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March 20th, 2010
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Much buzz has been going around the diabetes community about the recent announcement of the JDRF/Animas partnership to develop a "first generation artificial pancreas", and rightly so. The ability to eat like a "normal person", to not have to worry about debilitating highs and lows, to be able to sleep without fear of not waking up again... these are things which are, quoth Hamlet, "devoutly to be wish'd". That the road between here and there is not so simple a passage as we might hope, is well-known, and much littered with papers sporting words like "cure", "encapsulation", "transplant", "gene therapy", and -- of course -- "artificial pancreas". (READ MORE)


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We have been promised a cure for decades. It's always just around the corner. There was the seaweed and islet cell transplant success that I remember quite vividly. There were pancreas transplants. The stem cell rejuvenation talk. And recently, there has been a large movement towards the artificial pancreas.

 

And now, JDRF, Animas, and Dexcom have teamed up to do just that. Build me an artificial pancreas. Okay, not me personally. But maybe, someday.

 

But what does an artificial pancreas actually mean for me? Well first, this first-generation AP (yep, I'm shortening it) utilizes an insulin pump and CGM sensor to continually monitor blood sugar levels then either give or stop insulin as needed. We'd still be bolusing for meals, but the daily hassle of tracking every change would be lessened.

 

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Had he been awake, he probably wouldn’t have appreciated the pink straw in his mouth. But we were out of juice boxes and the box of straws had been picked clean of all its blues and greens.

 

Sounds are louder at 2 am. The trigger snap and pop of the pricker. My bare feet smacking the wood floor. My sloth-like descent down the stairs and the familiar creaks in the wood that groan under my weight.

 

I don’t need to tell you. You know.

 

His eyelids bend open just slightly and quiver like closed moth wings. His mouth opens on cue.

 

"Good, Charlie. Just a little more."

 

One eye opens and then closes.

 

While he drinks, I think about the news of the artificial pancreas. Everything is always four to five years away it seems. It’s not a cure, but it’s something.

 

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1.

I was walking into the store as they were walking out (couldn't wait to feel the rush of cold air after walking from my car to the front of the grocery store; 9 p.m. and still 100 degrees outside. Autumn, please?).

 

I noticed him first: shorter than I am (a lot of people are... I'm 5'10"), muscular, tan skin, seemed confident in himself, attractive, but mostly I noticed the muscular.

 

She seemed just as confident. I noticed how thin she was and attractive and how short her shorts were.

 

As we passed I looked forward, but somehow noticed something that made me turn back. Something white. And round. And ... was that... tubing? Yes! An infusion set on the outside of her thigh! I saw it! It was like finding Waldo. Such exhilaration!

 

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I got a link to an article from ABC News today about Halle Berry. I was encouraged to see that doctors are equally concerned with her claims that she's cured herself of type 1 diabetes.

"Diabetics quickly took to the blogosphere to condemn Berry for claiming that a change in diet could cure Type 1 diabetes, an autoimmune disease in which the pancreas permanently fails to produce insulin, the vital hormone that regulates sugar levels in the blood."
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I knew I was getting close to the banquet room for the JDRF annual meeting when I spotted a used ACCU-CHEK test strip on the carpet like a breadcrumb in the forest.

 

I was reluctant to go; reluctant to make the commitment. As it is, there are not enough hours in the day.

 

Walking through the doors was sort of surreal. It was like a plumbers' convention. Only they weren't plumbers. I snaked my way around the room looking for a place to sit, taking in the throng of diabetes chatter as the people talked shop.

 

Snippets of conversations zipped into my ears and blended into others.

 

"So I says, honey, you got to get a freakin' pump!" coming from one table.

 

"You get ketones?" from another table.

 

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This article came to my attention a few weeks ago via Penny at My Son Has Diabetes . I thought it was melodramatic in the extreme and felt it needed a response. Here's what I said:

Everything in moderation - Aristotle. I find that's a good philosophy when it comes to Halloween candy.

Your melodramatic column screams about the massive rate of diabetes among adults and children. Yet what you fail to note is that the majority of children with diabetes have TYPE 1 diabetes, a vastly different disease than Type 2.
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Diabetes is a unique disease in many ways.

 

One way that I never really realized until recently is the guilt it places on the patient.

 

With other diseases, your doctor is in control of everything. Your medicine, how often you take it, and how much. But with Diabetes, the patient is the one who has to manage it. So when there is a problem, the patient gets blamed.

 

But is that fair? Sure, I know that I decide if I am going to take my insulin on time, or bolus correctly. I am the one who either chooses to exercise or not and eat healthy foods or not. Those are up to me.

 

But, tell me this, who is to blame when I take my insulin correctly, exercise, do everything right, and for no reason my blood sugar is 270?

 

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What if this was it? What if this was THE announcement? Where were you when you first heard the news?

 

We were in the living room. Susanne was sitting on the brown "site-change chair" with Charlie laying across her knees. She peeled the site off of Charlie's bottom while he resisted, elbowing her in the ribs and screaming, "break! break! break!"

 

Susanne begged him to be still.

 

And then suddenly everything stopped as we all became transfixed to the words coming out of Brian Williams' mouth on the television and the graphic over his left shoulder that said "Diabetes & Kids."

 

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I’m generally not a jealous person (at least I don’t think so), but “jealousy” is the only way I think I can describe what I’m going through right now.

 

Every time I see an ad for the breast cancer three-day walk — which is about every 30 seconds these days — I want to hurl the TV across the room. Why? Because why can’t that much attention be paid to people with diabetes?

 

Yes, I know there are walks for diabetes. But are there commercials with people dressed in blue saying “Save the ta-tas”… er, “Save the pancreases of the world” and “If I can walk 20 miles a day in support of my mother/sister/aunt/uncle/son/daughter then anyone can?” No, there aren’t.

 

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Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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