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November 21st, 2009
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There's no way around it: I'm almost completely out of real estate on my belly for infusion sets. My lower abdomen is my favorite place for pump sites because they give me such good numbers. If I go too high above my belly button or too far out toward my hips I hit some serious snags.

 

Most site-change mornings have me searching much too hard for a place that doesn't have a scar or isn't a place I've already tried with disastrous results. While I get OK numbers when I use my hips the sites get too damaged from my clothes for some reason.

 

This morning came down to it: I had to try something different. I tried to stand as naturally as I could while I searched for a place on my inner thigh that wouldn't get too much static from my clothes and wouldn't interfere with walking.

 

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Right now, I'm staring at my logbook trying to decide what changes I need to make and what else I want to try with all this. This past week has been a bit rocky so my averages are all over the place. Mostly, they're high. At least higher than I want them to be. So while I'm staring at my book, I'm trying to piece together this last week and figure out what is going on with these numbers.

 

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Right now, I'm a complete bundle of nerves. Last night, I suddenly decided that today I would go off the pump. I know that I've been talking about it, but I assumed that I'd get it all straightened out and be back into "normalcy" before April 1st came around.

 

But you'd be surprised to find that poor control is actually NOT the reason why I'm going off the pump. In the past two weeks, I've had some highs and far fewer lows (which is just amazing). My averages are still in the 150 range though, which is what I'd settle for to get down to the 130 range (slowly, without lows).

 

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This morning I needed to change my infusion set for my pump.The infusion set is what goes into your body that allows the insulin from the pump to get to you. I change mine every 3 days.

 

I usually always put my sets in on my thighs. I have plenty of fat there and then I can stash the pump in my sock and it leaves belts feeling less like Batman's and keeps my pocket free. 

 

As of late I have noticed that I hurts more then it used to when I put the infusion set in. Also I have been pulling out more sites due to bad absorbtion. 

 

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My pump sites have just not been cooperating lately.  No matter where I put the canula - it ends up hurting.  A lot.  Enough so that I complain about it. 

 

To give you an idea of what it takes for me to complain - I am a girl who has had external fixators drilled into a bone in my arm for eight weeks and who refused pain killers (other than Tylenol) after two days.  I'm not a sissy.  Not at all.  So these sites are causing me more than a little bit of turmoil.

 

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Jumping into the world of pumping is no simple task. And I don’t mean that it is hard to get an insulin pump. The hard part is picking through the available pump companies, deciding which one suits your lifestyle, and finding a way to pay for it. If you live in Duckburg and own a bank vault full of coins, you can pay the thousands of dollars for up-front costs and hundreds monthly for a pump. But for the rest of us, health insurance is the only avenue to an insulin pump.

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Olivia moved her site to her belly and her numbers have been much better. So thighs are definitely out.

 

We talked about it the other night - she's sick of using her belly. It looks awful, full of bumps and keloids and just generally mangled. I'm going to call her CDE at Joslin to see if we can start using her arms again. We're also going to start moving her sites out more towards her sides, in an effort to get around to her backside. Not her butt, because she says that really hurts, especially when she's sleeping, but in that area above the belt, where she still has some padding.

 

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For some reason my fingers are not being very nice to me. All day I have had to squeeze my fingers so hard they hurt. They will not give up any blood! I literally tried all of my fingers three times before I finally got enough for my machine.
Now I do remember back in the day when it seemed to take a "gallon" of blood to get a glucose reading so I am thankful it is not that way any longer. But my One Touch takes a much bigger drop then some of the other machines I have used. Unfortunately my insurance will not cover any other strips but the One Touch. Again, I am thankful for that but I just need to vent a little.
My hand hurts from squeezing my fingers. I can hardly feel my poked fingers anyway so you know it's bad when the squeezing hand is hurting. I have tried the alternate site testing but it is hard for me to trust it. (READ MORE)


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Olivia uses a Minimed Paradigm pump - the 715 model. We have had no issues with it (knock wood, turn around three times, go outside and spit). I think I've called the help line once in the last three years.

She uses the Silhouette infusion sites. The angled cannula seems to be better for her. The sites that go straight in would bend and crimp. That's not to say she hasn't had the occasional problem with the Sils, but for the most part, they've been fine.

The last 10 or so site changes, though, have been different. The needle that plunges the cannula into her body (bleurgh) is bending. Really bending, like at a 90 degree angle. And it hurts a lot.
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Olivia is starting to look like a pin cushion. Her stomach is a mass of red marks, scars and bumps. It's not pretty. She refuses to wear a bikini or half shirt because of how her stomach looks (not that this bothers me, mind you!).

The problem we're currently having is that she's got so much scar tissue built up that she's running out of real estate for her sites. She currently uses her arms, her stomach and her lower back.

I'm sure some of you will suggest thigh sites, but she has really bad luck with those. Thigh sites generally make her rollercoaster - she'll be in the 400s in the afternoon and by dinner, be in the 60s. It's bizarre. I've tracked it and she's not over-bolusing or over eating. I think it's an absorption thing. She's got meaty thighs (she can thank me for that one). I don't know if that makes a difference or not; regardless, thigh sites just don't do it.
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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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