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We found 7 result(s) that match your search "invisible illnesses":

Last week was Invisible Illness Week which I missed thanks to my crazy work schedule and inactivity here in the blogosphere. But there was a "30 Things About My Invisible Illness" meme floating around that I really wanted to get in on. So here it is:

 

1. The illness(es) I live with is/are: Type 1 Diabetes, PCOS, and endometriosis

 

2. I was diagnosed with it in the year: 1993 and 2009

 

3. But I had symptoms since: Two to three weeks before. I got sick very quickly with the D. The PCOS/endometriosis took several years to diagnosis.

 

4. The biggest adjustment I’ve had to make is: I have no idea considering that I don't remember what life was like before this. I'd say in recent years, the biggest thing has been bolusing for even the tiniest amount of carbs that go into my mouth.

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Sometimes, real life hands me topics for posts and pleasure, and sometimes, there are "soapbox" issues on which I feel I must speak out. Often the "issues" arise from my being a "pattern thinker": I synthesize information by finding patterns. This means I often see patterns where others don't -- but that doesn't mean the patterns are real. Just like I need to analyze blood glucose logs to make sure that pattern of highs and lows I think I'm seeing is real, I need to research and observe to see if other patterns I think I'm seeing are real, or just my subjective impressions.

 

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Last week when I suggested that the diabetes community design an awareness symbol akin to the breast cancer campaign's pink ribbon, I apparently hit a nerve with someone.

Nordtorp says he's not into the secret handshake thing and that ribbons and pins don’t make a difference. He doesn't think that wearing a trinket will cause more money to be funnelled into diabetes research.

I have to say that I whole-heartedly disagree. If someone asked you what are the major illnesses -- chronic or otherwise -- that affect the U.S. population, would the common person identify diabetes as one of them? Without a connection to diabetes, I doubt it. Does the common person even really understand what diabetes is? Not many.

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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.

 

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When I was in grade school, regardless of whether our Trick-or-Treat costumes were home-made or store-bought, whether we wore masks or make-up, our huge paper loot bags were accompanied by small orange milk cartons stamped with information from UNICEF -- The United Nations Children's Fund. Printed on the cartons were examples of what a small donation might do for a child in a third-world country -- a nickel, for example, might provide a child with a pencil and notebook for school; a dollar might vaccinate him against smallpox or polio; five dollars could get his town clean water. The following school day, our teachers would collect the milk containers. The local PTA would count up the money and submit the school's UNICEF donation for that year.

 

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Seeing the girl with diabetes at the Make-A-Wish picnic made we think. How does one measure who is worthy of a wish?  Kids are afflicted with all sorts of conditions, obviously some more serious than others.

 

Granting wishes - what an incredible idea and an amazing organization. I was talking to a father of girl who had tumors in her head.

 

“They’re non-cancerous,” he said.

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