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My father’s sister Margaret died of complications from diabetes at the age of 51.  It was an awful thing to watch.  The years between her fortieth birthday and her dying day were overfilled with pain.  She had issues with her toes, issues with her eyes, she had multiple strokes.  My father, a decorated Marine and police officer, held his little sister’s hand through too much heartache.  When she died, in a nursing home, too young and too sick for words, he cried.  

 

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I am so very fortunate.

 

I am surrounded by people who care about me, and who understand my diabetes.  I have family, friends, co-workers, and online cheerleaders (like you!) who "get" diabetes, who understand the physical and emotional challenges, and who are willing to help me manage under what are often difficult circumstances.

 

This is no small thing.

 

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Earlier this week, it was announced that the focus of national anger for most of this century had met his Maker, courtesy of the United States military. The TV news showed people reacting by dancing in the streets.

 

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When one of us succeeds, we all succeed. When one of us is hurt, we all feel pain. And when one of us is belittled at the expense of another, we all lose.

 

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It's unusual for me to have nightmares — especially nightmares about flying. Mine are usually about family relationships gone completely awry. But facing a World Diabetes Day on which I am working at a place whose uniform does not allow even a touch of blue, having given Nick Jonas my last World Diabetes Day pin (and not having had the money to replenish my stash), and having failed to have the presence of mind to do the Big Blue Test at least once (even though I am bicycling to and from work at least half the time), I feel a bit like a diabetes failure. (READ MORE)

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Last week's #dsma (Diabetes Social Media Advocacy) twitter chat topic was the delivery of diabetes education, medication, supplies, and support to others -- both in the US (and other "First World" nations) and emerging ("Third World") nations. I've blogged before about the logistical and political issues organizations such as the International Diabetes Federation (IDF) and Doctors Without Borders (MSF -- Médecins Sans Frontières) have in delivering medical care and medications to those in need. But while we often talk as if everyone in the United States had fingertip access to smartphones (with unlimited data plans), cable TV, and the Internet, that certainly is not the case.

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Somewhere between work and sewing the overgown for my most recent renaissance-faire visit, I managed to miss Friday's Blog Action Day. It's not something I feel I must participate in, but it's an occasional source of inspiration -- especially when it's a topic that can be turned on its ear.

 

This year the topic was water -- in particular, access to clean drinking water. Washing water. Safe, parasite-free water. Something that is lacking in many parts of the world. (At least one episode of Bobby G, Adventure Capitalist showed the eponymous individual playing a major role in bringing safe drinking water to a Nicaraguan community.)

 

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Several of the posts coming back from the Children With Diabetes annual Friends for Life conference (FFL) have likened this gathering of beta-less buddies to a traveling circus, a family reunion, and the sitcom Cheers, in whose eponymous bar "everybody knows your name" -- except that in the case of FFL, "everybody knows what it's like to live with type 1 diabetes". The effect, even without the Disneyification (FFL is always held at Disney World), is a Magic Kingdom of Diabetes. It makes sense: the event promoters are (and need to be) familiar with the condition, and the property managers need to be aware of -- and capable of handling -- a large, temporary influx of people who all have the same, or similar, "special needs". (READ MORE)

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A few days ago, I posted about how we end up being each others' emergency support systems in real life (and occasionally by posting links to resources such as iPump and the Partnership for Prescription Assistance online), and how this made us each to some degree our brothers' keepers.

 

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One of the participants at my recent talk on Connected Medical Devices was concerned that transmitting our medical data to our doctors via e-mail (an unsecure platform) or sharing it in crowdsourced applications (such as TuAnalyze) might be in violation of HIPAA regulations. The thing about HIPAA is that it restricts your healthcare providers from disclosing your health information without your consent (or a legal mandate of some sorts); it doesn't restrict you from sharing the health data you have collected yourself (or received from your healthcare providers).

 

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