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How often do you worry about diabetes complications?

May 24th, 2012
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I should have known he'd ask about diabetes. Of course he would, I mean he's a rep for an insurance agency for Pete's sake. (Who is Pete, anyway?)

 

I'm on the hunt for short-term health insurance. My new job has a 90-day probation period, which means I don't get health benefits until Sept. 1. I'm currently covered under COBRA, but the premiums are nearly $900 a month for me and the kids. That really puts a dent in the wallet. And really all I need at this point is catastrophic coverage since I have enough pump supplies and meds to get me through and the kids have all had their well-child checks and are up to date on all their shots.

 

The rep had a few questions, he said, before he could get me a quote. I should have just hung up then because I knew he was going to ask about diabetes and I knew that would be the end of it. But I stuck through it, just in case.

 

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Health insurance seems like a big mystery to me.  Not for nothing, but employer to employer the employee contribution, access to services, co-payments, and deductibles vary so widely it seems that changing jobs - and therefore health insurance - is like moving to another planet.

 

 

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Since I missed this week's Diabetes Social Media Advocacy #dsma chat, I'm addressing this week's questions here. The topic was disclosure — who (and what institutions) do you let know you have diabetes, and who (or where) do you choose to keep in the dark.

 

1. To disclose or not disclose: do(es) your employer/school/friends know you have diabetes? Why or why not?

The company which employs me does not know that I have diabetes; several people at work (including my supervisors) do. There is neither place nor reason to mention diabetes (or any disability) on the job application — I believe it's actually illegal in the US to inquire before hiring — and since hiring/firing decisions are made at the store level, accommodations must be discussed and/or made at that level, rather than the corporate level.

 

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Additional considerations. Lately, they're making me crazy. Diabetes serves up a plate load of them. Every. Day.
The insulin pump at my hip - and how to keep it dry. The insulin that goes in the pump - and how to keep it cold. My hip-hopping bloodsugar - and how to make it sit somewhat still. The food I eat - and how to keep it from sending my bloodsugar levels soaring. And all the medicine and supplies - and how to pay for them all.
That last is a big deal. A really big deal. (READ MORE)


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When to tell?

 

I have accepted a new job. It's in a new city (half way across the country!!). It's with new people. New people who don't know that I have diabetes.

 

It was during my four-year tenure at my current job that I was diagnosed. I had no problem telling just about everyone in my very small office about diabetes. I already knew them and their personalities.

 

It's different now. I have a problem with going in to the boss on my first day and saying, "Hey, guess what..." I also have a problem with waiting three months until my benefits kick in, or even longer when someone sees me checking my sugar (or doesn't know what to do if I pass out) to say, "Oh, yeah, maybe I should have told you sooner."

 

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My job will be ending sometime this summer. Consequently, I am investigating our health insurance options. Since hubby is self-employed, we have always covered the family under my work policy.

 

Now, I know that "health care in this country is in crisis"!  I know this is a huge touchpoint for political candidates.  Yes, I know all this intellectually. 

 

Now it's PERSONAL.  COBRA, offered by my employer by federal mandate, is more than a house note EVERY month.  Private insurance is still pricey - more than what we paid on 2 car notes.  And it carries a $2000 deductible per person.  Some sloppy math later and it could be $15,000 a year before they pay any expenses for us.

 

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A topic came up on one of the diabetesteentalk forums which got me thinking. The topic was about how diabetics miss days from school or work because of doctor's appointments, seizures or ketones. There were alternating perspectives. Some chose to think that if you miss for diabetes related events, you should be excused or allowed time off without feeling guilty. Others chose to think that you have to suffer through at work or school and should not miss because of diabetes. After all, it is a self managed disease. (READ MORE)


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There is a lot going on today. A lot. I guess I'm not very happy, but I am trying my darndest to be. I am dealing with more emotions today than I can ever remember having. I have a lot of personal stuff happening and I have been trying to share as much of that with you all as I can. As you know, I am in the middle of a life changing experience with my career. Just last night I sent my resume, cover letter, and references off to what I hope to be my next, and potentially last employer. Also, so much is going on in the world with people suffering, hurting, and being sick. And last but not least, I wasn't able to train martial arts today, and instead I ate a freaking pizza.
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When The Mr. and I made our offical decision to move from mid-Missouri to Phoenix in 2008 I began searching hard for jobs in my field. It was challenging -- at least from my perspective -- to get employers to even consider me since I was not local.

 

There was one employer that I was really interested in and who was clearly interested in me because they arranged a conference call interview between three cities and more than three people. It was a position as a senior editor for a publications company. They created, edited and produced things like visitors guides for a number of cities. It, frankly, seemed like a cushy, right-up-my-alley job.

 

I was disappointed when they decided to go with someone who had more experience supervising. But they kept me in mind for freelance proofing jobs and I even convinced them pretty quickly to give me a shot at that.

 

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I really hate to say this, but I've got to start over again. Searching for a doctor, this is.
 

It started when I got my bill from Mayo for Dr. A's appointment. I nearly flipped when I saw the $400 tab. I seriously didn't think that out-of-network costs were that much. I was prepared to pay $100; maybe $200 max. It got worse when I got the bill for M1 and M2… another $400. This all came in the mail around the same time I got my notice for a follow up appointment with M1. I'm going to have to cancel.
 

I've learned two things recently that will hopefully help with this out-of-control billing. My employer has a health advocate, that, among other things, can help with fee negotiation. Add to that, out of network charges can be applied to my deductible. So, although I'll be in debt to Mayo indefinitely, hopefully the fees won't be so high.
 

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Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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