• dLife Meal Manager

Sort by: Relevance | Most Recent | Most Active | Highest Rated

We found 10 result(s) that match your search "Joslin":

Nicole wrote an entry about blood sugar logging that struck a real chord with me.
I remember using old-school blood sugar meters that took a few minutes to provide a result and didn't have a memory, so my mother would diligently write the result down in my tattered, bloodstained logbook. For the first few months - maybe years - my logbook was a steady record of how my numbers were faring. (READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (1)

---

Olivia and I trekked in to Boston today, to visit her endo at Joslin. How I loathe that drive. It's two hours and the last 20 miles take at least 45 minutes. Today it took an hour. Holy god, the potholes on Route 9 could swallow a Mack truck.

Anyway. We navigated the Parking Garage Of Doom (otherwise known as Pilgrim St.) and were only (only!) 25 minutes late. I hate being late. It makes me itch.

The endo saw us right away - and Kerri, I told her you said hello. She was very happy to hear how well you're doing. The visit went well, although her A1C went from a 7.7% to an 8.1%. I hate that number. I know it's not supposed to, but it always feels like a failing grade when it gets high like that. Her doctor said it was fine, to be expected in a hormonal (and how!) teenager, but still. I don't like it. It makes my brain go down paths I'd rather they not travel, y'know?
(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (3)

---

Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (3)

---

Olivia asked me last night when she was going to have her next appointment at Joslin. I wasn't sure, but told her it should be coming up soon. (Must check into that, actually.) She said she wanted to ask the doctor something. When I asked her what she wanted to know, she said she wanted to talk about alternate site testing.

We've done this in the past, without much success. But looking at her fingers last night, I told her she really needed to try again. Her fingertips are mangled - they're covered with black dots and she said they really, really hurt.

Part of the problem is that she tests right on the pads of her fingers rather than on the sides. The endo has told her repeatedly to stop doing that, but Olivia doesn't listen. Now, though, she's having a lot of pain and she's going to have to do that.
(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (3)

---

Olivia had an endo appointment last week, in Boston. We make the drive in every three months and while it's an all-day affair, we both really like her endo team and feel the trip is worth the effort.

After dealing with the horrible traffic on the Mass Pike and Route 9, after wrangling two toddlers plus their gear plus Olivia's gear and after managing to make it thru the Garage Of Doom without scraping my bumper on a single wall, we arrived.

 

Olivia was seeing her CDE today. When we initially started going to Joslin, I wasn't crazy about this woman, but she's really grown on me and we have a good relationship now. She's very down to earth and forthright and I love that in a health care provider. The whole reason we switched from UMass to Joslin was because I felt the endo they had there was very wishy-washy.

 

(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (1)

---

Olivia moved her site to her belly and her numbers have been much better. So thighs are definitely out.

 

We talked about it the other night - she's sick of using her belly. It looks awful, full of bumps and keloids and just generally mangled. I'm going to call her CDE at Joslin to see if we can start using her arms again. We're also going to start moving her sites out more towards her sides, in an effort to get around to her backside. Not her butt, because she says that really hurts, especially when she's sleeping, but in that area above the belt, where she still has some padding.

 

(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (3)

---

Olivia handed out her information sheet to her teachers yesterday.  I just typed up something short, informing them that she has diabetes and what to do if she's running high or low. I stressed that she can treat in class and that she only needs to go to the nurse if she's under 60. 

 

I also stressed that she needs to be accompanied to said nurse.  I found out at the end of the year last year that one of Olivia's teachers wouldn't let anyone go with her.  Fortunately, Olivia's never passed out from a low, but that's not a chance I want to take.  Olivia informed me of this towards the end of the year and I talked to the teacher and the nurse about it, but according to Olivia, it didn't do any good.  

 

(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (2)

---

Chinese food? I can square wave you in a heart beat. Pizza? Ha! I scoff at your cheese, doughy goodness. No, what really gives me white knuckles when it comes to diabetes care isn't always the insulin doses or the site changes. It's the driving. Allow me to explain:

Olivia has had type 1 diabetes for 10 years and for 8 of those 10 years, we've made the drive in to Boston so that she can be seen four times a year at Joslin. It's one of the leading diabetes centers in the country and they take top notch care of her and her diabetes.
(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (1)

---

Olivia's been at camp for five days now. It's always so much quieter around here when she's gone, but it's amazing how much I miss having her around. Oh, sure, the babies are still here, laughing and playing and crying and generally being their cute little selves, but without "LaLa" here, the noise level has dropped dramatically.
The phone doesn't ring, the computer only gets used once in a while. The Disney Channel does not get turned on at all. (No Hannah Montana! Whoohoo!) It's nice, but it's weird. She's always here.
I keep waking by her room and thinking "Gosh, what is she DOING in there?" And then I remember, duh, she isn't here. She's at camp. Having fun. Being a teen-ager. Going to the dances with the Joslin boys. Playing Cities and having backwards day and all sorts of other goofy things they do at camp. And while I miss her intensely, I wouldn't change that for the world. (READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (0)

---

I just finished reading this post over on Momocrats. To say that my blood is boiling would be an understatement.

It's no surprise to people with diabetes (or those who carry insurance for said people) that insurance companies make you jump thru hoops for test strips and doctor's visits. My daughter's endocrinologist is no longer covered by either of the health plans we will have at my husband's new job. I'm not sure what we're going to do about that. I certainly can't afford to pay out of pocket for that. Do we switch and only go to Joslin once a year? Olivia loves her endocrinologist. She does not want to switch, but she's not the one footing the bill - my husband and I are and we can't afford the out-of-pocket cost.
(READ MORE)

Rating (0) 1 2 3 4 5

Email this Comments (2)

---