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February 10th, 2012
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It should be abundantly clear to everyone by now that, when it comes diabetes and congestive heart failure, I am definitely "out".  I mean, I write for two different blogs, and talk about it all the time, both online and off.  And that openness has been a hallmark of mine since I was diagnosed.

 

A question that quickly came to light when I started this journey focused on what would happen if I found myself in a situation where I couldn't speak for myself.  How would someone be able to find out that I had type 2 diabetes and CHF, and what to do for me, if I couldn't tell them?

 

The answer is quite simple: medical jewelry and emergency identification cards. 

 

I have two pieces of jewelry that I wear any time that I leave home; a dog tag necklace and a custom made bracelet.

 

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As a diabetic, I often feel like my life is an "Emergency Preparedness Commercial." You know the kind of commercials during hurricane season or right before huge winter storms? They tell everyone to have water, candles, nonperishable foods, a first aid kit, etc. That seems to be my life: constant preparedness. (READ MORE)


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"Do you see symptoms of low blood glucose? Shakiness, sweating or disorientation?"


"Well, sure, of course. My son has type 1 diabetes. I'm sorry, who are you again?"


"This is a free service from your insurance provider. We'll be calling occasionally to check in with you to see how things are going."


"Oh."


"How often do you see low blood sugars?"


"I'd say we see at least one low almost every day."


"Whoa! Every day???"


"Well it's a long day."


"Do you see elevated blood glucose levels?"


"Well, yeah. I did mention my son has diabetes, right?"


"Yes. How often do you see high blood glucose?"

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Well, it is official. The inhaled insulin Exubera is being pulled from the market by Pfizer. An ADA article reports that Pfizer took a $2.8 Billion hit to end its involvement with the sale of the drug. Doctoral and patient support, as well as profits, has been too dismal to warrant any kind of extended sale of what was seen as a breakthrough in diabetes management by many. (READ MORE)


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It has been three years, seven months, and fourteen days since I was first sitting on that powder keg in the emergency room. I sat with my parents as my blood sugar was checked for the first time and the diagnosis was made. As plain as day, the doctor said the string of words I had never known before that time, type-1 diabetes. (READ MORE)


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Admittedly, one of the reasons I chose my (old) primary care doctor is because she was just blocks away from my house. Also, she was so new to town that it was pretty easy to get a same-day appointment.

 

Her office is in a building with other doctor-types: a veterinarian, my dentist, etc. Since she was new to town, I basically looked the other way when it came to things like office decor. There were very basic chairs in the waiting room, very white walls, a piece of "art" that was too small for the wall. 

 

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Thursday evening was the awards dinner for two of the three New Jersey Tours de Cure (the third will take place in two weeks). Since The Other Half couldn't get off work, I had to go solo. I'm not completely uncomfortable going out without an escort, but I am rather shy about reaching out to meet other people. I need a hook -- a segue -- something to break the ice. I knew that there would be some folk I'd met before -- Taran (the Skylands Tour's coordinator) and a couple of the committee folk and riders. I also expected them to not have a lot of free/mingling time, or to be with other folk. The sit-down-dinner nature of this event in a way forced me to meet new people.

 

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Après moi, le déluge.

 

In Genesis Chapter 9, G-d commands Noach to build a watertight vessel and to stock it with all species of life known to man. Following this interchange, the earth was subjected to forty days and forty nights of rain, sufficient to wash all living things -- except for those ensconced in the ark -- from the earth.

 

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Every so often, the topic of emergency medical identification comes up on one or another diabetes-related forum. Most of us agree we should wear some form of identification in case -- Deities forbid -- we should get hit by a car, pass out in the middle of the supermarket, or suffer any of a myriad of Edward Gorey-esque mishaps when we are out solo, or with someone who is not familiar with our medical histories.This holds true whether we have have diabetes or not, whether we are caregivers for people with diabetes or other chronic illnesses, and even whether or not we are out with our parents, spouses, or adult children.

 

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The day that I moved out of my mom's house, my mom cried the entire way home from my new apartment. Not only was she losing her daily companion, but she was scared. All moms get scared when their kids move out, of course. But moms of diabetics have a completely different perspective.

 

She had seen me have two seizures before. She'd been there when I blacked out in the grocery store when moments earlier I was feeling fine. She'd driven me to the emergency room when I was sick, in fear of DKA. She'd watched me grow up with this disease, in the highs and lows, quite literally.

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
Our Other Bloggers: Brenda Bell, Nicole Purcell, Carey Potash, Lindsey Guerin, Michelle Kowalski, Megan, MikeDurbin, Robert Hudson, Scott Marvel, Kim Doty, Kerri Sparling,