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March 22nd, 2010
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In March, it will be seventeen years. Seventeen long, grueling years. Years of promises, hope, and disappointments. The past years have included dozens of news articles, emails, updates, and doctor's promises that a cure is on the horizon.

 

The next five years. The next ten. Soon. We're making progress. Any day! Before you have kids. Before your kids are grown.

 

The promises abound. The hope alights. But the disappointment is great when five, ten years, soon disappears. Today, I'm wondering why we don't have a cure. Why are we being promised so many things and seeing so much "progress" but nothing is getting to me? Nothing is getting down to the lay-men who are living with this disease? Exactly why do all the mice get cured and I'm stuck injecting and pricking thousands of times?

 

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I was going to write a post about glucose tabs today to represent the letter G. But I'm not going to deliver as promised. Because, another G has been on my mind of late and I wanted to write about it.
What, pray-tell, could deter me from the path of a post about chalky-lemony glucose tabs? Nothing terribly exciting - just the gym. (READ MORE)


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The diabetes bag is relatively light but it weighs heavy upon us. We panic when we lose sight of it like it's one of our children lost in a food store. It is soft and black with pictures of rockets on it. It contains about 13 alcohol wipes, a meter with a blurry screen, two vials of test strips, a white pricker with a tiny burgundy blood stain on the tip, about a dozen light-blue lancets, a tube of cake gel, Glucagon, two 15-carb apple juice boxes, a granola bar, a bag of Goldfish crackers and a pair of my black underwear???
Ben Patrick Potash!!!!!!!!! (READ MORE)


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This year’s JDRF annual conference has asked those involved with JDRF to compose a “Commitment to a Cure” piece. They will be using these commitment items to display on the Commitment Wall in hopes of increasing interest, passion and the volume of responses at the conference. 

 

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I usually have my JDRF Walk to Cure Diabetes fundraising letter done and distributed by mid-July. This year has been different. I've been in a fundraising funk. I'm just tired of writing the same statistics year after year. The lower life expectancy; the long-term complications; adding up the number of finger pricks since November of 2003. I finally did sit down and write our letter - deciding to simply write what I was feeling at that moment.

 

Dear Friends and Family,

 

"A cure for diabetes is just around the corner."

 

"Scientists are closer than ever to finding a cure."

 

"A cure for diabetes is now within reach."

 

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Per usual, I'm tardy.
Resolution #1 in the New Year: I shall try to be more timely.
Actually, I'm not making any resolutions this year. I think I've turned a corner in terms of resolving to lose weight, exercise, eat right, and relax - then not doing any of it. The difference for me in 2007 was that I promised to do nothing - and I did most of the things I would have promised to do if I'd made resolutions.
Go figure.
At the close of December, the year found me down 30 lbs, exercising more and with more vigor than I have since my teens, eating right and enjoying it, in a new - more satisfying - job, getting paid to write (how exciting!). Numbers-wise, I finished the year with an average A1C of 5.7% and my cholesterol levels much lower. (READ MORE)


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To the families of special-needs children all across the country, I have a message: For years, you sought to make America a more welcoming place for your sons and daughters.


I pledge to you that if we are elected, you will have a friend and advocate in the White House.


Gov. Palin, I can't tell you how much this means to me and my family. For eight long years it felt as if we didn't have a friend in the White House. Phew! Thank you for being my friend. What a relief. I have to be honest, I wasn't expecting that. I too am a parent of a special-needs child. My 6-year-old son Charlie has been living with type 1 diabetes since he was a baby. 


As my friend, I'm sure you and Senator McCain will lift the restrictions on federal funding of embryonic stem cell research the moment you take office. That's what friends do, right? Friends are there for you when you need them most.

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Had he been awake, he probably wouldn’t have appreciated the pink straw in his mouth. But we were out of juice boxes and the box of straws had been picked clean of all its blues and greens.

 

Sounds are louder at 2 am. The trigger snap and pop of the pricker. My bare feet smacking the wood floor. My sloth-like descent down the stairs and the familiar creaks in the wood that groan under my weight.

 

I don’t need to tell you. You know.

 

His eyelids bend open just slightly and quiver like closed moth wings. His mouth opens on cue.

 

"Good, Charlie. Just a little more."

 

One eye opens and then closes.

 

While he drinks, I think about the news of the artificial pancreas. Everything is always four to five years away it seems. It’s not a cure, but it’s something.

 

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I've been mysteriously absent from the blogging world again. My apologies! I've been busy with baby and holidays, and keeping myself healthy despite the viral-cold-winds that are a-blowing. With a school teacher husband, it's hard to keep germs out of the house!
I thought I'd touch base with a quick recap of the last few weeks.
I took the month of December off of blood sugar management to focus on weight loss. I rejoined Weight Watchers (I'm a lapsed lifer) and found a meeting that's more like family with a great leader, Kim. Despite the holidays, I managed to stick to the program. (READ MORE)


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It's crunchy and sweet -- even when it's not a sugar cereal. It's wet and soft and smooth. It's great for dinner or breakfast.

 

I love cereal. It used to be the only thing I ate for breakfast: two bowls of Cheerios and I was set all morning. Occasionally I'd mix it up with a bagel or something, but my breakfast staple was cereal. This was, of course, pre-diabetes.

 

It was an accident that I found out what milk does to my blood sugar. I was pregnant and taking only Lantus at the time. One morning the milk was gone and I drank water with my PB (no J) sandwich (yeah, yuck). I had a pretty blunt "ah-ha" moment when I saw the post prandial.

 

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Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
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