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November 22nd, 2008
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I have to take issue with something my new, wonderful treatment team seems to think. Dr. A said, "It really doesn't matter what type of diabetes you have as long as you have an effective treatment method." While I mostly agree with him, I have to say that a lot of people with diabetes want the distinction; we want to know the label. Because even though the treatment method may be the same, it’s still different.

 

Despite me rattling off a list of drugs meant for people with Type 2 that I tried and that didn't work, and telling him my c-peptide result (<0.1), Dr. A still said, "I think you are Type 2."

 

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After fighting lows on Glyburide last week, my doctor suggested trying just diet and exercise again. I thought he was crazy, it hasn't worked the last two times that I tried it, so why should it work this time. He gave it 80-percent odds of working. I jokingly asked if he wanted to put a friendly wager on it. I'm glad I didn't.
I am amazed to report that after one week without any anti-diabetes medication, my blood sugar had remained pretty normal for the most part. Granted, I'm only testing before meals, but still 90 percent of those readings have been under or close to 100. The one or two higher numbers I had were the result of a very bad night's sleep with a teething boy. Everything else, even bedtime numbers, was right in range. (READ MORE)


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So last winter, I decided that since I was committed to MDI, I may as well be on the pump. I knew it would offer me superior management.

 

I called my insurance company to find out what kind of coverage we had so that I could decide which pump company to call. I understood nothing the rep told me, so I emailed HR to get a translation. Turns out we were changing insurance companies in January 2008 and unless it was urgent, I was encouraged to wait until January.

 

I started to obsess about going on the pump. Couldn't get the darn thing off my mind and I didn't even have it yet. I would look nearly every day at various pump web sites, compare products online and think about how much easier things would be if I just had the pump already!

 

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About this time last year I had a scare with Boo, Olivia's little sister.  She had been peeing and drinking a lot and had a blood sugar of 140 at one point. I took her to the pediatrician, but he didn't seem concerned.  I logged her numbers for a week and there was never another high reading, so I left it alone.

 

Well, this week, Boo has been asking to go to the bathroom a lot.  She's also thirsty a lot.  Her preschool teacher mentioned the constant peeing to me and said "Maybe she's getting sick.  Her breath smells a little funny."  

 

Uh oh. 

 

So I did a blood sugar reading this morning (after much crying and hiding on Boo's part) and she was 160.  I called the pediatrician and she's going in at 4:30 today.  I'm going to ask if there's another test - I don't want this dismissed.  

 

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It's been a while since I last updated and I apologize for that. Sometimes life just takes over.
A lot has happened in the last few weeks. When I last checked in, my blood sugar was crazy high, my vision was suffering the consequences and my endo was terribly unresponsive. Since then, I changed doctors, went back on the meds I took prior to getting pregnant, got my blood sugar back under control and can read the clock on the DVR again. I feel so much better.
I still haven't officially told my endo that I don't want to see him any more. I plan on writing him a Dear John letter soon. The final straw was that I contacted him regarding my vision problems and my shakey control and he told me to take metformin again. I asked to go back on the meds I took before seeing him and he ignored me. I felt that I had humored him long enough. (READ MORE)


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I got a link to an article from ABC News today about Halle Berry. I was encouraged to see that doctors are equally concerned with her claims that she's cured herself of type 1 diabetes.

"Diabetics quickly took to the blogosphere to condemn Berry for claiming that a change in diet could cure Type 1 diabetes, an autoimmune disease in which the pancreas permanently fails to produce insulin, the vital hormone that regulates sugar levels in the blood."
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"So you missed my big health news last week," I said to my boss this evening as we were working late.
"Oh, no, I know. K. told me," she said, "that you're going on the pump. That's great news. Are you hooked up?"
"Yes, I got all set today," I said lifting my shirt slightly to show off my pump. "But the bigger news is that we discovered that I'm actually type 1 and not type 2."
Enter blank stare.
With a type 1 brother in law, I really thought I was talking to an understanding audience, but I was (partly) wrong.
Over the last few days, I've encountered a lot of these misunderstandings that I didn't really expect. One day last week, I called my sister to let her in on the news of my new diagnosis and about the pump. It was really a process to explain to her that this was all no big deal. (READ MORE)


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Before you read any further, I want you to know that this is not a terribly uplifting post. And I won't fault you if you decide to stop reading now.
One of the worst parts of having diabetes, for me, is how vulnerable it makes me feel. In the past, I've expressed my fears related to this disease on this blog and my personal blog. I am not a person that lets fear deter me. I push on, I make my way in spite of the fact that I sometimes feel overwhelmed by the possibility of disaster that life presents.
But, you know, life with diabetes presents a whole other set of disastrous possibilities. (READ MORE)


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Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 6-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)

Latest Posts: The Adventures of Gleevec and Sutent | Permanent Remission? | It Was a Blizzard (5 Years Ago)

Andy Bell
Andy Bell has lived with diabetes since the age of 14. He controls his type 1 diabetes by taking multiple daily injections. Andy is 28 years old now and despite his diabetes, still maintains a very active lifestyle. Andy works for the Juvenile Diabetes Research Foundation (JDRF) in the National Outreach Department. (Read More)

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