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February 8th, 2012
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Today Susanne is meeting with the guidance counselor, Charlie’s teacher, the school nurse and the principal to go over our revised 504 plan. Someone from the district will also be there to make sure everything is legit. I wish I could be there with her but I can’t get out of work.

 

Sometimes I wonder if we’re going overboard with our 504 plan. It’s sounding less like a constructive 504 plan and more like an unreasonable list of demands.

 

Take item #4 for instance.

 

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Another question from a reader. Kat Diego asks: How was the switch to middle school? My daughter is very responsible and pretty much is in charge of her care while in school. But in midddle school, she won't have one teacher, she'll have 6 or 8. How'd your daughter deal with the transition? Do you have a 504 plan? Thanks for your help!

Olivia started middle school in the fifth grade and the kids were kept pretty segregated from one another at that age (which I loved). Fifth grade was fine for her, even with switching teachers. She was well looked after and I felt comfortable with her there.
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First day of school. Schmoozing with new classmates and meeting the class pet – a hermit crab unanimously named Shelly. No tests as far as the eye can see.

 

Actually, there was one test. Just one hour into the new school year and Charlie tested his new teacher with a raised hand and a "I think I’m low." I was pleased to hear that it was all handled as discussed just the day before in the 504 meeting. Teacher called nurse. Nurse came to classroom and escorted Charlie to her office where she tested him. 62.

 

The plan is this:

 

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What the hell just happened?

 

Remember me blabbing away about being so fortunate and grateful to the school for providing classroom aides for Charlie? Aides, who would blend into the background and seamlessly check Charlie's blood sugar, count out carbs and give him insulin? Remember how Susanne spent the first day of school training the aides in how to use the pump? Remember how we met with the school officials and how they all signed off on the 504 plan? Remember how it was the school's idea in the first place to hire these aides for the very purpose of testing blood sugar and administrating insulin?


Well, forget all that.


Oh, and remember the morning aide who has type 2 diabetes? She has really been working out great.


She's leaving. Found another job apparently. Leaving the glamorous life of pricking fingers and counting crackers.

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Well, we did it. Charlie got through kindergarten pretty much unscathed. Last year at this time we were nervous wrecks about sending Charlie to school. The school had no experience with a child with diabetes as young as Charlie. They were noticeably nervous as well. We put a plan in place and basically just hoped for the best.


We couldn't be happier with how the school year went.


Susanne and I met yesterday with the principal, the new nurse, Charlie's teacher, Charlie's health aide (Mrs. D) and a representative of the school district to review how the year went and to revise our 504 plan to reflect the fact that EVERYTHING WILL CHANGE!!!!!!!!!!!!! next year.

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During our 504 meeting with the school staff, my wife and I mentioned that we'd like to read a short children's book to Charlie's classmates so that they could have a basic understanding of diabetes. Surely they would want to know why he was putting a blood sample into a strange device every couple of hours and why he was able to eat at times that they weren't.
The teacher and the principal thought it was a good idea, but the district official, who was there to make sure everything was kosher, suggested the principal have a look at the book before approving A Ruler, a Number 2 Pencil and Diabetes by Dr. Troy Apaches.
My initial thought was that this was strange. I mean it's a published children's book. What could possibly be offensive? Though, truth be told, it had been years since I read the book. I suppose I could have forgotten about some of the content. (READ MORE)


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I never thought Susanne would actually go. Not with the 3 year old. He can't sit still for more than five minutes. But we both agreed it would be pretty cool if she could swing it.


She called me at work with a definite zeal in her voice.


"I'm here!"


It's not every day that a potential vice president comes to your town; to your local middle school.


Joe and Jill Biden came to town to talk about education, the economy and healthcare. The only obstacle standing in Susanne's way was Ben. They needed to arrive at the school an hour-and-a-half before the Bidens were to speak. That's a lot of patience to ask of a 3 year old (our 3 year old). It would be nothing short of a miracle if Ben was to last long enough to see them speak.

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Well, the test strip canisters have been polished, the needles have been sharpened, the sensor has been freshly inserted and calibrated and the meter has been waxed and detailed.

 

It’s the first day of school.

 

Despite the great blog material it generates, we have decided that it would be in Charlie’s best interest if we ended my traditional first day of school diabetes discussion and book reading to the class. We feel we need to salvage what little street cred Charlie has left.

 

I will miss some of the wonderful questions from Charlie’s classmates.

 

"Can Charlie drink beer?" was a classic last year.

 

Of course he can!

 

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Ah, the first day of school.

 

 

 

 

 

 

 

 

 

 

Now that school is starting back again, it occurred to me that I hardly mentioned the last school year. I suppose that's a good thing. Couldn't have been all that bad if I didn't blog about it.

 

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Olivia hasn't had too many problems with her teachers over the years. Most have been very accepting of her diabetes and the care she needs to take with it while she's in class. I have a packet of stuff I give to all of her teachers at the beginning of each year and thus far, that seems to be sufficient.

This year, though, she got switched a couple of weeks into the school year. She got a new English teacher and I just assumed that the old one would pass along the diabetes info. Wrong.
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Lindsey Guerin
Lindsey GuerinLindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog! (Read More)
Carey Potash
Carey PotashCarey is a full-time hater of diabetes. The benefits stink. His 7-year-old son, Charlie, has been giving he and his wife the finger since November of 2003. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)
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