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May 25th, 2012
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Three weeks now I have been waiting for OmniPods new personal diabetes manager (PDM) to arrive. It was actually a chance phone call to OmniPods customer service number that gave me word about this new product. I was nearing the last days in my previous place of residence and called to change the address on file for my automatic pod shipments. Near the end of this phone call, the service rep mentioned a promotion for a new PDM they were launching. (READ MORE)


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In honor of National Diabetes Month, Abbott Diabetes Care is running a special series of web-based chat sessions with parents of kids with diabetes in mind. Children With Diabetes founder Jeff Hitchcock and Caring for a Child with Diabetes author Brenda Novak are featured guests You can pre-register for these November events over at the Abbott website. (READ MORE)


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It occurred to us that Charlie doesn't get many requests for play dates from his classmates. It's not like he doesn't have friends. He gets along with everyone in his class. He's actually fairly popular. Still, the invitations to come over houses are scarce.

 

It makes us wonder if the parents think it would just be too difficult. Or maybe they just assume we could never just leave him somewhere without someone trained in diabetes care keeping an eye on him. Well, they wouldn't be wrong if they thought that. We want to let him do things without us hovering over him like low-gliding seagulls, but how can we? He doesn't test himself yet.

 

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I got my blood work results in the mail last week. All the usual suspects...kidneys, CBC, liver function, thyroid...came back within normal ranges. But my A1c was totally off the charts.

 

Back in July, it clocked in at 7.2%. I wasn't surprised by that because I'd switched from the pump to Lantus and had a few bumps along the way. I was also struggling with getting my exercise numbers into a decent range. So 7.2% was good, all things considered.

 

But now, my A1c has jumped to a whopping 8.6%. It hasn't been that high since 2007 when I wasn't taking care of my diabetes at all in the midst of college and living on my own. I have to say that this result totally shocked me. I want to say that something is off, something has to be off!

 

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Thanks to the Amgen Tour of California contest-and-sale from Road ID, The Other Half sprung early for part of my birthday present -- the nice, sporty Wrist ID Elite. The "interactive" version features a member-controlled (that means I'm the one who puts the information in it and controls what information is in it) personal health record, which the Road ID folk call an "Emergency Response Profile" or ERP. The ERP can be read by (or read to) a first responder or a hospital admissions clerk from either the Road ID members' site or by calling a specific phone number. The name on the front and the unique serial number on the back of the ID tag provide the necessary access identification. (READ MORE)


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My relationship has changed, and I'm not happy. Over the past three weeks, I've lost so much trust in what I'm being told that I'm looking at "playing the field" again.

 

The relationship I'm talking about is the one with my glucometer.

 

(READ MORE)


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It's no secret that several of us who blog here at dLife are active in a number of diabetes-oriented online forums and social networks -- what we refer to as "the Diabetes Online Community" or "the DOC" -- and that in the process, we've learned which people, which groups, and which venues are doing what in terms of offering emotional support, medical and lifestyle advice, places to gripe and complain, and ways to use our various talents to make living with diabetes easier (or less difficult, depending on your point of view) for ourselves and others to manage.

 


I must also mention here that I have been, for the most part, a satisfied user of Freestyle glucose meters since I adopted the Therasense Freestyle several months after my initial diagnosis, upgrading to the Freestyle Flash almost as soon as it came out, and eventually to the Freestyle Lite (which I currently use).

 

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For many of us, our sense of self is tied to our glucometers, our pumps, and/or our CGMs. "Sad, but true," you may say. The truth is, we tether ourselves to these devices to maintain and/or improve our lives. In addition, most jurisdictions require us to carry at all times some form of government-issued identification -- and of course, we dare not go anywhere without our health insurance cards and our cell phones.

 

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One of the participants at my recent talk on Connected Medical Devices was concerned that transmitting our medical data to our doctors via e-mail (an unsecure platform) or sharing it in crowdsourced applications (such as TuAnalyze) might be in violation of HIPAA regulations. The thing about HIPAA is that it restricts your healthcare providers from disclosing your health information without your consent (or a legal mandate of some sorts); it doesn't restrict you from sharing the health data you have collected yourself (or received from your healthcare providers).

 

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I recall a classic movie comedian's tag line something on the order of, "And here's another fine mess you've gotten us into". It might have been, "Look at the fine mess," "What a fine mess," or something else similar, but it was something that happened after his comic partner did the sort of numbskull thing that the partner was known for. I don't remember offhand if the line was associated with the Three Stooges, the Marx Brothers, Abbott and Costello, or somebody else...

 

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Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
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