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November 21st, 2009
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When I tell my "real-life" friends stories about my friends from the Diabetes Online Community (DOC), I'm often told that my stories make these people sound real.
"Well," I say, "They are real. In many ways more real than some people I've met face to face."
I usually get the look then. The one that says: Nicole has been spending too much time online. Nicole's friends all live in the box.
That's the furthest thing from the truth. I mean - really - who can spend too much time online? And my friends don't live in the box, they just talk to me through it. Right?
I'm getting to the point. Patience. (READ MORE)


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Yesterday was just a crappy day in general. I think my brain was just working overtime which is never good for me. I try to keep the depression that comes with having diabetes at bay but sometimes it is overwhelming. Sometimes it seems nothing will get me out of it.
I have found the best way for me to get this junk out is to get it out literally literally! I write my blog here at dLife and my personal blog. I share the good times and bad. So many times I have thought, "no one wants to hear about my cruddy day" but whenever I have, someone else has commented on how they too feel that way now and then. (READ MORE)


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First of all, I would like to give a huge thank you to everyone who offered to send test strips and insulin to Olivia.  The support that the diabetes community gives is just amazing to me sometimes and I find myself overwhelmed and a bit teary-eyed at all the kindness.  Heidi, over at The D-Log Cabin sent us some Novolog and Scott sent a box full of test strips.  I also bought the Reli-On meter and strips at Wal-Mart and so far, we've had no issues with them.  I think we're going to be OK for now.  We get health insurance in another 60 days and I have an application in for MassHealth - if Olivia is approved for that, she'll be able to continue going to Joslin.  If she's not approved, well, we'll have to switch endo groups - unless I can convince the insurance comapny to allow her to keep going, something I'm told they never do.  But I'll try. I'm a persistent pain in the arse when I need to be.

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For a number of years, I was the only diabetic I knew. Diagnosed when I was a little kid, there wasn't an army of advocates knocking down the doors of my school. As far as I knew, the only meter in my elementary school was mine. In my high school, there were two meters: mine and the one belonging to a classmate's older sister. No one else I knew was taking a fingerstick before having the orange slices at soccer practice, or before tap dance lessons.
My first taste of a diabetes community came one summer at camp. Growing up in New England, I had access to one of the best diabetes camps in the country - Clara Barton Camp. I spent six summers at CBC, giggling with my fellow campers, singing my lungs out at the nightly campfire meetings, and making friends. (READ MORE)


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With Carey and George writing about music that moves their diabetes lives, I wanted to add my two cents on this one.

 



For years now, the song Fitzcarraldo by The Frames has reminded me of the diabetes community and our lives with diabetes. The song Fitzcarraldo is based on a movie from 1982 about a man, Brian Fitzgerald, so enchanted with opera and the singer Enrico Caruso that he takes it upon himself to build an opera house right where he lives.

 



In the middle of the Peruvian jungle.

 

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What did I do before the internet?

 

I used to buy the newspaper to find out what movies were showing at the theater. I would call all my friends at least once a week to see what was going on. I would have to watch the news to see what the weather was going to be like the next day. I would read the TV guide to see what TV shows were going to be on.

 

So much has changed.

 

Before the internet I had no relationships with any people with diabetes. I knew a few type 2’s but never felt like they understood what I was going through and they were always much older then I was so I felt awkward.

 

So now that I use the internet all day long, I have no clue how I lived without it.

 

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ADM - American Diabetes Month Whether or not we recognize it explicitly, we are all caregivers (aka, T3s). Whether we serve a family member, someone in our neighborhood or church, or just others on the dLife forums and in the dLife community, we are each part of someone else's diabetes support team.

 

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Have you had a chance to catch up with your favorite Blogabetes bloggers? Here's another edition of "In Case You Missed It."
Don't miss Andy Bell's poignant and honest "I'll Have a #3 With a Side of I Don't Care." He writes about life revolving around food, which is an issue all PWD's can relate to on some level.
Nicole Purcell hits us up with another gorgeous and introspective piece on the effects of the diabetes online community with "Community." A must-read. (READ MORE)


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When you see the check-mark-y swoosh, you think Nike, right? An apple gets you the computer company, golden arches make you think of cheesburgers, a peacock will have you thinking Must See TV, a red cross... you get the picture.

 

And when it comes to health there are several very recognizable symbols of support, perhaps the most popular is the pink ribbon for breast cancer. I was doing some research today on breast cancer and realized that the pink ribbon is quite possibly the only symbol synonymous with only one health condition. Even the red ribbon went from AIDS to a host of other causes.

 

You see a pink ribbon you instantly think breast cancer; you see a red, green or yellow ribbon and you have to do some thinking or asking. While many diabetes organizations and associations have their own symbols, there is not one that is universal for diabetes.

 

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People with diabetes, and those touched by diabetes, follow their journey with the disease through a myriad of winding emotional paths. Depression is very common for those newly diagnosed, sadness can rear its head at different stages in the game, and a little humor and humility can even find the door to expose itself from time to time. The keys for controlling those doors are littered all over the place and on  Wrld Diabetes Day today, you can follow this map of internet hotspots. Expose diabetes for all that it is, good and bad, and then share it with others. Find an emotion and embrace it!

 

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Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
Our Other Bloggers: Brenda Bell, Carey Potash, Michelle Kowalski, George Simmons, Nicole Purcell, Kim Doty, Kerri Sparling, Julia,