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How often do you worry about diabetes complications?

May 24th, 2012
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Today's DBlog Prompt: Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

 

Isn't it sad that this post is so much easier to write than yesterday's praise post? Of course, none of us are perfect when it comes to management (show me that person and I'll show you a person who's lying through their teeth). But we're also facing a lot of challenges that make perfection an unreachable goal. Life throws curve balls every day that diabetes thrives on and makes our efforts often futile.

 

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My daughter Maeve says that Extreme Makeover: Home Edition should come to our house.

 

"I mean look at this place, "she said, kicking the baseboard.

 

"The heat doesn’t work good."

 

"There’s a hole in the wall."

 

(Editor’s note: For the record, the hole in the wall she’s referring to is from a picture frame and is no bigger than a pupil in a guppy’s eye.)

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On Tuesday, Brian Bosh (@bosh) tweeted, "Do you (as a #diabetic) avoid publicly announcing extreme blood sugars for fear of discrimination regarding future coverage? #bgnow private."

 

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It had been more than a week since I had talked to Mom. This is nearly unheard of in our world, but it does occasionally happen. My busy life with three kids and their busy retirement life are the culprits.
So last night when Dad called to see if I knew about my brother's trip to Korea encountering problem after problem that eventually required him to come home to Missouri from Seattle, I was finally able to catch Mom up on what's going on in our lives.
"Did you know No. 2 has a double ear infection," I asked her.
"No, no didn't know that," she said.
"No. 3 is recovering nicely from her upper respiratory nastiness, but The Mr. is still battling a rough cough," I told her.
"OK, OK. And how are things going with the pump?" she wanted to know. (READ MORE)


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I knew that I hadn't checked my blood sugar in hours. Last time I did, I was 100 so I just didn't worry. I enjoyed a small dinner, judging my carbs to perfection. I carried on with my night.

 

Right before I fell asleep, I thought I should check my blood sugar just to be safe. I was feeling a little funny, minor thirst, minor nausea. I checked at 502. I haven't been above 500 in over a year.

 

I bolused like normal, wondering if my infusion set was the problem. I had changed it earlier, but I blew it off since I was 100 after lunch (and hours after the set change). I set an alarm to wake me up in two hours to make sure I was heading down.

 

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Yesterday, I discussed how I'd like diabetes healthcare providers and the healthcare industry to better use existing tests and technologies, and how I believe our current crop of devices and programs might be developed in the near-term future. Today I'm going to discuss items that will take a bit longer to develop and get through FDA approval, or which may take technological and medical breakthroughs to bring to fruition.

 

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I received my A1c results from my endo appointment today. They are not at all what I expected them to be. It was 9.3%, which is up from June's 9.1%. The frustrating part is that I expected it to be back in the 8s because the numbers and averages that I've seen are much lower than this summer. (Except for this week as I've been fighting with extreme spikes and random lows). I'm incredibly disappointed by 9.3, even though I realize that it could be much worse and it's a small change from June.

 

I'm just not the type of diabetic who handles 9% very well. As a child, I struggled with my numbers but rarely hit above 10%. I remember a 13% one time and nearly freaking out. At 23 (almost), I expect more even numbers and less variables. I expect to see some decline in my A1c, not spikes since I graduated college.

 

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To everything there is a level of precision, a degree of reliability, or a standard beyond which improvement is either unachievable, or requires huge investments of time and money well beyond the benefit of that improvement. Companies may refer to this point as "zero return on investment". Most of us just call it "good enough for jazz", "good enough for government work", or simply, "good enough".

 

It has been said that our ideal blood glucose levels "should" never vary outside the range of 80-126, ever -- but most of us don't have CGMs, none of us have glucose measurement technology with accuracy of greater than 5% (expanding that range out to 76-132) and even if we had them, we'd need infinitesimally-small amounts of ultra-fast acting insulin to keep it there every time it budged a point or two. For most of us, a two-hour postprandial reading of 140 is "good enough".

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There really just is no way to describe the way an extreme low feels. It was surreal, like I was outside of myself; like I was watching myself through a camera mounted on my head--that carnival ride-like feeling you get when you watch a video of someone, say, walking through the woods from their point of view; like part of me was asleep while the conscious part of me fought like mad to make things right.
I saw the 29 and while I almost immediately pulled the strip out of the meter, for just a second I thought the number was the code for the strips. I, obviously, wasn't thinking clearly.
"29," I said to The Mr. (READ MORE)


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It woke me up just before 2 a.m.

 

I was uncomfortable and confused; hot.

 

The Mr. was sleeping soundly next to me, but I didn't have the strength to shake him awake.

 

My heart was pounding like a cartoon character in love -- in and out of my chest.

 

I felt like I was hyperventilating.

 

Finally awake and aware of what was happening to me, I eyed my meter; it was just an arm's length away but felt so, so far.

 

I tried to reach for it, but my arms flopped around like the bones and muscles had been removed.

 

So tired. I just wanted to sleep. I felt like a coma.

 

The Mr. was still sleeping and I still didn't have the strength to shake him awake.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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