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July 5th, 2008
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Prior to the birth of my son, I'd never been in the hospital before. I know the nurses have experience treating diabetes, but I was still worried about how my blood sugar would be managed.

Every diabetic reacts differently to the same situations. And living with the disease day in and day out for a few years-and managing to keep my a1c under 6 the whole time-really makes me an expert in what works for me and what doesn't.

What doesn't work for me is white flour, white rice, white potatoes, sugar or corn syrup. What does work is lean protein, healthy fats, whole grains, vegetables and fresh fruit, and, most importantly, food combining.

Know what else doesn't work for me? The standard American Dietetic Association exchange diet. It's too high in carbs and too low in fat and protein for me. Guess what the doctor ordered. And guess what came on the tray: white bread, potatoes, juice (made with corn syrup), starchy veggies and a salad, alongside about 2 ounces of meat and a pouch of fat-free salad dressing (made with corn syrup).

My diet wasn't the only thing out of my control. I'd packed my own insulin and meter, as my doctor said I should be allowed to manage my blood sugar myself, but the nurse on duty wouldn't let me use my insulin. Instead, she followed some standard protocol based on my premeal blood sugar and not the carb counting dosing method I'd used at home.

To top it off, on more than one occasion, a nurse would take my postmeal reading to find it was higher than the premeal protocol and go to give me insulin. If I didn't speak up, who knows what would have happened.

While I certainly didn't want any highs-I'd been so vigilant about my blood sugar for the previous nine months, I wasn't about to ruin it in the critical final days-I was also worried about lows. I had a stash of juice boxes and glucose tabs just in case.

The nurse who wouldn't let me take my own insulin also didn't want me taking my own blood sugar. I could prick my finger myself, but I couldn't use my meter. They needed to use the hospital meter for safety purposes, she said.

The hospital meter, however, is slow. And when you're low there isn't time to waste. There's no time to push the call button, wait for a nurse to find a glucose monitor, then code the machine, scan my ID bracelet, scan her ID badge and then take my blood sugar and wait for the results. The process takes a good 10 minutes.

I tried my best to humor them, but a few times I was feeling too funky to wait. Once, I used my own meter and my blood sugar was 54. A minor problem. The major problem: my juice box was across the room and I was tethered to monitors and trapped in bed.

When the nurse came in, I asked her to pass me some juice from my bag. She did, and as my shaky hands fumbled with the straw, I explained my blood sugar was low. Instead of helping me, she lashed out at me. By drinking a juice box I had brought from home, I was "self-medicating" and that was very dangerous. I could have had a reaction to the juice, she said, and no one would know what was wrong with me.

Hello??? First off, the only reaction I'm going to have from juice is a possible rebound high, during which I would be completely conscious. Second, juicy-juice is not self-medicating. Maybe if it was mixed with vodka in a tumbler of ice you could call it self-medicating.

I sucked back the juice and my hands soon stopped shaking from the low, but as the nurse continued to lecture me, my hands started shaking from anger. By being vigilant about my blood sugar and actively caring about treating highs and lows, the nurse said I was a control freak. She really used those words.

And like Elaine in Seinfeld, I'm pretty sure she put those words in my chart. From that moment on, every nurse I encountered made a comment about my "control." Some were nice and praised me for having good control, while others said I needed to let go and go with the flow.

The sad part is people with diabetes are often scolded for not having good control, yet when we take control and do our best to take care of our disease, we're too controlling.



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I know wat u mean about hospitals & their "protocols". I was locked up in a mental ward, the dr wouldn't let me use my machine, eat my diet, or use my treatments for highs or lows. I was only in there a week but it was a week in HELL. I'm never going back if I can help it. Shane


I am so glad you wrote this comment. I was diagnosed with type 2 diabetes in Dec 2006 when my blood sugar climbed to 518. I was put in the hospital to bring it down, but quickly found out it was the most dangerous place for me to be. The dietician approved a diet including juice with corn syrup, white bread, rice, pototoes, sugary jello, and a little meat. At that time, I knew nothing about diabetic diets, but realized that everything they gave me to eat had some form of sugar or syrup in it. I also noticed that my blood sugar would be ok before meals and climbed through the roof each time they fed me. I questionned it and was told that if the dietician said it was ok, then who am I to question it. So not knowing what to do and scared to be in the hospital any longer, I started just eating the meat on the tray which had no sugar and drinking water. The nurses and doctors soon started complimenting me on my blood sugar being close to normal and signed my release from the hospital. My mom was so happy to have me out of there, as she swears these people were poisonning me. I know that is not true, but there is a level of carelessness and risk in this environment. When I got hospitalized for surgery in Sep, I was on my guard for the food, but did not know about sugar in your IV drip. My blood sugar kept climbing and they started giving insulin shots which I never needed before because they claim the surgery had stressed me out and raised my blood sugar. Finally, it was my boyfriend who read the IV bag and saw that it had glucose in it! it took us 2 hours to get the nurses to switch it out as they wanted a doctor to authorize the change to glucose-free IV even though my bracelet said diabetic AND allergic to sugar & carbs (which I had them add at check-in to be on the safe side). No one apologized and I was brought sugary jello, sugary juice, and sugary applesauce, when it was time to start me on liquids. The moral of the story: if you are diabetic and have to be in the hospital, bring your meter, bring your medicine and glucose tables, and keep your eyes open. Don't be afraid to question the nurses and doctors and dieticians's judgment as the person who cares about you the most is you. They are well meaning but have a lot of people to take care of and things get overlooked. I was also labeled as a "difficult patient" because I dared to question them and totally ignored their admonitions about checking my own blood sugar and refusing their sugary or high-carb foods. After you die, your family will get an apology and/or money, but that won't bring you back to life.


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Rebecca Abma
What happens when a health writer develops a chronic illness? As Rebecca K. Abma can tell you, it turns into an obsession. Since being diagnosed with type 2 diabetes in December 2003, 90 percent of her non-work computer time is spent researching the disease and chatting with fellow diabetics. (Read More)

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Michelle Kowalski
Michelle Kowalski, a writer, editor and photography hobbiest in Missouri, has had type 2 diabetes since February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes.(Read More)

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