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February 10th, 2012
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In the last several weeks at work I've gotten two "Is that your phone?" comments about Dex, one "Is that your pager?" comment about Toohey and one "I think we just violated HIPPA" comment. Oh, and two very long, in-depth conversations about diabetes, pumps and continuous glucose monitors. It's interesting how much of this information had become visceral to me... I found myself explaining things I hadn't thought I would need to but realized that basic diabetes knowledge is not so common.

 

Actually, I take that back. Some people know enough about diabetes to be dangerous, but what they have no clue about is pumps and CGM. Which is fine. In fact, today I told a co-worker after a lengthy conversation about how the pump and the CGM work that I don’t mind talking about it. I clarified by saying as long as I wasn’t being judged and people who were asking questions were willing to accept that I am the expert.

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Last night my family and I went over to my cousin's house for dinner. Her dad, my uncle, was in town from Texas so we wanted to visit with him before he left. Our other cousin was there with her kids and we had a really lovely dinner. (READ MORE)


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From time to time, a heated discussion will erupt around the terms and phrases "prediabetes", "borderline diabetes", and "beating diabetes". The basic gist of the debate goes like this:

 

Someone will post that he was told he has "borderline diabetes" or "prediabetes", or that he had type 2 diabetes, but since he changed his diet, got off his diabetes medications, and has normal lab results, he has reversed or cured his diabetes.

 

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One of the more heated discussions going through the diabetes online community is whether or not type 1 diabetes should be renamed to avoid it being lumped in with the public perception of type 2 diabetes. "Don't blame me because my pancreas decided to crap out on me!" is the rallying call -- implying, rightly or wrongly, that type 2 diabetes is always caused by the person with diabetes, through a combination of poor diet choices and poor lifestyle choices. Many people with type 2 diabetes -- particularly the young, fit, and not-obese -- also take issue with that perception. 

 

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While working at my previous job as a volunteer coordinator for a hospice, I thought work was sometimes too much of a reminder about diabetes. There were meetings where we discussed patients who were dealing with complications after years of living with the disease. The most frightening discussions were those that dealt with diabetics living with Alzheimer's or dementia.

 

That was a big reason why I decided to transition into a different field. I didn't enjoy being 22 years old and facing the realities of what this disease may or may not look like for me in forty or fifty years. With a family history of Alzheimer's, I didn't want to think about the burden I would be on my family with both diseases. I didn't want to think what it would be like to entirely forget that you needed insulin every day.

 

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Every so often, a discussion will pop up about how to refer to those of us with glucose metabolism issues. Whether it's "diabetic versus person with diabetes", "borderline versus prediabetes", or even the whole "Type 1 / Type 2 / Type 1.5 / Gestational / Other" schema, these discussions run very deep to the core of our sense of identity... perhaps just as deeply as skin tone, religion, or ethnicity.

 

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I may write more about this on my personal blog - do check it out if you haven't already.
I have been wanting for a couple of weeks to write a post about a play I had the pleasure of taking in with my blogger friends Kerri, Julia, and Shannon. So, rather than write about the letter H, I'm going to write about Some Things Are Private . The play is showing at Trinity Repertory Company in Providence, RI, where I have the pleasure of being employed.
Live theater is a fantastic medium. What other opportunity do people have, in this day and age, to sit together in a room and watch a moment, a day, a lifetime unfold before their very eyes? I am fortunate to work for a theater that also offers the audience the opportunity to stay after the show and discuss and reflect upon what they've seen. The discussions are always interesting, funny, and thought-provoking. If you've never been and would like to go, leave me a comment, I can make it happen. (READ MORE)


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"How was the lesson?" The Mr. asked when No. 2 and I returned from her guitar lesson this afternoon.

 

"It was embarassing."

 

Last Christmas No. 2 got a guitar and we promised her lessons. Six months later we finally fulfilled that promise. I found a guitar teacher near us who taught out of his home. He had several jazz albums to his name and scores of good references on his web site.

 

I have had countless discussions with No. 2 about her behavior during her lessons. It's difficult to describe, but she just isn't herself. Her voice is different, she often talks too much, and doesn't play when the teacher very clearly wants her to. In fact, there are several times when he says "Go ahead and play that song" and she doesn't hop to it.

 

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The last blog I wrote was called, "Life Changing Events" and it got a lot of comments from a variety of different people. I really do appreciate the feedback I get from each of you. One of the reasons why I enjoy seeing your comments is it allows me to respond back to each of you and I think having the ability to interact and reach out to one another is key. Another reason why it is good to leave a comment is because other users, who are on this site, can see and respond back to your comments as well. This generates discussions and helps people share their feelings on different topics. This way, hopefully, little is overlooked when discussing an important or relevant issue to you.
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The Mr. and I had one of those discussions tonight. The kind where a lot of stuff was laid out on the table, things were gotten off chests, things were explained. Yep, it was one of those where we had both let the little things ball up and they had finally gotten to the boiling point.

 

One of the things we discussed was what I eat, how I bolus and why my blood sugar can be such a roller coaster sometimes. Not they why behind those things but The Mr.'s lack of understanding of how diabetes works. The simple answer, at least for someone who understands diabetes, is that this is the nature of type 1 diabetes. It just is what it is and sometimes it's unpredictable.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
Our Other Bloggers: Brenda Bell, Nicole Purcell, Carey Potash, Lindsey Guerin, Megan, MikeDurbin, Robert Hudson, Julia, Scott Marvel, Kim Doty, Kerri Sparling,