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November 20th, 2008
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Last week when I emailed my human resources rep about how to interpret the information I got from customer service about what is covered in regard to an insulin pump, the last thing I expected to hear was that as of Jan. 1 we'd have a new insurance company.
I really didn't think much of the insurance switch at the time. In fact, I never really have had such a vested interest in my insurance company until now. The biggest obstacle I saw when S. told me of the switch was that I might not get the same deal on an insulin pump as the customer service guy told me I could get. (READ MORE)


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Last week when I emailed my human resources rep about how to interpret the information I got from customer service about what is covered in regard to an insulin pump, the last thing I expected to hear was that as of Jan. 1 we'd have a new insurance company.
I really didn't think much of the insurance switch at the time. In fact, I never really have had such a vested interest in my insurance company until now. The biggest obstacle I saw when S. told me of the switch was that I might not get the same deal on an insulin pump as the customer service guy told me I could get. (READ MORE)


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I'm writing two posts today because I am so incredibly frustrated I really need an outlet. I am about to start throwing things through the wall (which I really don't think my neighbors would appreciate). Particularly, I'm going to throw my stupid pump through the wall (I know they really won't appreciate that!). I have been having a lot of trouble with it since day one. The worst part is that I am having so much trouble with the company and getting help. (READ MORE)


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Tidbit number one: I almost deleted the message because it sounded like a salesman. We get those calls sometimes--you know, people who leave messages for products or services. I really wonder if they really think they'll get calls back. Anyway, so it actually was a salesman and I still almost deleted it, but then I heard the keywords: Dr. C asked me to give you a call. Then I realized he said he was from Medtronic. So the three "I really hope you're having a good day" comments were part of his sales pitch. Ugh. This is how it starts. I hate being sold to. I mean, if you mask it well, then I guess I'm OK with it, but if you're going to sell me something and you're going to kiss my ass the whole time then I, frankly, don't want to hear it. I'm seriously thinking about telling him upfront, "Dude, don't talk to me like a customer. Talk to me like you're trying to convince your brother to buy your brand of pump. (READ MORE)


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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
(READ MORE)


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Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
(READ MORE)


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Both of my doctors, my endocrinologist and the doctor in charge of my bio-identical treatment, have sent disability status letters for me. It actually took very little effort, despite the initial feedback from the nurses in the beginning. I'm happy to get these out of the way and go forward with the process. I'll also be writing my own letter to support my case with a personal note.

 

(READ MORE)


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There was the researching, and the chats with the doc,. There was the mental tug-o-war between my daily injection comfort zone and my need for more flexibility, and now, like the quickness of a self-inserting cannula, I am pumping insulin by way of the OmniPod. (READ MORE)


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It was mid-afternoon as I strolled into the local pharmacy. I needed more Novolog insulin pens and today's trip would prove itself as unsmooth as usual. The diabetic smack in the face did not come for me, however, but for the slightly unsorted diabetic fellow ahead of me.
This day's pharmaceutical quest was not stunted by the feared insurance decline, or the "too early" for a refill drama. Not even the "out of stock" song from the pharmacy tech, or wrong sized needles being slid over the counter. It was simply an, "I'm sorry, I can't help you" interaction.
Unsorted Diabetic: What do you mean I can't refill my syringes here?
Pharmacy Tech: I'm sorry. I have no record of you as an approved customer.
Unsorted Diabetic: I don't usually get my refills here. I was just in the area.
Pharmacy Tech: Some muffled explanation and seemingly helpful recourse. (READ MORE)


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I found a recent article disturbing. A large drugmaker estimates that three diabetes drugs in the pipeline have the potential to bring in sales of $3 billion in the next few years.
I could have looked at the upside of this. These are drugs that could improve the quality of life and health of many people living with diabetes.
I could have.
But what I see in this article is a positive report on the financials of a company getting a little richer every time another person gets diagnosed. News that panders to its shareholders and seems just a bit too pleased about having so many people with diabetes to treat. I see my son as a client in the business of diabetes. He's their demographic; he's the customer.
"You're talking peak sales in the multiple billions for all three drugs, if they succeed," an analyst from Miller Tabak & Co. said. (READ MORE)


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Andy Bell
Andy Bell has lived with diabetes since the age of 14. He controls his type 1 diabetes by taking multiple daily injections. Andy is 28 years old now and despite his diabetes, still maintains a very active lifestyle. Andy works for the Juvenile Diabetes Research Foundation (JDRF) in the National Outreach Department. (Read More)

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