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How often do you worry about diabetes complications?

May 24th, 2012
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My daughter Maeve rode Izzy, a chestnut brown teenager. I followed closely behind on Summer, a horse with a slightly darker coat and a hankering for roadside grass.
Just to see what would happen, I foolishly made the little "click, click" sound with my tongue on the roof of my mouth and gave a slight kick to Summer's sides as they do in the movies. Amazingly, it worked. She responded with a trot. Not so amazingly, the trot seemingly chipped away at my ass bone – slamming me hard against the saddle with each excruciating gallop. (READ MORE)


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Dear Diabetes,

 

Lately you've given me some troubles. Pesky lows in the thirties. Drastic drops during the night despite adequate carb consumption. Bruises from my insulin injections. Packing on pounds between the lows and fear of lows. The list really goes on and on...like usual.

 

But lately, I've also been ignoring you. I'm in the throes of my senior year of college. With tests every week, research for papers, and all sorts of miscellaneous assignments. Not to mention that my future is looming large in my mind, with only about seven months left until I'm thrown fully into adulthood. So I've ignored you.

 

I've kept my testing to a minimum five times per day. Stopped freaking out at the sight of crazy numbers. Let my logbook get behind. Avoided eating exactly right or counting every last carb. I've just let you go by the wayside, drifting around the sea like a speck of sand.

(READ MORE)


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The problem with living with diabetes 24/7 is that you forget the details of the disease. It becomes like breathing or eating. You only remember the major moments...the great food you enjoyed or the time you got pulled under by a wave and struggled for the surface and air.

 

And that's exactly how diabetes is for me. After sixteen plus years of this disease, I can't remember the finger pricks or the insulin shots or any of the in between. It just zooms past my memory because I don't find a need to remember these minute issues (and my brain would constantly be on overload if I tried to remember 6+ finger pricks a day for the past sixteen years).

 

But today, I'm finding the need to remember these issues. Since I'm back on MDI's for the time being, I've been submerged into the life of insulin injections and many more finger checks. The ups and downs of diabetes are now important. The details are important.

(READ MORE)


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A man is not dead until he is forgotten. -- African proverb

 

Saturday night, the vice-president of our Friends of Faire group delivered a well-worded "toast to the immortal memory", in which he named Robert Burns "the Bard of Scotland"  in the way that Shakespeare is "the Bard of England" (not to mention most of the rest of the English-speaking world!). As our festivities were dedicated to a member who had recently and unexpectedly died, her life was also celebrated in this toast, and her passing, mourned.

 

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I don't expect everyone I've ever met to remember that I'm diabetic. There was a period that I barely told anyone about it, unless I was absolutely forced to. So how could they remember if they never knew?

 

I do expect my close friends, family and important people (i.e. my coworkers, my professors, etc) to remember that I'm diabetic. After all, most of them see the daily battle that diabetes is. How can you forget that?

 

But so often, my friends forget. Sometimes I feel like my own family forgets. They get involved in their own lives, their own problems and forget about this portion of my life. Yet, I can't excuse them.

 

(READ MORE)


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During our 504 meeting with the school staff, my wife and I mentioned that we'd like to read a short children's book to Charlie's classmates so that they could have a basic understanding of diabetes. Surely they would want to know why he was putting a blood sample into a strange device every couple of hours and why he was able to eat at times that they weren't.
The teacher and the principal thought it was a good idea, but the district official, who was there to make sure everything was kosher, suggested the principal have a look at the book before approving A Ruler, a Number 2 Pencil and Diabetes by Dr. Troy Apaches.
My initial thought was that this was strange. I mean it's a published children's book. What could possibly be offensive? Though, truth be told, it had been years since I read the book. I suppose I could have forgotten about some of the content. (READ MORE)


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Forgiveness is challenging.  Forgiving oneself, is nearly impossible at times. 

 

With all that's happening in my life at the moment, I've been less than diligent about my diabetes care.  Sure, I've been getting to the gym and for the most part maintaining healthy eating habits, but at the same time I've been drinking more frequently and I've been doing some forgetting. 

 

There have been days where work has consumed so much of my day that I've gone from 9:00 to 4:00 without a single test.  Or a single thing to eat.  Or enough water. 

 

(READ MORE)


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When it comes to diabetes, mistakes are a given.  They are going to happen.  Being human and having a chronic disease that can impact memory, mood, and cognitive aptitude make mistake-making a given.  But mistakes don't have to rule our existence.  They don't have to be the thing we focus on.  And when they are the thing we focus on, that often leads to more mistakes. 

 

So, rule #3: make your mistake, learn, forgive, let go, move on.  Good lord, is that difficult to do sometimes.  On Tuesday this week, I forgot to bolus for lunch.  It wasn't a big lunch and forgotten boluses don't happen that often, particularly now that I'm on injections.  Thing is, my ghost pump reminds me.  I eat or have an elevated sugar and I naturally go looking for my pump, when it's not there - it reminds me to give an injection. 

 

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Every day, I live my life with diabetes the same way. I test my blood sugar, I treat lows and I change infusion sets. It is a part of me. Sometimes, it is all of me. I get frustrated on a regular basis with the highs and lows or the way it interrupts my entire life from school to dating to sleep.
It amazes me though when I look back on all those days. It makes me smile. As frustrated as I get and all the tears I cry, I don't remember diabetes as my past. Surely, it's there. I just don't remember the daily parts of the disease. (READ MORE)


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I am bad!  And I am busy!  Those are the reasons I haven't kept up with D-blog week and why I'm going to try to catch up today...  Soooooo...  Ahem!

 

First, meet a friend(s). 

 

(READ MORE)


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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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