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February 10th, 2012
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We found 10 result(s) that match your search "frustrating":

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Food is frustrating to me. Ever since I can remember, food has been a completely different aspect in my life than what my family, peers, and humanity deals with. Yes, food is a source of energy and existence. Yes, it's amazing. Yes, it packs on the pounds. But it's also a total love-hate relationship with me. For one reason: diabetes.

 

When I was first diagnosed, my life was thrown into "sugar-free" mode. My sugar intake was limited. I never tasted a real coke unless I was low. I didn't get to eat normal candy or normal desserts. Everything was tainted by fake sugar, a chemical taste that couldn't replace my childhood need for some old-fashioned sugar.

 

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One of the most frustrating things that happens to me, as a direct result of diabetes, is when a low causes me to lose memory, reason, direction, and control.  The truth is, there is simply nothing more trying for me.

 

This past week has been not so great on a lot of fronts.  Work is crazy, family life is stressed, and I've got a lot on my plate and not nearly enough time to get it all done and stay sane.  As a result, eating hasn't been at the top of my priority list.  Strangely, though my basal rates sometimes work smashingly when I'm not eating, there are days when the lack of fuel in my body ends up crashing me right out.  

 

Last night, was one of those nights.  I worked 9 hours, found out halfway through the day that I would likely be working 12 hours today, had a blacksmithing class (not so much a stressor, but physically demanding), and a rumbly night with someone who means a lot to me. 

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After church I typically end up sitting down with a few of the members I get to see once and week and catch up.

 

This Sunday I was sitting with Paul. Paul is an older gentleman who is witty, funny, and sharp as a tack. I believe he is in his late 60's and read all the bible verses that day in church. He used to be a radio announcer so he has an awesome voice.

 

We asked each other how we were doing and I felt compelled to share my weekend of ridiculously high blood glucose readings.

 

"I have been sky high all weekend and cannot get my blood sugar down," I told him, not sure if he could sympathize.

 

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Up and down. That's the way it's been lately. Numbers are up, numbers are down, nothing is making sense, patterns are confusing, emotions are frustrating. I've seen some wildly high numbers in the past week or two that are completely blowing my mind. Go to bed at 109 mg/dl, but wake up at 5 am in the 300's.
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On Friday I had an appointment with my endocrinologist. I was looking forward to talking to him about some new ideas I had thought about especially Symilin.


When I told him he was very receptive to the idea of trying Symilin and thinks it may help with some weight loss.


"Most type 2's don't have a problem using Symilin. I have subscribed it often," the doctor said to me.


"Oh but I am a type 1," I tell him in the nicest voice I can muster since I know why he said what he did.


"Are you sure?"


"Yes I am just fat." I had this same discussion with his nurse the last time I was here and I thought then that at least it wasn't my actual doctor saying something so stupid.

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The pharmacy technician said it when I bought the "real" Sudafed (not that fake PE crap you can get over the counter that they reformulated so the stupid methamphetamine manufacturers have to work harder to find their main ingredient). The nurse at the doctor's office said it when I went in for a steroid shot.
It's bad around here. Really bad. Allergies, that is.
I'd say roughly six years ago I developed seasonal allergies. I was able to handle it with over the counter antihistamines, usually. But each summer seemed to get progressively worse. And this year has been by far my worst ever. Claritin and Sudafed weren't coming close to touching my itchiness, sneezing and extremely congested head. (I was like three of the Seven Dwarfs: Itchy, Sneezy and Why Won't My Ears Pop?) (READ MORE)


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As if it weren't bad enough that I'm in a group OB practice and see a different doctor just about every visit, they've added a new doctor to the mix. So today's visit was with yet another doctor, who doesn't know me, and doesn't bother to read the chart...
For eight months now, another doctor, in another office, with another specialty (ie endocrinology), has followed my diabetes. Last OB visit was the first time they wanted to actually see my logs. So this visit I bring them, one chart for pre and post meal numbers, which don't tell the whole story, and another one that shows everything. You know, those lows between meals and the random highs that come out of nowhere.
Doctors who are not specifically trained in diabetes management have no business at all whatsoever looking at my blood sugar charts. (READ MORE)


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When the phone rang Thursday afternoon and the caller ID said "SonoraQuest" I really thought they would be looking for The Mr. Sure, I'd had labwork done not that long ago, but I had honestly forgotten.

 

Anyway, so the nurse gave this hideously long-winded explanation of why she was calling. Yeah, she had to get all that information out, but I almost nodded off! OK not really, but I did find myself screaming in my head "Get to the point woman!"

 

Looking back I guess I should have known there would be an issue. When I walked into the lab and handed the phlebotomist (who eerily reminded me of my step mother and made me wonder when she was going to yell at me) my paperwork she casually said that the order they had for me was different than the one in their system but that she was going to use the paperwork I came with.

 

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One thing about diabetes that can be particularly frustrating is not knowing how our body will react to stress. I've had just as many highs from stress as I have had unexpected lows.

 

Strangely, I think I more often go lowish from certain kinds of stress. Namely medical stress. Just over a year ago, for example, I had to have an MRI on my hip with contrasting dye and it was really an experience I was not prepared for. Sitting in the waiting area before the procedure I was high. During the part where the doctor injected the dye into my hip, I felt myself going low and thought I was going to pass out.

 

And then there was the minor hand surgery I had two and a half years ago where my sugar stayed low all morning until my mid-day surgery.

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These last few days have been mind boggling. I have no idea what is going on with my blood sugars. Mostly, I'm running high, although there are several lows thrown in there too. Most of them don't have any kind of reasoning to them at all. And I'm torn between being extremely frustrated that my progress is now out the window or being exhausted and just not caring anymore.

 

Last night, I enjoyed a sub sandwich and a diet Sprite. I started out at 140 but soared to a crazy 319 a few hours later. I know that I bolused fairly close to the carbs in my sandwich, so my only guess is that the Sprite wasn't so diet after all. So I bolused for the 319 expecting to come down in the morning. (By the way, I've eaten many a sub sandwich and never had this problem.)

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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