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Another question from a reader. Kat Diego asks: How was the switch to middle school? My daughter is very responsible and pretty much is in charge of her care while in school. But in midddle school, she won't have one teacher, she'll have 6 or 8. How'd your daughter deal with the transition? Do you have a 504 plan? Thanks for your help!

Olivia started middle school in the fifth grade and the kids were kept pretty segregated from one another at that age (which I loved). Fifth grade was fine for her, even with switching teachers. She was well looked after and I felt comfortable with her there.
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What the hell just happened?

 

Remember me blabbing away about being so fortunate and grateful to the school for providing classroom aides for Charlie? Aides, who would blend into the background and seamlessly check Charlie's blood sugar, count out carbs and give him insulin? Remember how Susanne spent the first day of school training the aides in how to use the pump? Remember how we met with the school officials and how they all signed off on the 504 plan? Remember how it was the school's idea in the first place to hire these aides for the very purpose of testing blood sugar and administrating insulin?

Well, forget all that.

Oh, and remember the morning aide who has type 2 diabetes? She has really been working out great.

She's leaving. Found another job apparently. Leaving the glamorous life of pricking fingers and counting crackers.

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Well, we did it. Charlie got through kindergarten pretty much unscathed. Last year at this time we were nervous wrecks about sending Charlie to school. The school had no experience with a child with diabetes as young as Charlie. They were noticeably nervous as well. We put a plan in place and basically just hoped for the best.

We couldn't be happier with how the school year went.

Susanne and I met yesterday with the principal, the new nurse, Charlie's teacher, Charlie's health aide (Mrs. D) and a representative of the school district to review how the year went and to revise our 504 plan to reflect the fact that EVERYTHING WILL CHANGE!!!!!!!!!!!!! next year.

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During our 504 meeting with the school staff, my wife and I mentioned that we'd like to read a short children's book to Charlie's classmates so that they could have a basic understanding of diabetes. Surely they would want to know why he was putting a blood sample into a strange device every couple of hours and why he was able to eat at times that they weren't.
The teacher and the principal thought it was a good idea, but the district official, who was there to make sure everything was kosher, suggested the principal have a look at the book before approving A Ruler, a Number 2 Pencil and Diabetes by Dr. Troy Apaches.
My initial thought was that this was strange. I mean it's a published children's book. What could possibly be offensive? Though, truth be told, it had been years since I read the book. I suppose I could have forgotten about some of the content. (READ MORE)

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I never thought Susanne would actually go. Not with the 3 year old. He can't sit still for more than five minutes. But we both agreed it would be pretty cool if she could swing it.

She called me at work with a definite zeal in her voice.

"I'm here!"

It's not every day that a potential vice president comes to your town; to your local middle school.

Joe and Jill Biden came to town to talk about education, the economy and healthcare. The only obstacle standing in Susanne's way was Ben. They needed to arrive at the school an hour-and-a-half before the Bidens were to speak. That's a lot of patience to ask of a 3 year old (our 3 year old). It would be nothing short of a miracle if Ben was to last long enough to see them speak.

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Olivia hasn't had too many problems with her teachers over the years. Most have been very accepting of her diabetes and the care she needs to take with it while she's in class. I have a packet of stuff I give to all of her teachers at the beginning of each year and thus far, that seems to be sufficient.

This year, though, she got switched a couple of weeks into the school year. She got a new English teacher and I just assumed that the old one would pass along the diabetes info. Wrong.
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It was 18 years ago today that I was diagnosed with type 1 diabetes.

I was a senior in high school, had lots of friends, a steady girlfriend, was drum major of our band, and was always on the go. I had recently lost a bunch of weight which I attributed to my fast paced life of practices, dates, parties, and other stuff. I dropped 60 pounds with no effort at all. Since I had always been overweight I was pretty excited.

Night after night I would go to bed with a giant cup of water next to my bed that I would continue to drink all night as I woke up in between to go to the bathroom. I had to go to the bathroom all day long but that was only because I drank a lot. No biggie.

Well, now I can look back and see what my body was telling me.

One night at Drum rehearsal my band director asked me if I felt okay. I felt a little dizzy but had almost grown accustomed to it so I told him I felt fine.

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Olivia handed out her information sheet to her teachers yesterday.  I just typed up something short, informing them that she has diabetes and what to do if she's running high or low. I stressed that she can treat in class and that she only needs to go to the nurse if she's under 60. 

 

I also stressed that she needs to be accompanied to said nurse.  I found out at the end of the year last year that one of Olivia's teachers wouldn't let anyone go with her.  Fortunately, Olivia's never passed out from a low, but that's not a chance I want to take.  Olivia informed me of this towards the end of the year and I talked to the teacher and the nurse about it, but according to Olivia, it didn't do any good.  

 

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I recently solicited questions and got a taker (whoo!). katdiego asked: "Hi Julia, My daughter is almost 11, dx'd at age 6, wears a pump. I'm curious about puberty. At what age did you start noticing a monthly trend? What can I expect? I had heard that girls start showing an increase in insulin needs monthly for quite some time before they actually start to menstrate. And what about teenage rebellion? Does your daughter still take care of herself? Any advice on keeping you child engaged and conscientious about their diabetes care? Has she experienced burnout? I apologize if you have talked about these things previously. "

She also gave me some lovely compliments, so thanks, kat.
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