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Okay, I will warn you up front that this post is a total rant and has no other substance besides the fact that I need to let off some steam. I am also looking for some of you who have dealt with this annoying stereotype.
As I was minding my own business here at my desk the janitor comes up to me and asks me if I have to take shots everyday. I realize that he was listening to a conversation I was having with a co-worker about insulin and so on. A total eavesdropping moment right? So I answer, "nope." And totally leave it at that.
He says, "Oh you got off of insulin. That's good. Just a diet now or pills?"
"No I have an insulin pump."
"There is a gal in another office I clean that has to shoot up every day." Then he does it. He does this sort of motion with his right hand towards his left upturned arm. As if he is shooting up heroin or something right into his vein! (READ MORE)

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In the last several weeks at work I've gotten two "Is that your phone?" comments about Dex, one "Is that your pager?" comment about Toohey and one "I think we just violated HIPPA" comment. Oh, and two very long, in-depth conversations about diabetes, pumps and continuous glucose monitors. It's interesting how much of this information had become visceral to me... I found myself explaining things I hadn't thought I would need to but realized that basic diabetes knowledge is not so common.

 

Actually, I take that back. Some people know enough about diabetes to be dangerous, but what they have no clue about is pumps and CGM. Which is fine. In fact, today I told a co-worker after a lengthy conversation about how the pump and the CGM work that I don’t mind talking about it. I clarified by saying as long as I wasn’t being judged and people who were asking questions were willing to accept that I am the expert.

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Having diabetes has many challenges as we all know. Exercising, eating right, checking our blood glucose levels, taking medicines, seeing doctors regularly, and so many more that I cannot even think of. We are busy bees.
One thing I have found as a major challenge is not losing my cool with people who maybe don't understand this disease so I would like to clear up a few things.
1. Not all people with type 1 diabetes are thin.
I am on a weight loss program right now and frankly, the only time I have ever been thin in my life was the year or so before I was diagnosed and was losing weight like crazy.
2. Not all people with type 2 are overweight.
This one drives me nuts. It is true that weight loss can help your chances of not getting diabetes but there are other factors too. I think of my uncle who had lung cancer but never smoked a day in his life. Same sort of a thing.
3. People who take insulin are not out of control. (READ MORE)

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Dear Oprah,

 

I used to be a fan. I used to watch your show all the time. Probably every day. That was back when I was in school and was home by the time you were on.

 

After I got into the real world and started working, I rarely saw your show. And frankly when I did, it was pretty sensationalized. As a member of the media, I pretty much hate sensationalism. I may be in the media minority when it comes to that, but it's a direction that I simply can't stand our industry has gone in.

 

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You'll often hear parents of children with diabetes - myself included - moaning and groaning about the many classroom birthday parties that we must contend with. Seems it's every week that my wife gets a call from the nurse regarding an unexpected carpet-bombing of brownies or cake.

 

We deal with these situations without too much of a fuss, but still, it's yet another curve ball thrown our way.

 

I've read many horror stories through the years of classmates' parents who just don't get it. Or rather, parents who think they get it but really don't at all. Hard to believe, but I remember a story about one parent who distributed birthday treats to all of the kids in the class except the kid with diabetes. He thought he was doing a commendable thing in recognizing that there was a diabetic in the class and keeping the evils of sugar away from him or her.

 

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Several weeks ago Dad's cousin and her husband visited from Missouri. After dinner we were having an engaging discussion about our family.

 

L's daughter is apparently something of a dare devil. L was telling us how she found out from her daughter's blog how she had done something dangerous (I think it was jumping off a cliff, but I'm not entirely certain). Mom jumped in joking that she has found out more than she wanted to know about me from my blogs and has learned not to read them anymore.

 

She looked at me almost mournfully and I suspected it was because she enjoys reading what I write. So to have to force herself to not read what I write so she doesn't freak out about what I'm saying is, I'm sure, difficult to say the least.

 

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Today,  at the grocery store, I spotted a pump.

 

On a woman at the deli, a black Deltec Cozmo.  

 

Seeing a pump like that, I can’t help but ask about it.  

 

Once, on a train, I saw a woman dosing herself, with what was obviously a pump.  When I asked her about it, flashing her my own portable pancreas, she looked shocked and said “I don’t know what you’re talking about.”  I felt terribly for asking about something that clearly made her uncomfortable.  

 

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I was discussing diet with a friend of mine last weekend. We were talking about her mother, who is borderline type 2. I asked if her mother was watching her carbs and she said yes, that her mother had cut out almost all carbohydrates, but her blood sugars were still fluctuating all over the place.

When I asked what she was eating, my friend responded with "Chicken, fish, lots of fruit and yoghurt." I just kind of goggled at her. "Fruit? And yoghurt? Those have carbs in them, you know."
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I am not a number. -- "Number 6", The Prisoner

 

One of the questions asked in a recent #dsma chat had to do with the people we live and work with who are familiar enough with our diabetes care to support us, make sure we have appropriate food and drink as needed, who know how and when to administer glucagon, and what to tell the folk at 911 about us. Some debate arose over the common patient-community designation of these individuals as "Type 3s".

 

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