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I met my boyfriend Curtis in April, just weeks after he was in a very serious car accident. I have watched and helped, over the past months, as he's struggled with serious back injury that has impeded his ability to work and play in so many ways. I've also watched and helped as post-concussion issues with cognition and vision have caused major struggles at work and home. It has been a difficult road for him.
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Categories: Type 1 Children In the News
Tags: diabetes humor gleevec sutent
Views: 4068
If by some miracle diabetes is cured, I shall name my next two children after the two cancer drugs that made it possible. We will adopt two Eastern European brothers and name them Gleevec and Sutent. I just hope everyone gets along.
Charlie: Mom! Gleevec called me Sugar Boy!
Susanne: Carey, can you deal with this? I'm running out to buy more cake.
Carey: Gleevec, stop teasing your brother. Besides, he's cured now. We don't call him Sugar Boy anymore.
Susanne: We never … oh, forget it. Charlie, do you want some pie too? I can ask them to sprinkle jelly beans on top. Or would you rather Skittles?
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Categories: Type 1 Type 2 Oral Meds Insulin & Pumps Emotions Real Life
Tags: (none)
Views: 2071
I've heard many times in the last nearly two weeks how incredibly thorough my new primary care doctor is (I should probably write a post on why I switched). On March 31 when a blood clot in my leg was diagnosed, Dr. K did exhaustive testing to see why the clot developed. The tech took 24 vials of blood!
I knew I needed to see a hematologist (a blood specialist) but I wanted to wait until I got all the test results back from Dr. K. Everything, and I mean everything, Dr. K tested for was normal. There was not one single condition or genetic predisposition. Which was good, but it still didn't give me any answers to why this was happening.
The previous two clots I had developed because of a hormone-related event, and seeing as I'm not pregnant, not on the pill and not taking any hormones of any kind I was left with an even bigger "WHY?"
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In my last post, I mentioned that I would be wearing some Continuous Glucose Monitoring Systems (CGMS) and deciding if any were right for me.
I tried both the DexCom and the Navigator. My decision was this: there is simply no way a separate device is going to work for me. This was proven by the HOURS worth of dead zones - where I'd accidentally left the device behind. Further evidence, the fact that I regularly leave my cellphone behind when I leave my house in the morning - and that since childhood I've been known as someone who "would lose their head if it weren't tied on." Really, I think I'd lose my pump if that weren't tied on!
So, I am starting the process of trying to get a Minimed Real-Time System. I've got new insurance with my new job- so the pump part shouldn't be too great a struggle. But the CGM to go along with it is a different story.
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Categories: Type 1 Type 2
Tags: diabetes fun and games
Views: 1609
For a while there, I was really starting to think Charlie was going to use his super diabetes powers to keep the flu at bay. I was hoping for some irony. Maybe the kid with D would be the only one in the household left standing.
No such luck. Charlie is on day two of what has become known as "The Great Ass Whoopin' of 2008." Or the somber yet simple, "March Sadness." I estimate that we'll see the light at the end of the tunnel by sometime in July.
Now Charlie has even more numbers surrounding him. And this has me confused.
Susanne tells me he's 102 and I think, wow! Pretty good considering he has the flu. Unfortunately she's referring to his body temperature and not his blood sugar. "Oh, blood sugar? You don't want to know that," she says. (READ MORE)
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Categories: Type 1 Children Real Life
Tags: diabetes school health aide
Views: 1551
Whether Charlie is walking from his classroom to art class or sitting at an assembly or standing in a badly formed line for a fire drill, he's always being followed. Mrs. D is never more than a few feet away, her eyes locked upon him.
Even photos of Charlie from the kindergarten Halloween parade capture Mrs. D in the background, dressed like a bumblebee, grasping Charlie's black rocket-designed diabetes bag in her left hand. (READ MORE)
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Categories: Type 1 Insulin & Pumps Highs & Lows Emotions Real Life
Tags: irony medical tests
Views: 1312
I was on day four of my site. The longest I had gone with a site so far. Fasting was 275. Ouch. I checked twice just to be sure. Either three days for a site was my limit or I was super nervous about the medical tests I was to undergo later in the day. It could have also had something to do with the ice cream night cap I had the night before, but I'm more inclined to think it was nerves since my two-hour post breakfast reading was just as disgusting. (READ MORE)
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Categories: Type 1 Type 2 Insulin & Pumps Highs & Lows Emotions Real Life
Tags: CGMS
Views: 1092
I guess word didn't get to DexCom that I'm the world's most impatient person.
I really tried to wait patiently until my new contraption arrived, but when it got to be almost past the amount of time I was quoted for shipping, I decided to call.
"Hi, J. I know we had a holiday in there, but we're at the tail end of the three to five business days you said it would take to get my DexCom. So I'm wondering if you can track the package for me so I can know more specifically when to expect it. You have all my numbers…talk to you soon."
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Categories: Type 1 Type 2 Oral Meds Insulin & Pumps Highs & Lows Relationships Real Life
Tags: (none)
Views: 798
This morning No. 1 pointed to my left leg and said, "Ew. That looks worse than it did the other day."
Yeah, thanks kid. Even The Mr. said something this morning: "You look like you got skinned."
Well, I did.
Friday afternoon I was working from home. Even though they said it's a dry heat here in the desert, we're having some wicked humidity lately. So when it's 108 degrees with 900% humidity, I tell the kids I'll pick them up from school instead of making them walk. When the kids walk or ride their bikes home, No. 2 usually looks like she's about to pass out because her face is beat red.
So anyway, I was headed out to pick up the kids from school on Friday afternoon. Naturally, No. 3 had fallen asleep about 30 minutes earlier. I picked her up and she put her sleepy head on my shoulder.
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Categories: Food Real Life
Tags: carbohydrates Christmas Cookies food choices holidays humor irony music songs
Views: 471
The following filk developed last weekend in the thick of Christmas Cookie baking. You may appreciate the irony of "healthy cookies"...
Oatmeal, the Raisin Cookie
With apologies to Dasher, Dancer, Prancer, Vixen, Comet, Cupid, Donner, Blitzen, Rudolph, Kris, Burl, and the Singing Cowboy, himself...
There are Cardamom Spice Rounds, and Cheese Straws, and Spritzen
Chocolate chippers and others with mix-ins
But even at Christmas we bake
The "most healthy" cookie, by Jake!
Oatmeal, the Raisin Cookie
Had a very bumpy top
And once you bit into it,
You would never, ever stop
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