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Quick! I need your help. Through work, I got the name of an account executive we deal with from the Red Bulls – the professional soccer team in New York. We're playing a bit of phone tag. He called me back and left a message asking me what exactly I had in mind as far as fundraising for the Juvenile Diabetes Research Foundation.

 

The problem is I don't know what I have in mind.

 

What do I have in mind?

 

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Most of the teams who participate in our local JDRF Walk for a Cure are composed of friends and family walking for a child with diabetes. The child gets to be the focus of attention for a fun-filled day of raising awareness for that which normally separates him (or her) from his friends. There's also the smattering of company, corporate, and fraternal teams walking in the name of public service.

 

And then there's the third type of team: those who walk to honor the memory of a loved one killed by diabetes.

 

Memorial teams may be the fewest in number, but they serve as a poignant reminder of why we must walk - why we must continue to walk - and why insulin is not a cure.

 

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When we got out of the car, the first thing Charlie did was adjust his "Charlie's Angels" t-shirt so that his insulin pump was visible to his fellow diabetic comrades.

 

Then he scoped the area for others who sported similar machinery. If there was a "D" signal on the pump, he would have surely activated it.

Calling all diabetics! Calling all diabetics! Rendezvous at the Tastykake table in 5. Tell your mothers you feel low.

We had a gorgeous day filled with sunshine and the support of great friends and family who walked beside us for a cure at Rutgers University's agricultural campus.

 

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The JDRF Promise Ball is coming up in just a matter of two weeks! I can't believe it's already here. I don't feel prepared at all. Sure, I've been fundraising for months and getting all that in order. But the rest of me isn't prepared to take a night to remember diabetes for the past year of my life.

 

Last year's Promise Ball was absolutely amazing. I took three of my friends with me; we got to dress up, valet park my car and eat a fancy dinner. As amazing as it was, it still brings me to tears today (almost one year later). Because the most amazing part was seeing how much was raised in one single night to find a cure for diabetes.

 

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Charlie woke me up at 5:15 am with his pump in one hand, his pants in the other and something clearly on his mind as he spoke a mile a minute.
"I was looking for blue pants and I couldn't find any so I found these black pants but I'm not sure these match so I wanted to see if you could get the blue pants out of the dryer because you said we were leaving right after breakfast and I don't want to be late ,"
Surely this was a dream. Didn't I just close my eyes to go to sleep thirty seconds ago? It couldn't be.
"Charlie, it's 5:15 am. We're not leaving for a while. Go back to bed."
That wasn't about to happen. He even slept in his Charlie's Angels t-shirt. He couldn't contain his excitement. He was so excited that we were greeted with a blood sugar of 300 at 6:45 am after he was fine in the middle of the night.
Still better than the large ketones and vomiting we experienced just prior to last year's walk.
"I don't like that number," Charlie says. (READ MORE)

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I completed my first JDRF Walk this morning! It was very exciting. Despite having no idea what to expect, it was fun and went off without much of a glitch.

 

My final Team Lindsey consisted of three other people and myself. Two girls, two guys. Two diabetics, two non-D's. It was a fun group.

 

We made it the whole 5k walking at a fairly brisk pace. The two diabetics held steady with our blood sugars. I ended the walk at a lovely 136 after eating a small (38 carb) breakfast with no bolus and dialing down the basal by 0.25.

 

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Diabetes is a marathon, not a sprint.

 

From the time we are diagnosed until the moment of our death, we are running a race against skyrocketing and plummeting blood sugars, heart disease, kidney failure, retinopathy, neuropathy, and a whole list of other "-opathies", as well as acute (but potentially fatal) issues such as ketoacidosis...

 

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Between the High Holy Days, my upcoming JDRF walk, and online friends who are mourning recent losses, the deceased have been on my mind lately.

 

More specifically, those who have been lost to diabetes -- whether as a patient or as a victim of someone Driving While Low -- as well as those with diabetes who have died, but not from diabetes.

 

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It's a milestone - but not one worthy of celebration.

Charlie is approaching five years with this despicable disease.

We can't remember Charlie without diabetes. Charlie can't either. His earliest memories will contain images of blood being taken from his fingertips constantly, being poked with sharp objects and juice being forced down his throat in the middle of the night.

Soon we won't be able to remember a time when Charlie wasn't attached to an insulin pump; a time when tape and tubing and needle wasn't fastened to his body 24 hours a day like some sort of medieval torture device.

I want this to all be a dream that seemed so real.

I want diabetes to be forgotten. Gone so long, the word escapes me.

Gone so long, the word is mispronounced.

We need a cure. We need a cure now. 

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In trying to raise money for diabetes research, I've definitely noticed the effect of our declining economy. People just don't have money to give this year. 

With a month left before our team assembles for the Walk to Cure Diabetes, I've reached the stage of our JDRF fundraising campaign where I get a little desperate. When just about every person, place or thing in my periphery is fair game.

For example, driving home from a soccer game and crossing the Delaware River toll bridge. Hmm, I thought. Tolls.

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