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February 9th, 2012
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Quick! I need your help. Through work, I got the name of an account executive we deal with from the Red Bulls – the professional soccer team in New York. We're playing a bit of phone tag. He called me back and left a message asking me what exactly I had in mind as far as fundraising for the Juvenile Diabetes Research Foundation.

 

The problem is I don't know what I have in mind.

 

What do I have in mind?

 

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This was going to be the year that I just took a pass on the fundraising; closed down Charlie’s Angels until next year. I just felt burnt out. We’ve done lots of fundraising for JDRF since Charlie’s diagnosis. It’s hard to get up for it every year; especially knowing that with it comes much rejection and wasted energy. It’s also tough to keep telling friends and family that a cure is right around the corner. Is it?

 

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I usually have my JDRF Walk to Cure Diabetes fundraising letter done and distributed by mid-July. This year has been different. I've been in a fundraising funk. I'm just tired of writing the same statistics year after year. The lower life expectancy; the long-term complications; adding up the number of finger pricks since November of 2003. I finally did sit down and write our letter - deciding to simply write what I was feeling at that moment.

 

Dear Friends and Family,

 

"A cure for diabetes is just around the corner."

 

"Scientists are closer than ever to finding a cure."

 

"A cure for diabetes is now within reach."

 

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When we got out of the car, the first thing Charlie did was adjust his "Charlie's Angels" t-shirt so that his insulin pump was visible to his fellow diabetic comrades.


 

Then he scoped the area for others who sported similar machinery. If there was a "D" signal on the pump, he would have surely activated it.


Calling all diabetics! Calling all diabetics! Rendezvous at the Tastykake table in 5. Tell your mothers you feel low.


We had a gorgeous day filled with sunshine and the support of great friends and family who walked beside us for a cure at Rutgers University's agricultural campus.

 

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I received some excellent suggestions from readers regarding the New York Red Bull soccer fundraiser. Thank you very much.

 

I did talk to the account exec from the Red Bull and we had a very nice conversation. I approached the conversation thinking that anything at all that they could do would be fantastic and saw great value in simply establishing a relationship between JDRF and the team.

 

"I had some ideas," he said. "JDRF can be the 'Charity of the Match' for the game of your choosing."

 

"Uh huh." (I liked where this was going.)

 

"We can do a 'Jersey off the Back' of one of the players raffle at the game. $5 for a chance to win the jersey. After the game, the player will come out, sign autographs and take a picture with the winner."

 

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A few years ago, we made a fundraising video of Charlie to the song, Fix You by Coldplay. At the time, I chose the song because ... well, I liked it and because of this line in the song:

 

"I will try to fix you."

 

In just six words, it conveyed so much. It was perfect. That’s why we raise money for a cure.

 

I had known the song, but never really paid too much attention to the words aside from the "fix you" part. But when making the video, frame by frame, and really paying attention to the lyrics, I could not believe how much the song seemed to relate to life with diabetes.

 

"When you try your best but you don’t succeed." (I hear that. How about every day!)

 

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In trying to raise money for diabetes research, I've definitely noticed the effect of our declining economy. People just don't have money to give this year. 


With a month left before our team assembles for the Walk to Cure Diabetes, I've reached the stage of our JDRF fundraising campaign where I get a little desperate. When just about every person, place or thing in my periphery is fair game.


For example, driving home from a soccer game and crossing the Delaware River toll bridge. Hmm, I thought. Tolls.

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In February and March we sought the guidance of diabetes author and coach Gary Scheiner to see if we too could "Think Like a Pancreas." Our few meetings energized us briefly, but soon enough, we were back to feeling lost and utterly confused. After about five months, the pump wasn't working out as we hoped it would.
In April we decided to throw out all carb ratios and basal levels and begin with a clean slate, following more pump frustrations and a disappointing A1c of 9.6. We felt we hit rock bottom. We worked daily with the pump educator, tweaking and tweaking and tweaking and scratching our heads until we could tweak and scratch no more. (READ MORE)


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The Other Half and I are spending the next week in Virginia Beach with his family. On Saturday, his old high school will be celebrating its 50-year anniversary, including a reunion for anyone who graduated from there before it moved to a new building. We drove down this past Saturday and will be driving up the Monday after the reunion, giving us a ten day period during a time of year when we aren't pressed to "make the rounds" from dawn to dusk, and two entire Sundays -- making it possible for me to join a local cycling shop for its weekly ride.

 

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Our team, Charlie's Angels, has been raising money for the Juvenile Diabetes Research Foundation since 2003 – the year Charlie was diagnosed.

 

For the first few years, we sent out our fundraising letter to friends, family and co-workers and did remarkably well. Last year, however, I started to feel uncomfortable asking the same people to give so generously yet again. I felt like they were investors in a cure that I was falsely promising. A cure that was "closer than ever" or "within reach" or "right around the corner." To be honest, I really don't know how close we are to a cure. But, what else can I do? I can't cure Charlie. I can only raise money and give it to the people who say they possibly can. I'll sell it like a snake oil salesman if I must.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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