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It was a birthday party on Saturday. My wife, kids, and I all trekked up to her Aunt's house for an afternoon of family fun.
I must tell you that I am very lucky because my wife's family is pretty cool. We always have a good time together and when we left this particular party my son made it a point to say, "I could stay there all night. I have a lot of fun with all of them." They really are great people. (READ MORE)

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This is World Diabetes Day, the first annual, and the international community is embracing its message by flying high the striking blue symbol of the disease. The message is about waking up the world to the growing impact of diabetes on our young and old- this year's theme focusing on children and adolescents. The innocent faces of the disease give a hammering reminder of what we are striving for, worldwide awareness, more scientific breakthroughs, and a much needed cure. (READ MORE)

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I have to be honest in that I had no clue that there was a Diabetes Alert Day until hearing about it over the weekend. So for 20 years (18 in which I actually had diabetes) the American Diabetes Association has made this a day to alert people about the risk of type 2 diabetes.
Now it all makes sense. It is about type 2 and I am a type 1.
I do recognize that the diabetes epidemic is truly a type 2 issue but all of us are affected and now people that type 2 diabetes affects. This day should matter and be on the minds of everyone. I will say that for many years, just hearing "type 2" instantly made me check out of the conversation. (READ MORE)

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Okay, I will warn you up front that this post is a total rant and has no other substance besides the fact that I need to let off some steam. I am also looking for some of you who have dealt with this annoying stereotype.
As I was minding my own business here at my desk the janitor comes up to me and asks me if I have to take shots everyday. I realize that he was listening to a conversation I was having with a co-worker about insulin and so on. A total eavesdropping moment right? So I answer, "nope." And totally leave it at that.
He says, "Oh you got off of insulin. That's good. Just a diet now or pills?"
"No I have an insulin pump."
"There is a gal in another office I clean that has to shoot up every day." Then he does it. He does this sort of motion with his right hand towards his left upturned arm. As if he is shooting up heroin or something right into his vein! (READ MORE)

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Type 1 isn't known as an adult disease. Until a few years ago, I didn't know anyone who called my diabetes Type 1 Diabetes. It was Juvenile Diabetes, Childhood Onset Diabetes... You get the gist. And when I was a child, I never thought about diabetes as something adults had in spite of the fact that I knew several Type 1 diabetic adults during my youth.
Anyhow, today, I was thinking, there should be some rules for being an adult with Type 1. Perhaps you'll think of some to add to the list I've come up with.
H is for How to be an adult with Type 1.
1. Test even though you're busy. Log even though you're busy. Bolus even though you're busy. Are you sensing a theme? As an adult, rule #1 is pay attention - even though you've got a lot of other things going on. It's a challenge, but diabetes needs to be a priority. (READ MORE)

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The other day I was at the playground with the two toddlers. One of the other mothers was asking me how Olivia was doing and asked about her diabetes.

"She's going to outgrow it, right?"

Me: (silence) Blink. Blink.

Me: Um, no. Her pancreas doesn't work. It doesn't make insulin. It's not going to start making it once she's an adult."

I was trying not to rip my hair out of my head, but inside I was thinking "Good grief, do people still actually think you can outgrow diabetes??! Still?? In this day and age?" The answer is, apparently, yes.

So I did my quick, 30-second spiel on type 1 diabetes, but started getting the glazed-eye look pretty quickly. Then she proceeded to tell me that she knew all about diabetes because everyone in her family has type 2. Ugh.
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Having diabetes has many challenges as we all know. Exercising, eating right, checking our blood glucose levels, taking medicines, seeing doctors regularly, and so many more that I cannot even think of. We are busy bees.
One thing I have found as a major challenge is not losing my cool with people who maybe don't understand this disease so I would like to clear up a few things.
1. Not all people with type 1 diabetes are thin.
I am on a weight loss program right now and frankly, the only time I have ever been thin in my life was the year or so before I was diagnosed and was losing weight like crazy.
2. Not all people with type 2 are overweight.
This one drives me nuts. It is true that weight loss can help your chances of not getting diabetes but there are other factors too. I think of my uncle who had lung cancer but never smoked a day in his life. Same sort of a thing.
3. People who take insulin are not out of control. (READ MORE)

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"They all look the same to me!"

 

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It occurred to us that Charlie doesn't get many requests for play dates from his classmates. It's not like he doesn't have friends. He gets along with everyone in his class. He's actually fairly popular. Still, the invitations to come over houses are scarce.

 

It makes us wonder if the parents think it would just be too difficult. Or maybe they just assume we could never just leave him somewhere without someone trained in diabetes care keeping an eye on him. Well, they wouldn't be wrong if they thought that. We want to let him do things without us hovering over him like low-gliding seagulls, but how can we? He doesn't test himself yet.

 

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