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Charlie begins first grade tomorrow. He will have two health aides. One in the morning and another in the afternoon. Neither aide has seen a pump and I'm pretty certain, they've never tested someone's blood sugar. So ...

Susanne will take the first shift, stalking with binoculars from an old, abandoned house across from the elementary school in army fatigues.

As for me, I'm going undercover - enrolling in Charlie's class as a transfer student from Ghana.

We do feel fortunate that the school has decided to provide health aides, but we just hope that they can slip somewhat into the background. We're also very much aware that this sort of special arrangement could be socially detrimental for Charlie if we were to continue beyond first grade.  For now, however, it gives us a little peace of mind and it buys us time for Charlie to learn how to test himself, and bolus himself, etc.

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To say we hit it out of the park with Charlie's new health aide would be an understatement. I was totally wrong. She does have experience testing blood sugar and she has seen a pump. Turns out she has type 2 diabetes!  Go diabetes!

We hit a hole in one. We knocked the cover off the ball. We laid down a full house. Scored a touchdown. Sorry. Been watching too much coverage of the National Conventions. I can't stop with the sports analogies. But seriously, folks, we really slogged a dibbly dobbly (a little somethin' for the cricket lovers).

What perfect timing. The aide is calling us as I sit here writing this. Let's listen in ...

(hushed chanting while Susanne talks to the aide) "We're number 1! We're number 1! We're numb ..."

Wait what? Can we rewind that?

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Well, we did it. Charlie got through kindergarten pretty much unscathed. Last year at this time we were nervous wrecks about sending Charlie to school. The school had no experience with a child with diabetes as young as Charlie. They were noticeably nervous as well. We put a plan in place and basically just hoped for the best.

We couldn't be happier with how the school year went.

Susanne and I met yesterday with the principal, the new nurse, Charlie's teacher, Charlie's health aide (Mrs. D) and a representative of the school district to review how the year went and to revise our 504 plan to reflect the fact that EVERYTHING WILL CHANGE!!!!!!!!!!!!! next year.

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In February and March we sought the guidance of diabetes author and coach Gary Scheiner to see if we too could "Think Like a Pancreas." Our few meetings energized us briefly, but soon enough, we were back to feeling lost and utterly confused. After about five months, the pump wasn't working out as we hoped it would.
In April we decided to throw out all carb ratios and basal levels and begin with a clean slate, following more pump frustrations and a disappointing A1c of 9.6. We felt we hit rock bottom. We worked daily with the pump educator, tweaking and tweaking and tweaking and scratching our heads until we could tweak and scratch no more. (READ MORE)

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Whether Charlie is walking from his classroom to art class or sitting at an assembly or standing in a badly formed line for a fire drill, he's always being followed. Mrs. D is never more than a few feet away, her eyes locked upon him.
Even photos of Charlie from the kindergarten Halloween parade capture Mrs. D in the background, dressed like a bumblebee, grasping Charlie's black rocket-designed diabetes bag in her left hand. (READ MORE)

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What the hell just happened?

 

Remember me blabbing away about being so fortunate and grateful to the school for providing classroom aides for Charlie? Aides, who would blend into the background and seamlessly check Charlie's blood sugar, count out carbs and give him insulin? Remember how Susanne spent the first day of school training the aides in how to use the pump? Remember how we met with the school officials and how they all signed off on the 504 plan? Remember how it was the school's idea in the first place to hire these aides for the very purpose of testing blood sugar and administrating insulin?

Well, forget all that.

Oh, and remember the morning aide who has type 2 diabetes? She has really been working out great.

She's leaving. Found another job apparently. Leaving the glamorous life of pricking fingers and counting crackers.

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Let's recap the month of May. It sucked bigtime!

 

Interestingly, some other parents of children with diabetes also noticed May to be particularly rough on blood sugars.

 

At first I was wondering if it had something to do with the lunar calendar or the phases of the moon or some nonsense like that. If many are diagnosed with diabetes in the month of November (which my extensive studies have shown), then maybe something cosmic occurs six months after month of diagnosis, which would be May.

 

Or maybe I gotta lay off the White Lightening.

 

The school nurse had a more reasonable theory.

 

"I wonder if it's the pollen," she said.

 

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Ah, the first day of school.

 

 

 

 

 

 

 

 

 

 

Now that school is starting back again, it occurred to me that I hardly mentioned the last school year. I suppose that's a good thing. Couldn't have been all that bad if I didn't blog about it.

 

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