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May 24th, 2012
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I used the blue and white checkered fabric that was left over from No. 3's Dorothy Halloween costume. I had just needed a small pouch that I could hang from the hook where I hang my towel next to the shower. I needed a place to put my Dexcom 7 Plus receiver while I was in the shower since the leather case that came with it didn't stay hooked to the shower curtain as well as the Dexcom 7's case.

 

It's been months -- I can't really remember how many -- since I stopped using Dex. The pouch still hangs from the hook in the bathroom, buried beneath my towels, and Dex lies lonely in the top drawer of my bed-side table along with emergency Sweetarts, juice boxes and grape glucose tabs.

 

I miss it. And I don't. I think I don't miss it more than I do.

 

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I wanted to update you on my CGMS and let you know my thoughts on it so far.
 
 
First off I must tell you, and those of you who have the Minimed CGM can give there two cents here, but EVERY time I get ready to insert a new sensor, I stop and stare at that needle!
 
 
That needle is intimidating! 
 
 
"Wow, that looks like a sewing needle," my son said and I stood there holding the inserter against my skin finding the courage to push the button on the plunger.

 
And so far, it has not hurt at all. It has just been freaking out on my part. 

 
So once I get past that, I love it.



 CGMS Denial Day

 

 

I want to be healthy. I want to live as long as I can. I want to be complication free. I want to not have diabetes.

 

3 of those 4 statements above I can actually do something about. I can watch what I eat, exercise, and check my blood sugar all the time. I cannot cure myself but if I can take care of the other three then I would be doing pretty good in my book.

 

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The Past

 

Looking back on 2008 from a "Charlie's diabetes" perspective, it was a pretty good year. His A1c took downward baby steps from 8.1 to 7.9 and then to 7.8 at our last endo visit in November.

 

In 2008, he began identifying total carbs in the snacks he ate (and soon his whole class was doing it at snack time - sorry Mrs. R), but still showed no desire to begin testing his own blood sugar. We began having him bolus himself on occasion under our supervision. He seemed to like the idea of giving himself insulin; being the one to press the buttons.

 

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I must say. Ketones may not help to make the season bright, but the continuous glucose monitor absolutely does. Our first Christmas with the CGM and it was a pleasure to enjoy the day without attacking Charlie all day a la Norman Bates in Psycho. Christmas with the CGM - should be a Hallmark Channel holiday classic.

 

Holidays are usually pretty rough on Charlie's blood sugars, but his numbers were decent this Christmas. I think the trouble begins with grazing on appetizers.

 

"Charlie, how many of those crackers did you eat?"

 

[shrugs shoulders] "I dunno. Maybe six?"

 

We either over-bolus or under-bolus. It's a holiday tradition.  

 

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Walking around this morning while getting dressed for work Toohey flopped around on my left hip and Dex was flopping on the right.
 

The Mr. laughed. "You look like a gunslinger," he said.
 

Night one with Dex was good and bad. I clip Toohey to my underwear or pants when I sleep, but I left Dex on the nightstand last night. As I turned my back to the nightstand, though, I wondered if Dex would still be able to pick up the signal from my abdomen. Obviously it would, I thought as I drifted off, otherwise it wouldn't be an effective tool.
 

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I’m sitting here in the waiting room while Charlie is in with the therapist talking about his obsessive compulsive behavior. I’m wondering if it’s a requirement for waiting rooms in doctors offices to have bad art on the walls and bad music playing.

 

We’ve seen some improvement with Charlie. Not sure if it’s a result of the therapy or that he’s back at school and keeping busy. It might not be a coincidence that his compulsions were at its worst during the summer break on days that he was sitting around the house bored and doing nothing.

 

As part of his therapy treatment, he has been trying to cut back on the blood sugar testing which had gotten out of control. It has only been one week of school, but he’s done real well with that. Again, I think the distraction of school is key. And the sensor.

 

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I know that flexible spending accounts are HUGE! but 2010 will be the first year I've signed up for the benefit. I know, right? But frankly we've never had the kind of wiggle room in our budget to allow for more money to be taken out of our paychecks and then wait to get reimbursed after we spend money. Or however it works. I never paid attention because I knew I couldn't do it.

 

OK, I'm digressing a little. So in November my company held a mandatory benefits meeting for all employees so we could talk about changes for 2010. I typically don't change anything so I find myself tuning a lot of that information out. Until I heard someone talking about a "preloaded debit card for FSA."

 

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She calls me on the phone at work. With a lack of privacy, there’s not much I can say.

 

“I just hate this disease so much, you know???”

 

“mmhmm.”

 

“I wish it was a physical thing that I could just rip out of him.”

 

“mmhmm.”

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Once you get past the congestion of sheer numbers and the mix of colors, designs, and graphic techniques, there's one thing that stands out on every team shirt at the Seaside Heights, NJ JDRF Walk: cure. It's not just because the event is called the Walk to Cure Diabetes (emphasis mine), or because insulin is "not a cure" for autoimmune diabetes. It's not because parents are struggling to pay for their children's pumps and CGMs, or because adversity breeds strength.

 

Find a Cure

 

The reason we see the word cure is same reason we see another word on team names and slogans, and that word is hope.

 

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Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
Scott Marvel
Scott MarvelScott lives an active life with type 1 diabetes. Aiming to stay on top of his unexpected diagnosis, he puts a strong foot forward to stay in control.
Living life in the sun and fulfilling his dreams, Scott tries to educate himself, and others, on the unquestionable possibilities of a life with type 1 diabetes.
(Read More)
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