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Today is
Raise Your Voice For Diabetes day. So here I am, raising my voice.
Why should I? It's hard, getting the word out about diabetes. But that's why I do it.
I do it to combat the rampant ignorance about this disease.
I do it to do my part to set straight the massive amount of misinformation that's out there about diabetes, type 1 and type 2.
I do it because I want my daughter to feel comfortable advocating for herself one day and the only way she can do that is to see me, advocating for her.
I do it because her father would prefer to ignore her diabetes, feels ashamed that she has it and I don't want that shame rubbing off on her.
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On a day that we
Raise Our Voices for Diabetes, I thought it might be interesting to hear an unfamiliar voice.
With Susanne only having a few days at home before she must return to her armwrestling team in Reno, Nevada, to train for the Women's U.S. Open, I thought I'd invite her to be a guest blogger. Take it away, Muscles.
I think I was very accepting and calm when the doctor confirmed Charlie's diagnosis. It's strange because I don't think I really understood the long haul and challenges that were ahead. (How could anyone?) Type 1 diabetes was not a new disease to me. I was, or thought I was, familiar with it. My younger brother has it. He was diagnosed at 18.
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When I tell my "real-life" friends stories about my friends from the
Diabetes Online Community (DOC), I'm often told that my stories make these people sound real.
"Well," I say, "They are real. In many ways more real than some people I've met face to face."
I usually get the look then. The one that says:
Nicole has been spending too much time online. Nicole's friends all live in the box.
That's the furthest thing from the truth. I mean - really - who can spend too much time online? And my friends don't live in the box, they just talk to me through it. Right?
I'm getting to the point. Patience.
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When you see the check-mark-y swoosh, you think Nike, right? An apple gets you the computer company, golden arches make you think of cheesburgers, a peacock will have you thinking Must See TV, a red cross... you get the picture.
And when it comes to health there are several very recognizable symbols of support, perhaps the most popular is the pink ribbon for breast cancer. I was doing some research today on breast cancer and realized that the pink ribbon is quite possibly the only symbol synonymous with only one health condition. Even the red ribbon went from AIDS to a host of other causes.
You see a pink ribbon you instantly think breast cancer; you see a red, green or yellow ribbon and you have to do some thinking or asking. While many diabetes organizations and associations have their own symbols, there is not one that is universal for diabetes.
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A pilot in Denton, Texas, made an emergency landing near a freeway yesterday because he felt lightheaded. Only one media source stated he was diabetic. Yet the article made every major newspaper in the area.
Thursday, I drove down the highway in rush hour traffic digging through my bag and eating everything I had with me. As I stuffed the glucose tabs into my mouth, I sat wondering about my fellow drivers. Were any of them diabetic? Had they driven this low before? Would they be mad because I was driving low (granted we didn't reach speeds above 15 mph)?
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I'm skipping the letter L - in favor of my very late Raise Your Voice post. Even later than I thought - because of technical difficulties... (Thank you, K) My voice still counts, I hope.
The countless days of senseless whirling
Numbers chugging, dancing in my head
Reminding me of their import
The unending barrage of needles and blood
And of damage and fear
Reminding me of my body's most drastic flaw
The every day of it
The every night of it
The demands
The requirements
The relentless, all-consuming weight of it
The wishing it was different - I was different
And the realization that you play the cards you're dealt
I watch, most days silent, as it destroys people I love.
This beast.
And I wonder how many healthful, strong days remain for me.
I look into eyes so like my own
Mirrors reflecting the days behind - the mistakes
And the days ahead? - For me?
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After making those
Christmas lights the other day, I got to thinking about what else you could do with the flotsam and jetsam of life with diabetes. A few ideas were:
1. Test strip bottle garland - using fishing line, thread thru where the cap joins the bottle. 100 bottles should make a manageable garland.
2. If you really want to drive yourself mental, make garland out of used test strips. You could either thread them on fishing wire using an upholstery needle or you could glue them together. I have doubts as to whether the glue would hold up for very long, though.
3. Syringe icicles. Snip the needles off (obviously), put fishing line or ribbon around the plunger end and hang on the tree.
4. Syringe icicle lights - using the same Tiny Lights that I used for the insulin bottle lights, string the syringes (again, snip the needles) onto the lights.
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After making those
Christmas lights the other day, I got to thinking about what else you could do with the flotsam and jetsam of life with diabetes. A few ideas were:
1. Test strip bottle garland - using fishing line, thread thru where the cap joins the bottle. 100 bottles should make a manageable garland.
2. If you really want to drive yourself mental, make garland out of used test strips. You could either thread them on fishing wire using an upholstery needle or you could glue them together. I have doubts as to whether the glue would hold up for very long, though.
3. Syringe icicles. Snip the needles off (obviously), put fishing line or ribbon around the plunger end and hang on the tree.
4. Syringe icicle lights - using the same Tiny Lights that I used for the insulin bottle lights, string the syringes (again, snip the needles) onto the lights.
(READ MORE)
After making those
Christmas lights the other day, I got to thinking about what else you could do with the flotsam and jetsam of life with diabetes. A few ideas were:
1. Test strip bottle garland - using fishing line, thread thru where the cap joins the bottle. 100 bottles should make a manageable garland.
2. If you really want to drive yourself mental, make garland out of used test strips. You could either thread them on fishing wire using an upholstery needle or you could glue them together. I have doubts as to whether the glue would hold up for very long, though.
3. Syringe icicles. Snip the needles off (obviously), put fishing line or ribbon around the plunger end and hang on the tree.
4. Syringe icicle lights - using the same Tiny Lights that I used for the insulin bottle lights, string the syringes (again, snip the needles) onto the lights.
(READ MORE)
As we prepare for the upcoming JDRF Walk to Cure Diabetes, I'm reminded of a conversation I had with Charlie when he was 3, just prior to our second walk.
"We walk and we raise money so that there can be a cure for diabetes," I explained to him. He looked at me blankly, clearly confused.
"Can you buy me something at Toys 'R Us with the money?"
"No. The money is for a cure."
"What's a cure?" he asked.
"We raise money so that maybe someday the doctors will be able to take diabetes away. Maybe someday you won't have diabetes anymore. That would mean no shots and no more testing your blood sugar."
I thought my little pep talk would make Charlie excited and hopeful. Instead, a wave of panic washed over him. Not the reaction I was expecting.
He got very upset at the thought of no longer having diabetes and even cried when I suggested he wouldn't have to test his blood sugar if there was a cure.
"Keep testing!," he sobbed.
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