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May 26th, 2012
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Most of the teams who participate in our local JDRF Walk for a Cure are composed of friends and family walking for a child with diabetes. The child gets to be the focus of attention for a fun-filled day of raising awareness for that which normally separates him (or her) from his friends. There's also the smattering of company, corporate, and fraternal teams walking in the name of public service.

 

And then there's the third type of team: those who walk to honor the memory of a loved one killed by diabetes.

 

Memorial teams may be the fewest in number, but they serve as a poignant reminder of why we must walk - why we must continue to walk - and why insulin is not a cure.

 

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Looking back at photos from our first Walk to Cure Diabetes, Charlie is just a baby. He was a youth extra small. Still, he swam in the oversized shirt like it was a smock. Now he's entered adult sizes.

 

I have watched his fingers grow longer and wider from a unique vantage point; having his hand in mine through thousands of finger pricks from the age of 2 to the age of 9. Maybe it's millions. It sure as hell feels like millions.

 

An excerpt from our diabetes fundraising letter:

 

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He doesn’t say "if there’s a cure." He says, "When there’s a cure."

 

We are on our way to Carlucci’s, a restaurant that will donate 15% of one night’s dinner sales to JDRF.

 

I glance at Charlie in the rear-view mirror.

 

"When there’s a cure, I’m going to take my pump, jump up in the air and smash it down on the ground like football players do when they score a touchdown."

 

"You mean you’re going to spike it?" I ask.

 

"Mmhmm."

 

"And I’m going to throw all of my diabetes supplies in the garbage."

 

He stares through the car window at used car dealerships and strip malls, thinking longer about it.

 

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Once you get past the congestion of sheer numbers and the mix of colors, designs, and graphic techniques, there's one thing that stands out on every team shirt at the Seaside Heights, NJ JDRF Walk: cure. It's not just because the event is called the Walk to Cure Diabetes (emphasis mine), or because insulin is "not a cure" for autoimmune diabetes. It's not because parents are struggling to pay for their children's pumps and CGMs, or because adversity breeds strength.

 

Find a Cure

 

The reason we see the word cure is same reason we see another word on team names and slogans, and that word is hope.

 

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This was going to be the year that I just took a pass on the fundraising; closed down Charlie’s Angels until next year. I just felt burnt out. We’ve done lots of fundraising for JDRF since Charlie’s diagnosis. It’s hard to get up for it every year; especially knowing that with it comes much rejection and wasted energy. It’s also tough to keep telling friends and family that a cure is right around the corner. Is it?

 

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While I posted yesterday that Nick Jonas was in New York Sunday for the Diabetes Research Institute's Carnival for a Cure, I didn't mention much about the event itself. Billed as "New York City's largest indoor carnival," the event was a cross between a street fair and an arcade, aimed largely at the under-twelve crowd. Three walls of the Metropolitan Pavillion were lined with inflatable mazes, slides, and bounce rooms, and a human-powered "mechanical bull". Several street-fair games-of-skill, aimed again at the under-twelve set, occupied a block of canopies in the center of the room. Prize tickets were given to the winners, and by the end of the afternoon almost every family there was wrangling multiple shopping bags of toys. (READ MORE)


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A few years ago, we made a fundraising video of Charlie to the song, Fix You by Coldplay. At the time, I chose the song because ... well, I liked it and because of this line in the song:

 

"I will try to fix you."

 

In just six words, it conveyed so much. It was perfect. That’s why we raise money for a cure.

 

I had known the song, but never really paid too much attention to the words aside from the "fix you" part. But when making the video, frame by frame, and really paying attention to the lyrics, I could not believe how much the song seemed to relate to life with diabetes.

 

"When you try your best but you don’t succeed." (I hear that. How about every day!)

 

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The Other Half and I are spending the next week in Virginia Beach with his family. On Saturday, his old high school will be celebrating its 50-year anniversary, including a reunion for anyone who graduated from there before it moved to a new building. We drove down this past Saturday and will be driving up the Monday after the reunion, giving us a ten day period during a time of year when we aren't pressed to "make the rounds" from dawn to dusk, and two entire Sundays -- making it possible for me to join a local cycling shop for its weekly ride.

 

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Just about a month until our Walk to Cure Diabetes. I’m hoping for a good homestretch. Fundraising is hard.

 

I actually did get a response from the golf course regarding my request for a "Longest Marshmallow Drive for Diabetes" competition. Just getting a response is half the battle. They said they were intrigued with the idea and asked me to submit a proposal with details of the event. They wanted to know how much space I needed and how far a golfer can hit a marshmallow? Good question. I bought a bag of marshmallows to test it out, but never did because the marshmallows were all conjoined in one big sticky lump. I’m not much of a golfer anyway. I hope I get this fundraising event. Crossing fingers.

 

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After putting a lot of effort into Charlie's Angels every late summer/early fall, I usually slip into a long fundraising hibernation.  I typically wake from it some time in August and start all over again. This year I slept a little longer.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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