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If you experience pain as a result of your diabetes, what have you found to be the best way to alleviate it?

May 27th, 2012
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I talked to Olivia again about going off the pump and she's adamant about wanting to do it.  We were changing her site because, once again, the site she'd had in got infected. She only keeps a site in for 2 days, but they often seem to get red and irritated. We use antiseptic wipes before inserting them - I don't know if she's just sensitive or if we're doing something wrong or what, but she's sick of it. I don't blame her; after looking at her stomach and arms, she's got a lot of ugly, raised white  bumps, especially on her belly. We rotate sites all the time and go pretty far out on to her sides, but the scars just don't seem to go away.

 

I don't know if there's anything that can be used to get rid of the scars or if she's stuck with them forever.  I just know they really bother her. 

 

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Olivia uses a Minimed Paradigm pump - the 715 model. We have had no issues with it (knock wood, turn around three times, go outside and spit). I think I've called the help line once in the last three years.

She uses the Silhouette infusion sites. The angled cannula seems to be better for her. The sites that go straight in would bend and crimp. That's not to say she hasn't had the occasional problem with the Sils, but for the most part, they've been fine.

The last 10 or so site changes, though, have been different. The needle that plunges the cannula into her body (bleurgh) is bending. Really bending, like at a 90 degree angle. And it hurts a lot.
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This morning I woke up to my pump alarm yelling at me. I turned over and looked at the clock. Having over an hour before I needed to wake up I grabbed my pump and pressed the ESC and ACT buttons to kill the alarm and fell quickly back to sleep. I knew this morning was going to be an infusion set change day so I was not surprised, just annoyed.
No sooner did I go back to sleep that I heard the alarm again. Not normally when you clear the low reservoir alarm you have another 10 units of insulin worth before the alarm goes off again. I reached under the blankets and cleared the alarm again. I don't think I even achieved REM state before my alarm went off and I was up for good. Bummer. (READ MORE)


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I use an insulin pump to manage my diabetes. The pump I use is from Minimed. I have always felt like they have taken good care of me and speak very highly of them.


Don’t get me wrong, I still think they are a good company but I was a little annoyed by a couple of things that happened.


First, I am signed up for the automatic refill program. Every three months a new box of my pump supplies shows up at my door and usually a little earlier then I need to I feel safe and secure. For whatever reason, my quarterly shipment was not sent.

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Right now, I'm a complete bundle of nerves. Last night, I suddenly decided that today I would go off the pump. I know that I've been talking about it, but I assumed that I'd get it all straightened out and be back into "normalcy" before April 1st came around.

 

But you'd be surprised to find that poor control is actually NOT the reason why I'm going off the pump. In the past two weeks, I've had some highs and far fewer lows (which is just amazing). My averages are still in the 150 range though, which is what I'd settle for to get down to the 130 range (slowly, without lows).

 

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After several days of using relatively unused abdominal real estate for my infusion sites, I've determined that I had most likely worn out the prime spots, which resulted in some pretty horrendous blood sugar spikes. I guess I should have known it would happen.

 

I have tried in the past to move my sites around. I've gradually moved toward my love handles, I've moved north before, I've even tried a thigh site with less than desirable results. In fact, the results were terrible. Terrible enough that I either yanked the sites after just a few hours or went back to the tried and true spots.

 

Perhaps I should have been more patient. (Story of my life, right?)

 

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A few months ago, I decided to start using my thighs for my infusion sets. I wasn't getting good absorption from my bottom and the adhesive gives my stomach a rash. Within a few days, I loved that I could use my thighs.

 

The set would catch less on my jeans. It was easier to place my pump on my belt or in my sock. There was less pain than my stomach. Overall, my thighs proved to be very effective (and not as scary as I thought).

 

Over the past months, I've rotated my infusion sets from my right to left thigh and back. I've also rotated the area ranging from the upper portion of my thigh to a lower portion. I generally know where the previous infusion sets have been because the needles cause a lingering red spot. So it was easy to avoid using the same exact spot.

 

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I have not had good blood sugar the last four days. Watching the little blips on Dex go crazy high and then plummet below my "low" mark has been nerve wracking to say the least.

 

What did I eat? Did I not exercise enough? Did I overdo my exercise? Am I stressed? Is it hormones? Is my meter calibrated right? Did I calibrate Dex right? What did I eat? Did I forget to bolus? Did I miscalculate carbs?

 

What did *I* do?

 

The last four days I blamed myself for my roller coaster blood sugars. They were horrible, really. Highs so high and not responding to insulin. And then when those highs finally started coming down I felt comfortable enough to eat and my sugar would shoot back up. I think Dex woke me up most of those four nights.

 

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The X-ray of Charlie’s belly went fine. He stood in the middle of the room, holding the back of his gown together and smiling nervously as the X-ray machines were thrust into motion.

 

"It’s like when they put Darth Vader back together," I said, referring to the futuristic hum of moving parts and metal unfolding and twisting above our heads.

 

Charlie smiled and nodded.

 

When it was done, the technician let us take a gander at Charlie’s insides on the computer monitor.

 

"You’ve got a lot of air in there, Charlie," she said.

 

She pointed to different spots on the X-ray.

 

"This is air. This is air. This is poo-poo (yes, she said poo-poo). And this is more air over here."

 

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For Halloween, Charlie went as a record-scratchin' hip hop DJ with diabetes. The diabetes part was easy but building the turntable was a little tricky. I wanted him to go as the Calorie King, but sadly it wasn't to be.

  

Had I thought of it earlier, I would have asked you all for some DJ name suggestions.

 

Maybe DJ D-Boy or DJ Infusion or DJ Broken Pancreaz.

 

I instructed Charlie to ask for celery if anyone tried to put candy in his bag.

 

What I find most challenging during the trick or treating is the fact that the little "fun-sized" candy bars don't have the carbs listed. I wouldn't call that "fun" whatsoever. To combat this, I did some carb cramming with the aforementioned  Calorie King before leaving the house.

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
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