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How often do you worry about diabetes complications?

May 24th, 2012
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The theme for this week is "Manage Your Healthcare Team".American Diabetes Month  For me, and for many others with Type 2 diabetes, this is a laugh. Team? What team? I have a primary care physician who handles everything from soup to nuts, including my diabetes care. She'll refer me to specialists and labs as needed, but she doesn't have any direct correspondence with my ophthalmologist (for whose checkup I am long overdue), and I've never had a CDE or an endo.

 

 

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ADM LogoAs an engineer by training, I find quantitative analysis -- numbers -- an expression of control. Self control, exercise, body function, health and illness... So while I'm fortunate enough not to have to be "Bionic Betty" with a peripheral pancreas, I still refer regularly to six separate instruments, plus additional Web-based resources, to manage my food intake, exercise output, and biometric information.

 

Weight. Some folk say weighing once a week is enough, but I find that if I don't weigh in every morning, my weight can go off on very health-unfriendly curves. I log my weight both in The Daily Plate and in my personal Excel workbook.

 

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First DBlog Week Prompt: It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends. With that in mind, let’s kick off Diabetes Blog Week by making some new connections. Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!! Let’s all find a new friend today!    Special thanks to Gina, everybody’s Diabetes BFF, for helping me title this post!)

 

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I'm about to hop into the bathtub for the only relaxation I'm going to get for the next two days. A whole ten minutes set aside for me. Then Marvin is headed this way to hook up my washer and dryer, which I will then proceed to use until I finally get caught up on the laundry that's piled up over the last month.

 

I also need to pack my overnight bag, try on my evening gown one last time, and organize snacks for tomorrow's intense set-up day at JDRF. I should probably do the dishes, eat dinner at some point, and change the cat's litter box. All before I head to bed early to catch up before I lose sleep tomorrow night and Sunday.

 

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When I see 499 on the blood glucose meter, I wonder if it's possible that the small plastic device has a heart. Maybe it's trying to soften the blow - afraid to show me a number like 500.

 

"At least 200 of that is from him being excited to play hockey."

 

This is what Susanne says when I call her with the news of the 499 from the ice rink. She might be right. It was week 1 of ice hockey and Charlie's level of excitement was bursting at the seams.

 

300 would have been an acceptable number being that he had just had breakfast.

 

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As you've probably noticed, I haven't blogged much as of late. It hasn't been because I haven't wanted to write, or didn't have time, or anything of that nature. I just haven't been get a handle on all of the thoughts in my head long enough to organize them into coherent sentences and get them into a format that anyone would be able to read.

 

Translation: I've been dealing with a rather rough bout with depression, and my mind has been cluttered with crap. That, in turn, has led to an inability to focus on much of anything, and in general, an inability to care about much of anything. Well, anything except figuring out how to get out of this rut.

 

I’ve been doing a lot of thinking, making some tough decisions, and slowly working toward getting back on track. It’s going to take a little while, but I’ll get there. I’ve battled with depression off and on for years, so I’ve been down this road before.

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When I met with our new CPA for the first time, I brought him everything I could think he would need. In 2008 my family and I lived in two states and between me and my husband we had five jobs.

 

As we sat down to talk taxes, he asked the obvious, normal questions. And then the biggie: he wanted to know if I kept receipts or records from doctor's office co-pays or any other medical treatment. No, of course not, because I had no need to. Well, in Arizona, he said, you can write off your medical expenses, right down to your office co-pays.

 

Well, hot damn, I thought! I have tons of medical expenses!

 

"Co-pays, really?" I asked.

 

"Yes."

 

"Prescriptions?"

 

"Yes."

 

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One of my scariest trips ever on bicycle was a seven-mile jaunt home from Watertown, Massachusetts to Cambridge in the middle of winter, after dark, on a three-speed commuter with no lights, on a stretch of road which had no street lights but a moderate amount of high-speed traffic. My fingers were freezing despite the warm gloves, and as much (or as little) ambient light as there was from the other side of the river, I found the lights of cars behind me to be a helpful aid as they approached -- but a bane as they passed, leaving me temporarily blinded by their relative brilliance.

 

 

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When it comes to finding a cure, I'm not exactly picky. I'm ready and willing for whatever we can successfully bring about to get rid of this disease. Last year, I even looked into a clinical trial for islet cell transplant therapy. I give my money to research for this disease so one day my future won't include finger sticks and insulin injections.

 

JDRF announced last year and reiterated this year that the focus is shifting from solely looking for a cure for type 1 diabetes to general treatment and complication therapy. That was a tough pill to swallow. And sometimes still is, even though I currently work at JDRF. I want a cure, not a newer nicer meter or a pump that does it all. I want this gone for good.

 

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Tuesday night, I switched my Lantus over to a once-per-day shot instead of the split doses I'd been using previously. I started with 22 units of Lantus at 8pm. I knew I'd see some highs, but I didn't want to risk an unexpected night low after making the first switch.

 

And I did see some elevation. I ran mostly in the 180-290 range all through Wednesday, which wasn't as high as I was expecting really. I made sure to consider food in the highs, along with the usual post-breakfast spike. And I was confident that a few more units of Lantus might do the trick (or at least get me closer).

 

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Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
Brenda Bell
Brenda BellBrenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)
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