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July 6th, 2008
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JDRF

We met because we have diabetes. Our lives became linked by pump tubing and test strip trails, by the difficulty of lows and the joy of staying stable and feeling healthy, by the words we used to describe the struggles and the victories. But we became friends because we have so much more in common. A love of words and books and strawberry tea, an appreciation for twisted or immature humor, and goofy cats that drive us crazy. We would like one another, even if we didn't share diabetes. But diabetes bonds us as tightly, if not more tightly, than any of our other commonalities. So, when Kerri from Six Until Me invited me to join Team Six Until Me at the Providence JDRF walk, I was, of course, on board.

Team Six Until Me included Shannon from Mom Wants a Cure, her husband Jeff and their kids, Kerri's bestfriend Batman, her fiance Chris, her mom,two aunts, and two cousins, and her future sister-in-law and cute as a freaking button future niece. And what a team we had. Charging through Roger Williams Park, chatting and laughing, stopping to test when we needed, and being a part of a sea of people who know exactly what this disease is like. The weather was sunny, the light coming through the trees and projecting the orange gold green red of the leaves onto us. I popped candied orange slices and posed as a bug for Batman's camera (I'm pretty sure I'm going to regret that last). It was a simple walk in the park - except that the reminders of diabetes were everywhere.

We talked quietly about how pained we were when we saw a toddler in a stroller with his family gathered around trying to get him to take juice for a low. We talked about how unfair it was to see a team in pink shirts that said "Melissa's Team" and an infant in a pink onesie announcing "I am Melissa." We watched as a boy no older than three, with an Ice Blue Cozmo clipped to his hip, posed near one of the characters at the walk. We saw a line of teenage girls wearing "Molly's Team" t-shirts and tried to guess - unsuccessfully, I might add - which was Molly. We marveled at just how many children there were in the sea of walkers - and just how many insulin pumps. We didn't bat an eyelash when we passed walkers at the side of the road with their test kits out or when we saw a family standing as a lone child in their midst sucked on a juice box.

And I couldn't have been prouder of our team, of the people that diabetes has found me crossing paths with.

But today also reminded me that type 1 diabetes is a sneaky beast. It lives in most us, quiet but dangerous. It lurks and waits for us to let our guard down. But to look at many of us, you would never know that we live our lives in a fight to stay healthy that's become so everyday, we barely notice it. And certainly, not many others notice it. But just because it is virtually invisible, doesn't make it any less threatening, any less dangerous.

This disease needs a cure. Because a toddler shouldn't be forced to have juice to save his life. And a mother shouldn't have to test the bloodsugar of her infant daughter. And a teenage girl shouldn't have to worry about telling her friends she has diabetes. And little boys should pose with characters at Disneyland, not at a walk to raise money to cure their chronic illness. And none of us should have to fear the complications that might be waiting around the corner.

I hope someday I'll be a part of a sea of people who know what it WAS like to have diabetes in their lives. And I hope I walk, alongside the friends diabetes has brought me, to celebrate our cure.

Until then, I will take every opportunity I have to move us closer to that glorious day - and that walk in the park I dream of.



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Beautiful post, Nicole.


You have me crying this morning, Nicole.

You described so elegantly why we need a cure.


Nicole

You really got me with the pictures in your story. You probably already know about diabetes365, and one of the main reasons I do it to make the invisible visible. We do way too good a job at not showing how diabetes affects us that people aren't even aware of it.

Thanks for walking for all of us, including me. I really appreciate it.


It's always good to see you! You and Kerri certainly helped make the 3 miles go by fast!! I hope we can all do it again next year.


Having you guys there, walking alongside my family members and childhood friends, made me grin. It means so much to have people who really understand - and who are friends, too.


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Nicole Purcell
Nicole has lived successfully with type 1 diabetes for 25 years. She hopes that by writing about her experiences, she can help others to face diabetes - and its challenges - head on.(Read More)

Latest Posts: Baby Steps... | Off the Tracks... And 26 years.... | Disappointing Body, I Still Love You So...

Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 5-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children.(Read More)

Latest Posts: Active Insulin | Adjusting Your Happiness Levels | Planet Diabetes

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