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When I tell my "real-life" friends stories about my friends from the
Diabetes Online Community (DOC), I'm often told that my stories make these people sound real.
"Well," I say, "They are real. In many ways more real than some people I've met face to face."
I usually get the look then. The one that says:
Nicole has been spending too much time online. Nicole's friends all live in the box.
That's the furthest thing from the truth. I mean - really - who can spend too much time online? And my friends don't live in the box, they just talk to me through it. Right?
I'm getting to the point. Patience.
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Yesterday was just a crappy day in general. I think my brain was just working overtime which is never good for me. I try to keep the
depression that comes with having diabetes at bay but sometimes it is overwhelming. Sometimes it seems nothing will get me out of it.
I have found the best way for me to get this junk out is to get it out literally literally! I write my blog here at dLife and
my personal blog. I share the good times and bad. So many times I have thought, "no one wants to hear about my cruddy day" but whenever I have, someone else has commented on how they too feel that way now and then.
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For a number of years, I was the only diabetic I knew. Diagnosed when I was a little kid, there wasn't an army of advocates knocking down the doors of my school. As far as I knew, the only meter in my elementary school was mine. In my high school, there were two meters: mine and the one belonging to a classmate's older sister. No one else I knew was taking a fingerstick before having the orange slices at soccer practice, or before tap dance lessons.
My first taste of a diabetes community came one summer at camp. Growing up in New England, I had access to one of the best diabetes camps in the country - Clara Barton Camp. I spent six summers at CBC, giggling with my fellow campers, singing my lungs out at the nightly campfire meetings, and making friends.
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Have you had a chance to catch up with your favorite Blogabetes bloggers? Here's another edition of "In Case You Missed It."
Don't miss Andy Bell's poignant and honest "
I'll Have a #3 With a Side of I Don't Care." He writes about life revolving around food, which is an issue all PWD's can relate to on some level.
Nicole Purcell hits us up with another gorgeous and introspective piece on the effects of the diabetes online community with "
Community." A must-read.
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When you see the check-mark-y swoosh, you think Nike, right? An apple gets you the computer company, golden arches make you think of cheesburgers, a peacock will have you thinking Must See TV, a red cross... you get the picture.
And when it comes to health there are several very recognizable symbols of support, perhaps the most popular is the pink ribbon for breast cancer. I was doing some research today on breast cancer and realized that the pink ribbon is quite possibly the only symbol synonymous with only one health condition. Even the red ribbon went from AIDS to a host of other causes.
You see a pink ribbon you instantly think breast cancer; you see a red, green or yellow ribbon and you have to do some thinking or asking. While many diabetes organizations and associations have their own symbols, there is not one that is universal for diabetes.
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Long before I discovered the
diabetes online community or even knew what exactly a blog was, my mother introduced us to her neighbor's granddaughter.
She wore something called a pump and her parents used frightening foreign words like
bolus and
basal.
We were still very much shell-shocked from Charlie's diagnosis. Measuring out units of insulin into a syringe and learning to count carbs was scary enough. What they were talking about was , was , quantum mechanics. It made us very nervous. We weren't the sharpest tools to begin with. We might not be smart enough for diabetes, we thought.
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People with diabetes, and those touched by diabetes, follow their journey with the disease through a myriad of winding emotional paths. Depression is very common for those newly diagnosed, sadness can rear its head at different stages in the game, and a little humor and humility can even find the door to expose itself from time to time. The keys for controlling those doors are littered all over the place and on
W
rld Diabetes Day today, you can follow this map of internet hotspots. Expose diabetes for all that it is, good and bad, and then share it with others. Find an emotion and embrace it!
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I was diagnosed with type 1 diabetes twenty-five years ago. Twenty-five years is a long time to live with something. It is an especially long time to live with something that requires tight control. Twenty-five years is enough time to have seen lots of bad days, lots of good days, and lots and lots of in betweens. And it is enough time for me to have had the good fortune of seeing vast improvements in access to information and treatment, developments and improvements in technology and even some improvements in (GASP!) what health insurers are willing to cover.
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This is all over the diabetes online community and may have already been posted about on here, but I'm going to chime in with my 2 cents.
Have you heard? Halle Berry has managed to
cure herself of type 1 diabetes and has beaten it down to type 2 and doesn't need insulin any more.
Isn't that a neat trick?
Perez Hilton even has something on it. You know the diabetes online community is really up in arms if it's being reported on
Perez Hilton!
It's been talked almost to death, but I don't understand what Halle Berry's problem is with having diabetes. If she has type 1, is she ashamed of that? If it's type 2, shouldn't she be out there saying "Look! It's not a fat disease! Thin people who eat well and exercise a lot can also get type 2!
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This past Saturday me and 14 others walked to raise money to fight diabetes. It was the
American Diabetes Associations "Step Out to Fight Diabetes" walk. I posted about this a few weeks ago but at that time, only my wife and I had signed up.
To have so many people walk, friends and family alike, was just awesome. I felt so supported, so loved and cared about.
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