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May 25th, 2012
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Charlie Bucket, that is. From Willy Wonka and the Chocolate Factory.

 

 

(Wonka plays the musical combination, opening the door to the Chocolate Room. The group rushes in excitedly.)

 

GRANDPA JOE: (On phone to Mrs. Bucket) OK, so we’re here. He was 57 when we were waiting outside so I gave him two Squelchy Snorters. He wants to have a handful of whipped cream from a giant mushroom, about a dozen jelly beans from a jelly bean tree and he wants to drink chocolate from a chocolate river. How many carbs do you think?

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Charlie turns 7 tomorrow. Can you believe it? 7!

 

"So where do you want to go out to eat for your birthday?" I asked him last night.

 

"Surprise me," he answered.

 

"But make sure it's a place where all the waiters sing Happy Birthday to me," he added.

 

It's funny that he wants that. That sort of public revelry would be hell on Earth for Susanne or me if we were the intended target.

 

He looked puzzled.

 

"But how will they know it's my birthday? Do all of the restaurants have a big list of all the kids' birthdays?"

 

"No," I said. "The restaurants don't have Santa-type power. Mom or dad will tell the waiter or waitress that it's your birthday."

 

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I'm sure I would have had a huge goofy smile on my face watching Charlie play baseball even if he was free of disease. But something about watching the kid with diabetes out-hustle every other kid on the field, just made my heart burst wide open with pride.
He wasn't the fastest. He didn't hit the ball the furthest. He didn't throw the hardest. But sweet lord, that little firecracker played with passion.
Planted on the pitcher's mound, he became an instant fan favorite by throwing his body in front of sharply hit line drives destined for the deep edges of the outfield. The parents and coaches laughed as he looked like a hockey goalie under assault, flopping around on the ground, making save after save.
Before practice, I wondered what to do with the pump. (READ MORE)


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Charlie crosses home plate, tosses his helmet on the ground and sits with the rest of his team. The day is beautiful. The grass is cool. He lays back to bask in it.


When he lays flat on his back, he exposes his robot parts. He's normally disconnected for baseball. But not today.  Immediately, his teammates crawl on top of him like ants on an abandoned Popsicle.


"What is it?" one boy asks.


They poke at the foreign object.


"It's an iPod Nano!" a blonde-haired boy with a runny nose says authoritatively in between batting practice swings.


"Uh uh!" another boy disputes. "It's a game."


"I just farted on you," a third boy tells Charlie.

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In February and March we sought the guidance of diabetes author and coach Gary Scheiner to see if we too could "Think Like a Pancreas." Our few meetings energized us briefly, but soon enough, we were back to feeling lost and utterly confused. After about five months, the pump wasn't working out as we hoped it would.
In April we decided to throw out all carb ratios and basal levels and begin with a clean slate, following more pump frustrations and a disappointing A1c of 9.6. We felt we hit rock bottom. We worked daily with the pump educator, tweaking and tweaking and tweaking and scratching our heads until we could tweak and scratch no more. (READ MORE)


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Happy 6th Birthday, Charlie! For a play-by-play of how Charlie stormed into the world, check out my blog Up High, Down Low.
On Sunday, we'll celebrate Charlie's birthday Harry Potter style at a local magic shop. Then we'll celebrate again as the New York Giants win the Super Bowl in one of the greatest upsets of all time. Have a nice weekend. (READ MORE)


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Ben lowered his head and was right on my heels in the dark as we took cover behind a neon-outlined wall near the yellow base. He looked terrified.  I peered around the corner and pointed directions to him with two fingers like they do in combat films. "Stay down," I mouthed. "I'm going out there."

 

 A 6-year-old girl was approaching slowly - crouching low and walking sideways with her gun raised steady above her shoulders. She was using "alpha, bravo, Charlie" phonetics and switching from English to French and this frightened me.  She was trouble.

 

In the near pitch-black labyrinth that is laser tag, I had no clue of Charlie's whereabouts. I didn't think of it at the time, but a severe hypoglycemic event would be very bad in this setting; especially it being his birthday party.

 

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I am Charlie. I am 7 years old. I love hockey! I have one bruther and one sister. My sisters name is Maeve. My bruthers name is Ben. When I first got diabetes I was almost two years old.

 

I don’t remember how it felt when I was littil. one time I past out at a food stoor!I think I was four or five when I past out. I have a pump. When I go in the pool I have to take my pump off.

 

when I am really high I feel low. i like the pump beder then a shot because you have to take shots all day with a pump you get a bolus. the pump gives me insulin. my littil bruther is four and my sister is ten. diabetes can’t stop me from dowing anything. There are a lot of difrint kides of pumps. i have a minnimed. it is blue.

 

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Well, Charlie has officially gone continuous. He’s CGM-ing. He’s transmitting. He’s in real-time.

 

It started a little iffy in the doctor’s office when after the sensor was put on Charlie and connected to the transmitter, the green light that was supposed to come on, didn’t. Not for a while.

 

I found it a little unsettling that the technology we will be relying upon to keep our son healthy and safe only started working after futzing around with it for 20 minutes. We ended up using the old standby for just about any household appliance – unplug and plug back in.

 

When the educator demonstrated the insertion technique on a mushy belly prop, she pulled the needle out with sleight of hand, cupping it like a magician would a disappearing quarter so that Charlie wouldn’t be alarmed by its size.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
George Simmons
George SimmonsGeorge Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)
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