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February 10th, 2012
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When I heard about the clinical trials that are beginning for a possible cure for type 1 diabetes, I was really excited! I can't imagine not having this disease to lug around anymore but I am willing to give it a shot that is for sure! I would imagine most people with diabetes would.
No more finger sticks and insulin shots. All the calculating of carbohydrates and insulin on board would be gone. No glucose tabs to carry or a medical ID necklace to wear. I can't imagine it but I welcome it. (READ MORE)


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I received the normal JDRF research newsletter the other day. As usual, I perused the updates on diabetes. There was a large article on the new stem cell legislation movement, but I quickly passed over it. But two articles did catch my eye.

 

One was regarding "Insulin Fragment" Therapy, which I hadn't heard about before this newsletter. A study from the UK showed that "proinsulin peptide" therapy could seemingly restore the immune system without any adverse side effects (like the immunotherapy treatments for pancreas and cell transplants). More research had to be done, but it was still an important milestone.

 

The other article had to do with protein regeneration for adult beta cells. It was a snippet of an article regarding the prospect of regeneration and replication of beta cells for type 1s. All it did was leave hope. Hope for regrowth. Hope for a life without diabetes.

 

(READ MORE)


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I like to stay on the pulse of diabetes-related news. I want to know the results of the latest clinical trials taking place and I'm interested in learning about the newest technologies. If oxygen or polyester or garden gnomes are now harmful to diabetics, I'd like to be the first to know.

 

I also have two other children without diabetes and I'd like to keep it that way. So, I seek guidance in the many diabetes headlines that are published each day. Let's take a peek at this week's breaking diabetes news headlines.

 

SPRINTS MAY BE BEST FOR DIABETES PREVENTION – Reuters

 

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So I’m the designated research information volunteer for the Mid-Jersey chapter of JDRF. But, “if I’m being perfectly honest,” as Simon Cowell would say, I haven’t done a very good job at it at all. I just haven’t had the time to sift through the many emails I receive regarding the many diabetes studies going on around the world that are funded by JDRF.

 

It’s strange. You’d think that the more clinical trials being conducted would make one more hopeful for a cure. Somehow it has an opposite effect on me. As the number of studies increase, I feel a sense of cynicism growing. Too many claims of progress. Too many potential cures.

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In October of 2007 we broke up with Charlie's endocrinology team.  We and St. Christopher's were together for four years. It felt as if the relationship had run its course - as if they had nothing more to offer us.

 

We stuffed our Elton John CDs, our Ficus plant and our boy with diabetes into a big box and headed 8 miles southwest - to the bright and fancy lights of Children's Hospital.

 

We were enticed by Children Hospital's high-tech A1c thingamabob and their impressive diabetes team staff. I remember staring wide-eyed at the many names on the website and their important-sounding specialties.

 

"Ooh! Congenital hyperinsulinism."

 

I was giddy.

 

"Susanne! They have their own team of pump experts!"

 

(READ MORE)


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Is there really any point in telling old classmates and acquaintances who friend me on Facebook about Charlie's diabetes? "Friends" that I haven't spoken to in over 15 years and won't again for another 20?

 

Holy crap! Stacey Winter! Been a long time. Five kids! Wow, congrats! So cute! My son has diabetes. How are you?

 

No, that's no good.

 

John Haust! No way! How crazy is Facebook? I see you still have a mullet. Nice! Did you hear about Stacey Winter? Seven kids! Insane! My 7-year-old son's pancreas is broken so we need to prick him with needles all day and count his Cheerios. How are you?

 

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Not long after I wrote this post about a news story that called bariatric surgery a "cure" for type 2 diabetes, a friend of mine emailed to ask about one of the comments. A reader suggested that there will never be a cure for diabetes because the disease is a money maker.
I explained to my friend that the multi-billion-dollar industry makes a profit in so many areas: test strips, meters, oral drugs, insulin, pumps, syringes, even accessories. What motivation is there, I asked her, for the world to come up with a cure and put all those good people out of work.
I may be naive and woefully open minded, but I am not a pessimist; I believe there are good doctors and researchers out there who are not motivated by money. (READ MORE)


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It's been a bit busy this week, leaving me somewhat late on reporting back on Saturday's d-group meeting to see Breakthrough: The Dramatic Story of the Discovery of Insulin, a special exhibit showing at the New York Historical Society. Since I had to work Sunday, this ended up as the total of my World Diabetes Day celebrations this year.

 

 

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This morning was the first in the roughly two weeks that we've been in our new house that I actually had time to sit down at the kitchen table to eat a bowl of oatmeal instead of quickly slapping some cream cheese on a bagel and scarfing it down in the car during my one-hour commute. Let me tell you, bolusing while driving is not easy.


 

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Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Our Other Bloggers: Brenda Bell, Nicole Purcell, Carey Potash, Lindsey Guerin, Michelle Kowalski, Megan, MikeDurbin, Robert Hudson, George Simmons, Kim Doty, Kerri Sparling,