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If you experience pain as a result of your diabetes, what have you found to be the best way to alleviate it?

May 25th, 2012
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Yesterday I wrote about how my endocrinologist assumed I was a type 2 simply because of my current weight.


Today I want to tell you why this is such a problem.


When I went in to see my doctor I wanted to talk to him about using Symilin in my diabetes regimen.


He agreed that it may help with postprandial spikes and possibly some weight loss.


(See yesterday's post for the play by play)


He had his nurse bring in a Symilin pen for me to take home and also gave me a prescription for some more pens.

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I went to a movie this past weekend and found myself cracking up as I walked in with all my pockets full of sugar and snacks. I thought "I just hope one of you little movie theatre employees says something to me". I had already thought about what I was going to say if one of them did. "Uh yeah, you see, I'm diabetic so I'm just going to ignore your little 'no outside food or drink policy!'" I'm kidding of course; I wouldn't get ugly with a theatre employee. But I had already decided that I was going to enjoy seeing how they would react or watch them try to muster up the courage to tell me "no"! As I sat down in the theater, I got tickled again. I love it when I start pulling snacks out of my pockets that people sitting around me clearly know I didn't buy there. Anyways, I really found myself loving every minute of the movie I watched called, "Into the Wild".
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Wow.  What an unbelievable adventure life is.  I don't even know where to begin today.  I guess one thing that I wanted to share is that I recently moved.  Last weekend I was in a bad way.  It's no secret - just look at my past entries - that I have struggled with bouts of hard times.

 

So Saturday, after a few longs nights and hours of heavy contemplation, I packed up my stuff and left.  I needed to get out of my home town - away from some feelings that I've been struggling to overcome.  I had made a call that day to a guy whose number and add I found on Craigslist.  The add said that their was a room for rent near the beach in Florida.  I was sold.  I arrived on Sunday night after a total of about 18 hours of driving. 

 

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Sometimes I think it's really hard to separate my life from my diabetes. I've been diabetic since before I can even remember so life has always involved this disease. Now that I'm over sixteen years in, it makes the separation even more difficult. How can I cut out the one part of my life that takes over every second of every day?

 

There was a time when that was easier. A time when I didn't follow every action or thought with something diabetes related. A time where most people didn't know that I was diabetic or see the results of my diabetes in my life. But sadly, that was a time with little control. It's a stage that I went through that I don't want to go back to.

 

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I am Charlie. I am 7 years old. I love hockey! I have one bruther and one sister. My sisters name is Maeve. My bruthers name is Ben. When I first got diabetes I was almost two years old.

 

I don’t remember how it felt when I was littil. one time I past out at a food stoor!I think I was four or five when I past out. I have a pump. When I go in the pool I have to take my pump off.

 

when I am really high I feel low. i like the pump beder then a shot because you have to take shots all day with a pump you get a bolus. the pump gives me insulin. my littil bruther is four and my sister is ten. diabetes can’t stop me from dowing anything. There are a lot of difrint kides of pumps. i have a minnimed. it is blue.

 

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Diabetes is so much about dependence.  Without insulin, my end result is pretty clear.  I'll die.  And not a pretty, easy death either.  A misery, crap-show of a death that no one wants to experience.  That dependence does so much to a person's psyche after even thirty minutes with the disease, let alone thirty years. 

 

One effect it has had on me is to make me, in most other ways, very independent, very adaptable, and very much able to fly by the seat of my pants.  Those are all good things, really.  Except when they're not.  

 

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I wanted to update you on my CGMS and let you know my thoughts on it so far.
 
 
First off I must tell you, and those of you who have the Minimed CGM can give there two cents here, but EVERY time I get ready to insert a new sensor, I stop and stare at that needle!
 
 
That needle is intimidating! 
 
 
"Wow, that looks like a sewing needle," my son said and I stood there holding the inserter against my skin finding the courage to push the button on the plunger.

 
And so far, it has not hurt at all. It has just been freaking out on my part. 

 
So once I get past that, I love it.



 

I woke up this morning thinking of a friend, Jennifer Stowers-Quintal. Jen was a promising teacher, artist, musician and dancer from the Boston area. The light of so many lives, including her amazing parents, her fiancé and her students at the Blackstone Elementary School in the South End of Boston, Jen passed away in 2003 at the age of 23 just 3 months after surviving the Station Nightclub Fire and 6 weeks before her planned wedding.

 

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I'm battling pretty severe nausea again this evening. I decided to stop the Metformin and just stay on the Wellbutrin until my body adjusted. But at this moment, I'm greatly reconsidering that decision and thinking that I might stop the Wellbutrin altogether. I'm not sure that it's the right choice for me or for the people who love me.

 

I didn't exactly plan to tell my mom this evening that I'd started the antidepressant, but it came up and I got exactly what I expected. A lot of shock and a lack of encouragement about being on them. She doesn't believe that my life is bad enough to warrant antidepressants (because in her mind, they are only to be used for extremely bad situations like the death of a child or a sick spouse or some other catastrophe).

 

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Snapshots:

 

Fingertips that look dirty, but they're just scars.

 

Connect the dots patterns on my thighs.  Pump site marks.

 

The scoff when I pick up the cake.  And eat it too.

 

Big blue bruise on my arm from that insulin injection.  Ouch.

 

268 on the screen.  58 on the screen. 99 on the screen.  Two out of three ain't bad.

 

I told you I hate you.  My bloodsugar was low.  Guilt.

 

My back hurts.  Not kidney failure, yard work. 

 

Spot in my vision.  Nope, just something in my contact lense. 

 

Foot tingling.  It was under your butt, dummy.

 

Cure?  Nope, cinnamon and disappointment.  

 

Hope?  Always.

 

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Nicole Purcell
Nicole PurcellNicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.

(Read More)
Julia
JuliaJulia lives behind the Tofu Curtain, in the Pioneer Valley, in Western Massachusetts. It's a nice place. She likes it there. Her eldest daughter, Olivia, has type 1 diabetes. She's also 13. It's a real toss-up as to which is more difficult -- the diabetes or the teen-age drama. (Read More)
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