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Categories: Type 1 Children Highs & Lows Real Life
Tags: ice hockey with diabetes ice skating with diabetes
Views: 852
The day before Charlie was to begin playing ice hockey for the first time, we went to the rink to break in his new skates and get a little practice in.
As it is with just about everything we do, decisions need to be made regarding Charlie's diabetes. Do we adjust basals? Maybe. Does he skate with pump on or pump off? What do we do with his testing supplies? I didn't want to hold the bag while skating the whole time yet I couldn't leave it behind in a locker. I ended up stuffing my coat pockets with alcohol wipes, peanut butter crackers, a juice box, test strips, a pricker and the meter. With a camera, cell phone and keys also in my pockets, it's a wonder I was able to move at all.
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Categories: Type 1 Insulin & Pumps Children Highs & Lows Real Life
Tags: ice hockey with diabetes
Views: 858
As parents of children with diabetes, we are constantly being challenged with difficult decisions to make.
Charlie has wanted to play ice hockey for over a year now. He lives for hockey. He mimics the moves he sees on television from professional hockey players, pretending to stop on a dime and spray ice on the hard-wood floors. He sets up little hockey figurine players and simulates game situations. When he's not doing that, he plays hockey on his Playstation. And when he's not doing that, he and I play indoor knee hockey in his bedroom where he repeatedly takes ferocious slap shots into my groin. It's great fun. The kid loves hockey, is what I'm tryin' to say.
The waiting was finally over. I knew how excited he was for this moment, so I didn't want to screw it up on my end. I came with a simple plan:
1. Feed him lunch before he plays
2. Disconnect pump
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Categories: Type 1 Insulin & Pumps Children Food Real Life
Tags: (none)
Views: 500
I was stuffing Charlie’s smelly hockey equipment into his big hockey bag when I heard Susanne from the other room.
"So you’re gonna tell the coach about Charlie’s … and she paused.
"Bad gas? Yeah, I’ll let him know," I said.
"Diabetes," Charlie mumbled while picking up a 2-7 spare in Wii Bowling.
"Oh, right, diabetes."
Ice hockey season started on Sunday. How nice it would be to just throw him on the ice and say, "have fun" like all the other kids’ parents do - the biggest worry being a potential blister. For us, there’s just so much to think about. So much "strategery," as Will Ferrell would say in impersonating George W. Bush on Saturday Night Live.
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Categories: Type 1 Insulin & Pumps Children Food Highs & Lows Real Life
Tags: high blood sugar hockey low blood sugar
Views: 452
"So much drama," the hockey dad said to me, scuttling his son back onto the ice.
"Yeah," I said. "I know."
I wanted to shoot red lasers at him from my eyeballs.
I should go back to the beginning. Back when I was getting Charlie’s pads and skates on and looking angrily at a 415 on his meter. 415 was not at all part of the plan.
From the cold bleachers we watch Charlie through the glass. We watch him grimace and straighten his back. We watch him as he falls to the ice and stays down too long, pressing on the outside of his ankles.
Why is he on his knees so much, we ask? The other kids aren’t doing that. Why is he so uncomfortable?
Is it because he’s 400?
Can we blame diabetes?
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Categories: Type 1 Children Food Highs & Lows Real Life
Tags: ice hockey with diabetes
Views: 347
Charlie sat on the bench in a somewhat meditative state. Even the blank expression on his face seemed by design to be a strategy in which to conserve energy. If he blinked his eyes less frequently and stayed perfectly still, perhaps his blood sugar would remain above 100.
"Charlie, you can skate a little bit before hockey starts," I said. "You’ve got about 10 minutes."
"Neh," Charlie said calmly and without emotion. "I really don’t want to go low this time."
Who can blame him after last week’s debacle.
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Categories: Type 1 Insulin & Pumps Children Highs & Lows Real Life
Tags: hockey with diabetes
Views: 721
Charlie's ice hockey session ended yesterday. After a rocky start – which I wrote about recently – I must say; blood sugars have worked out beautifully.
Without too much trial and error, we found a routine that worked and stuck with it for the remaining four weeks of the hockey program.
I tested him just before he took the ice, unplugged him and gave him a 20-carb banana (with no bolus) to cover the intense workout. Unsure how it would work out in the beginning, careful disconnection of his pump felt like an attempt to dismantle a bomb. "Work damn you! Work!"
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Categories: Type 1 Children Highs & Lows Real Life
Tags: (none)
Views: 632
The new year is off to an auspicious start. Despite being hampered by pink eye and a very nasty cold, I've already accomplished my first resolution – grow a manageable light winter beard as a distraction to increasingly thinning hair. Done!
Christmas was nice. Santa rocked it. Although …
I hate to be nitpicky, but there was one Christmas present under the tree that we just had to throw out due to the odor. Remind me next year to specify in my letter to Santa that "working pancreas for Charlie" should be kept on ice.
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Categories: Type 1 Insulin & Pumps Children Food Highs & Lows Real Life
Tags: (none)
Views: 1302
* This just in from the Potash Research Facility. In a five-day study involving the consumption of Frosted Mini-Wheats cereal for breakfast, one patient (Charlie) demonstrated postprandial blood glucose levels that - in scientific terms - didn't suck. Glucose levels peaked at about 200 mg/dl, a marked reduction from the postprandial effect of blueberry waffles. Chief Scientist Susanne Potash observed positive results in four out of five days. The patient's reaction, however, after being told that he'd be having more Mini-Wheats and less blueberry waffles for breakfast, did suck.
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Categories: Type 1 Children Food Highs & Lows Real Life
Tags: celiac disease lows stomach pain
Views: 687
Sounds like a bad sitcom destined for cancellation, but seriously … what is up with Charlie?
He has had chronic stomach pains for weeks and we don't know what's causing it. We thought maybe he had a bug after he woke us up at 5 am last Saturday to tell us that he was about to vomit. Which he did. Once.
If it is a virus, it's the longest one ever. His blood work came back negative for Celiac disease, but Susanne's gluten-free gut tells her otherwise. The peds want to take him off dairy for a week or two to see if the issue lies there.
He has just been very un-Charlie like and I'm getting concerned. Where is the Charlie that harasses us until submission? That begs us to stay up late and devours everything on his plate? He's not eating because he feels sick when he does.
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Categories: Type 1 Children Highs & Lows Real Life
Tags: low blood sugar
Views: 1098
From the top of a hill overlooking a baseball diamond ,
"I think I'm low."
While playing roller hockey like a Transformer with 15 pounds of equipment ,
"I think I'm low."
While blowing bubbles on the deck ,
"I think I'm low."
From the top of the stairs ,
"I think I'm low."
In the wee hours of the morning while the whole house sleeps ,
"Mom, dad, I think I'm low."
"I think I'm low." "I think I'm low." "I think I'm low." (READ MORE)
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