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February 10th, 2012
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The past weekend I spent 3 days at a Christian Camp in the mountains working at a retreat called Via de Cristo or Cursillo. Some you may have heard of it before. It is one of many 3 day movements around the world used to rekindle the fire of ones faith. My wife and I attended Via de Cristo, which is a co-ed non denominational version of Cursillo, a few years back and try to serve on the team at least once a year for new people going through the experience. (READ MORE)


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There's been a lot of ta-doo around here lately about hating - or loving diabetes.

 

I'm a hater.  In the twenty seven years I've lived with it, I have heard people say that they can't hate diabetes because it has given them so much, taught them so many lessons or because it's helped to make them the person they've become or because it's brought them some of their closest friendships, or simply because it's a part of them.  That's not my view. 

 

The lessons of patience and perserverance and balance that diabetes has taught me don't matter.   The many beautiful, kind, and wonderful people I've met because I have diabetes don't matter.  The parts of me that are stronger or more focused because of diabetes don't matter.  I would give up all of those lessons, those friendships, those parts of me to be free of this disease.  

 

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I don't expect everyone I've ever met to remember that I'm diabetic. There was a period that I barely told anyone about it, unless I was absolutely forced to. So how could they remember if they never knew?

 

I do expect my close friends, family and important people (i.e. my coworkers, my professors, etc) to remember that I'm diabetic. After all, most of them see the daily battle that diabetes is. How can you forget that?

 

But so often, my friends forget. Sometimes I feel like my own family forgets. They get involved in their own lives, their own problems and forget about this portion of my life. Yet, I can't excuse them.

 

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Last weekend I joined many other computer and radio hobbyists at the Trenton Computer Festival for two days of talks, workshops, and parts-vendors. While I was not on the program this year, I found a number of interesting presentations offered, and I spent much of the weekend attending talks. Two of the themes explored were security and privacy, and communicating with nontraditional devices wirelessly using Internet protocols.

 

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I woke up this morning thinking of a friend, Jennifer Stowers-Quintal. Jen was a promising teacher, artist, musician and dancer from the Boston area. The light of so many lives, including her amazing parents, her fiancé and her students at the Blackstone Elementary School in the South End of Boston, Jen passed away in 2003 at the age of 23 just 3 months after surviving the Station Nightclub Fire and 6 weeks before her planned wedding.

 

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As a young twenty-something, I'm very in tune with my inner Facebook(er). So I've noticed the trend of posting 25 random things about yourself, although I haven't quite given into it yet. However, I decided after this 25 random things post to create my own 25 random diabetes things.

 

So here's my 25 Random Things About My Life With Diabetes:

 

1. Diabetes is sometimes the best thing that's happened to me.


2. It's also often the worst.


3. I rarely follow any type of diabetes diet, although I'm sure it'd help my control.

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I don't often think about how much mental energy I put into tamping down the thoughts that run thru my head about Olivia and how her diabetes affects her. I do bury those feelings because it makes me sad and angry and worried and a whole host of other, not-so-pleasant feelings and I just can't walk around all day feeling that way - it's too draining. Instead, I concentrate on working with her, figuring out how to handle the myriad situations that crop up every day without dwelling on the ramifications of the disease too much. I'll let myself touch lightly on it daily, but wearing all those concerns on my sleeve would send me to the nut house. Every so often, though,something will burst that dam and I'll sit down and have a good old cry about it.  This morning was one of those days. 

 

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I am still in the allergy battle of the century.  Two ear infections in four weeks.  A cough.  A nose that literally hasn't stopped running for almost a month.   I think I'm finally seeing a light at the end of the tunnel, but it's been a long, hard road this year. 

 

Diabetes has been, at best, uncooperative.  At worst, a total nightmare.  

 

Between work and personal stress and being sick and unable to get to the gym, I've seen way too many high highs and a few low lows related to aggressive treament of high highs.  I have wished more than once in the past month for a normal, fully functional body.  

 

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"And their Egyptian taskmasters made their lives bitter with hard work..."

 

Upon our iniital diagnoses of diabetes, many of us turn bitter at the world. We are overwhelmed with the amount of work that goes into testing, logging, carb-counting, and adjusting our insulin or other diabetes medications. We may feel bitter about having to restrict or completely forswear our favorite foods, or bitter at the way our society may blame us for our diabetes (this is particularly true for people with type 1 diabetes, which has no known associated lifestyle factors).

 

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It's been a bit hectic this past week trying to get things in order before I start the new job tomorrow. I got my second laser resurfacing done on my face, I've been shopping for new clothes, and I've been trying to catch up on rest, cleaning, and general nonsense before entering adulthood once again.

 

I'm very excited to embark on this adventure. I feel assured that God is leading me to great places and CASA is the place that I'm going to feel like I'm not only empacting peoples' lives but I'm also being empacted by others. I am so ready to feel responsible for things again, to feel like I'm on top of things, and to feel like my life has value in the workforce.

 

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Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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