it. Consider that the average glucometer burns through 1500 readings a year -- which hikes up somewhere closer to 6000 if you have type 1 diabetes and don't have a continuous monitor you can rely on. Then there are the carb counts, food data bases, multiple basal rates, special basal rates, bolus wizards, special bolus calculations, and the smartphone calendar alarm to manage them all. Those of us with type 2 diabetes may not have all the insulin data to collect, but we have instead the blood pressure data, and along with the caloric impact of the foods we eat, we have to capture the fat distribution and the sodium levels. For all of us who exercise regularly, there are the heart-rate monitor data, the treadmill, elliptical, and cyclocomputer statistics, and the rep charts for weights.

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One thing I've learned both living with diabetes (and hypertension and everything else) and having family members with diabetes, hypertension, dyslipidemia, and other health issues is that no matter how far away you are, and whether that be in miles or in outlooks, the chronic illness of one is shared by the entire family. Here, many hands do not make "light work" -- that right goes to the bonds of love and familial obligation. While a large support network might ease the afflicted person's ability to live a full life, it means that a much larger number of people need to consider the needs of that person, that many more perceive an increase in their own risk for developing that malady, and that many more must learn to accommodate a family member's needs within their own lives.

 

To start with, it's hard to address diabetes without addressing diet. After all, they both start with the diphthong // dai //

 

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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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