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How often do you worry about diabetes complications?

May 24th, 2012
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Ah! It's a new day and my fasting blood sugar comes in at a sweet 103 mg/dl. "Not too shabby," I think, maybe feeling a bit arrogant.
I go about the business of the day - exercise, hop in the shower, dry the hair, feed the cat - get in the car for work. Drive 30 of the 45 minutes it takes to get there.
And then I think - caught in a wave of abject panic, "Where is my pump?"
I do the pat down, you know the one. I pat with flat, frantic hands at my bra, my hip, my waistband. And I know then exactly where my pump is. On the shelf in the bathroom, pumping insulin into oblivion instead of into me.
"Man." I think. I also think. Alright, maybe I say aloud - a number of colorful words not suitable for a family website.
And I head back toward home, calling the office to let them know that I've been delayed. (READ MORE)


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I usually research every prescription I get (minus typical decongestants, cold medicine, antibiotics, etc) before I even think of filling them. I've never been one to trust that the doctor knows everything. Too many years of the doctor knowing just too little of everything. Plus a strong sense of taking care of my body in a more natural way...all leave me wary of conventional medicine.

 

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I'm in the process of updating my presentation on Connected Medical Devices for presentation at the Trenton Computer Festival on March 10th. (Slides and resources for the original presentation are available ACGNJ Presentations Page.) While examining the links, I found that the paper and slide deck for Jay Radcliffe's presentation on insulin pump security are no longer available online. I'm not completely surprised, and I remember some hullaballoo in that neither the presenter nor the pump manufacturer wished someone to make malicious use of that information. (If I recall correctly, the presenter had only "gone public" after the manufacturer dismissed his concerns.)

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So I’m the designated research information volunteer for the Mid-Jersey chapter of JDRF. But, “if I’m being perfectly honest,” as Simon Cowell would say, I haven’t done a very good job at it at all. I just haven’t had the time to sift through the many emails I receive regarding the many diabetes studies going on around the world that are funded by JDRF.

 

It’s strange. You’d think that the more clinical trials being conducted would make one more hopeful for a cure. Somehow it has an opposite effect on me. As the number of studies increase, I feel a sense of cynicism growing. Too many claims of progress. Too many potential cures.

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Back when I was in Junior High, I took a summer creative writing course at our local public library. One of the prompts the instructor gave us for developing a story was, "There are two types of people: those who like egg yolks, and those who do not." On the surface, it seems a ludicrous way to split up a population. But it's those egg yolks (and sticks of butter) that have been frustrating me, and that's giving me some insight into some of our fellow PWDs' daily frustrations. 

 

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Olivia told me the other day that she had a motor error on her pump. I didn't think much of it - she said it exited out automatically. The pump seemed to be delivering insulin ok - she had some highs and some lows, but no more than usual.

Tonight it did it again, so I called MiniMed. Turns out, I should have called the first time it happened because MiniMed doesn't like motor errors.

They are shipping her a new pump and it will be here on Monday morning, when, of course, I should be at preschool with the little girls. It's too bad I can't drop them off and come back, but with my luck, the UPS guy would show up while I was driving them to or fro.
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I guess I spoke too soon a few days ago when I declared my love of pumping, claiming it was so simple and my blood sugars were perfect.

 

While the machinery (and all the cool things it does) is still quite awesome, I forgot about good old human errors. Just a few hours after I posted about loving pumping, my blood sugar was high. Not terrible, 180, but still higher than my two hour goal of 120. I figured it was the meal--pepperoni bread made with whole wheat dough, which is essentially pizza--so I corrected and went along my business for the afternoon.

 

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Yesterday, I discussed how I'd like diabetes healthcare providers and the healthcare industry to better use existing tests and technologies, and how I believe our current crop of devices and programs might be developed in the near-term future. Today I'm going to discuss items that will take a bit longer to develop and get through FDA approval, or which may take technological and medical breakthroughs to bring to fruition.

 

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It’s been one of those days, the type of day where you just want to get some things off your chest (or mind). I wrote my last blog about television. I said some strong things; I got out some strong feelings. But they were heartfelt at the time, and looking back, I still feel strongly about what I said. TV sucks. It’s not natural. Their are a few things on occasion that are worth watching; sometimes you can catch something on that is educational or good for the soul. TV CAN be used as a good medium, or tool for our health. Sometimes, you see something you connect with or that gets you fired up, but in a good way. Tonight, for example, I watched a documentary on Netflix called, “Mario’s Story.”

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Now that spring has finally sprung, it's time for me to get my training into high gear for the June 13 Tour de Cure. While I haven't been completely off my bicycle, I've been a bit hesitant to ride for anything but necessity during the winter, and I've been avoiding the snow. As a result, my mileage has mostly been down from November through February, with few rides exceeding 15-20 miles or challenging me in any other way, shape, or form. While my mileage picked up a bit in March, I also had a lot of family issues that kept me out of town and/or off my wheels. Despite that, I managed to log 143 miles for March.

 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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