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May 24th, 2012
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I got a call this morning saying that my appointment with the new endocrinologist next week had to be rescheduled. So I called into the appointments line of the clinic asking for her next available, only to be told that it wasn't until June 10th at the earliest. Three weeks away doesn't sound so bad...except that I can't have any appointments from June 1st to July 6th because of summer school.

 

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As if it weren't bad enough that I'm in a group OB practice and see a different doctor just about every visit, they've added a new doctor to the mix. So today's visit was with yet another doctor, who doesn't know me, and doesn't bother to read the chart...
For eight months now, another doctor, in another office, with another specialty (ie endocrinology), has followed my diabetes. Last OB visit was the first time they wanted to actually see my logs. So this visit I bring them, one chart for pre and post meal numbers, which don't tell the whole story, and another one that shows everything. You know, those lows between meals and the random highs that come out of nowhere.
Doctors who are not specifically trained in diabetes management have no business at all whatsoever looking at my blood sugar charts. (READ MORE)


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Having diabetes has many challenges as we all know. Exercising, eating right, checking our blood glucose levels, taking medicines, seeing doctors regularly, and so many more that I cannot even think of. We are busy bees.
One thing I have found as a major challenge is not losing my cool with people who maybe don't understand this disease so I would like to clear up a few things.
1. Not all people with type 1 diabetes are thin.
I am on a weight loss program right now and frankly, the only time I have ever been thin in my life was the year or so before I was diagnosed and was losing weight like crazy.
2. Not all people with type 2 are overweight.
This one drives me nuts. It is true that weight loss can help your chances of not getting diabetes but there are other factors too. I think of my uncle who had lung cancer but never smoked a day in his life. Same sort of a thing.
3. People who take insulin are not out of control. (READ MORE)


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After church I typically end up sitting down with a few of the members I get to see once and week and catch up.

 

This Sunday I was sitting with Paul. Paul is an older gentleman who is witty, funny, and sharp as a tack. I believe he is in his late 60's and read all the bible verses that day in church. He used to be a radio announcer so he has an awesome voice.

 

We asked each other how we were doing and I felt compelled to share my weekend of ridiculously high blood glucose readings.

 

"I have been sky high all weekend and cannot get my blood sugar down," I told him, not sure if he could sympathize.

 

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I've been anxiously awaiting today for several weeks now. It's the mix of fear and excitement that can't be explained. Because today I met with my new endo and my old CDE (from the pediatric days). And today, I'm completely bittersweet about this disease.

 

The endo was quite amazing. She's fairly young, seems knowledgeable, but most importantly we seemed to be pretty much on the same page with this whole thing. Not only was she in the room before the nurse finished the finger prick, blood pressure, and weight checks, but she spent over an hour with me personally. I'm in awe, the drop your jaw on the floor kind of awe mixed with the standing ovation type of awe.

 

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In February and March we sought the guidance of diabetes author and coach Gary Scheiner to see if we too could "Think Like a Pancreas." Our few meetings energized us briefly, but soon enough, we were back to feeling lost and utterly confused. After about five months, the pump wasn't working out as we hoped it would.
In April we decided to throw out all carb ratios and basal levels and begin with a clean slate, following more pump frustrations and a disappointing A1c of 9.6. We felt we hit rock bottom. We worked daily with the pump educator, tweaking and tweaking and tweaking and scratching our heads until we could tweak and scratch no more. (READ MORE)


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Every day, I live my life with diabetes the same way. I test my blood sugar, I treat lows and I change infusion sets. It is a part of me. Sometimes, it is all of me. I get frustrated on a regular basis with the highs and lows or the way it interrupts my entire life from school to dating to sleep.
It amazes me though when I look back on all those days. It makes me smile. As frustrated as I get and all the tears I cry, I don't remember diabetes as my past. Surely, it's there. I just don't remember the daily parts of the disease. (READ MORE)


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Last night, I participated in a DiabetesSisters' PODS meetup for the first time. I've seen them online and always wanted to join, but there hasn't been anything in my area and I'm not in a position to add anything to my plate right now. I noticed it on the list last week and spoke with the woman leading the group.

 

So I made the trek (it's about an hour's drive for me) to the meetup and enjoyed an hour and a half of diabetes related conversation (with a little life mixed in) with three other diabetic women. Three of us were type one and the other type two. Two other women are supposed to join next time (one of them being a friend of mine who I met at JDRF).

 

It was nice to just sit and talk about lows and highs and doctors and all that goes on. For DiabetesSisters, there are some "guidelines" supplied for these meetings. The facilitator goes through a training to even host the meeting.

 

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This morning I set about getting Lantus and figuring out the doctor situation from yesterday. So I followed my plan to call the new doctor's nurse first then the CDE I know at the clinic if that didn't work. I was prepared to raise a little "cane" if need be, but desperately hoped they would make it easy.

 

I called the new doctor's nurse wanting to speak to the nice one that I spoke to yesterday. Unfortunately, she wasn't in. So I ended up speaking to another nurse, who was quite rude. When she first began the phone call, she wouldn't let me speak to tell her about the issue which got the whole thing off to a rocky start.

 

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I was reading through the dLife Viewpoints section today and saw a post that really hit home.

 

It's called "Bested by a Can of Tomato Soup" by Scott Johnson and I think it should be required reading for type 3's and other people without diabetes.

 

Counting carbs can sometimes be a difficult and maddening situation.

 

And we do it for virtually every meal every day. I mean, we are supposed to.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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