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May 26th, 2012
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Where to even start...?

 

And that is the point, you don't know where.

 

When someone is newly diagnosed with diabetes, where should their educational journey begin? Sure, there is the inevitable hospital stay, and the chat with a doctor, and possibly a self-injection tutorial (for the insulin requiring crowd), but what is the next step... after the hospital scene?

 

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If you spend any time around the diabetes social media advocacy (#dsma) community on Twitter, you will see references to #unicorns in general, and "glitter-farting unicorns" (GFUs) in particular. The unicorns seem to have sprung fully-grown from Kerri's vision of cockeyed optimism, and it is said that their flatus can cure even the most stubborn case of type 1 diabetes.

 

Obviously, GFUs are part of the Diabetes Online Communitiy's myth and legend, and may even be responsible for Halle Berry's miraculous "recovery" (come on, can't you see her dressed in a skinsuit and narwhal-horn-shaped headdress?) Their pull is powerful, and talismanic unicorn mascots have been popping up all over the DOC.

 

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Earlier this week I posted about how diabetes can get in the way of life. There are many times when you want to put your disease on the back burner.

 

So often we have to stop what we are doing to check our blood or count carbs. We have to draw up syringes with the right amount of insulin. We have a lot to do and it can get in the way especially when we are in a hurry.

 

But have you ever had a moment when you realized your disease has seeped into the lives of others?

 

We went to dinner the other night. It was my wife, son, daughter, and her friend. We typically have someone over at our house hanging out playing on the Wii, watching movies, or even board games. Our home is a happening place.

 

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One underlying theme of diabetes blogs and complaints is the difference of our daily routines from those of people who have never known a blood glucose test, never chosen foods based on specific ingredients or an organization's endorsement, never had to dress in a manner different from those around them, and never had to follow a ritual not of the mainstream. Yet we see, meet with, and talk to people who do this on a daily basis, who could never think of not doing this (or who would never consider it)... who do not have diabetes, nor are they housemates of people with diabetes. (READ MORE)


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Yesterday was just a crappy day in general. I think my brain was just working overtime which is never good for me. I try to keep the depression that comes with having diabetes at bay but sometimes it is overwhelming. Sometimes it seems nothing will get me out of it.
I have found the best way for me to get this junk out is to get it out literally literally! I write my blog here at dLife and my personal blog. I share the good times and bad. So many times I have thought, "no one wants to hear about my cruddy day" but whenever I have, someone else has commented on how they too feel that way now and then. (READ MORE)


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I joined Tu Diabetes recently.
If you feel like your page is being spied on by a guy sitting on a bench across the street in a grey overcoat and a newspaper with two holes cut out for eyes , well, it has. It's me.
I've been snooping around in the parents of kids with type 1 group, ogling your A1cs.
I've spotted some very nice ones.
Seeing such a selection gets me in that envious, wanting mode - the way I get when let loose in a good record store.
"Whoa! 6.8! That's rare. I don't have this one."
"Wow, 7.2! I don't have this either. I thought they broke up?"
"Ooh, a 7.0 live in UK bootleg. I have to get this!"
"This 7.4 is also pretty cool. I only have their 8.7 and their 8.9."
But these desirable A1cs must be returned to the shelves. (READ MORE)


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I'll admit I've never seen Buckaroo Banzai; however, the catch phrase "Wherever you go, there you are" has become as much a part of our popular culture as "Beam me up, Scotty" or "Time to make the donuts!" Yet, with about one in eleven US residents having -- or being at risk for developing -- diabetes, it's no wonder that almost every time we turn around, we meet (or learn about) somebody else "with the D".

 

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As an informed person with diabetes and an active member of several online diabetes communities, it's important for me to "get out into the real world" and make connections with other people with diabetes and with people and associations whose purpose is to support us medically, psychologically, and socially. In addition to real-life meet-ups with members of my various diabetes online networks, I go to health fairs and community events to make contact, inquire about the state of diabetes-care support and diabetes advocacy programs, and have even given a presentation about how diabetes online communities positively effect the lives and health levels of people living with all types of diabetes. 

 

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A bell's not a bell 'til you ring it... -- Oscar Hammerstein II

 

Much like the opening lines of the "Sixteen Going on Seventeen" reprise (1), knowledge -- like love: doesn't exist "'til you give it away." Data become knowledge when they are shared, analyzed, verified. Or like money in Hello, Dolly!, knowledge "is like manure -- it doesn't do good unless you spread it around, encouraging young things to grow."

 

While sharing everything you know may, perversely, show up everything you don't know, knowing what you don't know gives you the option to learn it. Of course, there will be someone who will take that opportunity to say that it's your posterior, not your cranium, that has the intelligence,(2) but y'know what? That's just him (or her) sharing his (or her) lack of knowledge.

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Every year, the "blue versus red" argument comes up as diabetes bloggers and patient advocates discuss the relative merits of the American Diabetes Association, the Juvenile Diabetes Research Foundation, the Diabetes Research Institute, the International Diabetes Foundation, and World Diabetes Day. This week, however, the color of diabetes is pink.

 

Diabetes UK pink.

 

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Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
Our Other Bloggers: Carey Potash, Lindsey Guerin, Michelle Kowalski, MikeDurbin, Megan, Robert Hudson, Julia, George Simmons, Scott Marvel, Kim Doty, Kerri Sparling,