It's 3:14 am. Do you know what your child's blood sugar is?
I do. It's 377.
I wake up Susanne, and tell her we've got a problem. I fetch the insulin and a needle and rest my wobbly head in my hands while she flicks a stubborn air bubble. I climb halfway up the bunk bed and jab Charlie in the back of the arm. He wakes briefly and swats at his arm as if just bitten by a mosquito.
It's one of those moments where diabetes shows you just how powerful it can be. A correction of a blood sugar of 289 at 1 am does nothing. Instead his blood sugar soars angrily to 377. It's something bigger than us and bigger than our seemingly paltry man-made insulin.
As Police Chief Brody would say, "we're gonna need a bigger boat."
When you're cutting a plastic water bottle with a scissor with eyes half-open at 3:30 in the morning because you have no plastic cups for your kid to pee in, you gain a particular and unique perspective on the state of your life. This disease really f-ing sucks.
Back in bed with eyes staring at the ceiling, my heart does the same thing it always does when he's this high. It palpitates as if on an amphetamine high.
Susanne is also staring at the ceiling - at faded glow-in-the-dark stickers of planets and shooting stars - still there from when our daughter occupied the room.
"I hate diabetes," she says.
The next day was supposed to be a fun day; Just me and Charlie. Again, we found ourselves battling whatever it was that we were immersed in. We increased and increased and increased temporary basals. We corrected and corrected and corrected. I dropped internal F-bomb after internal F-bomb.
Until finally ...
The tide changed.
And diabetes showed us some mercy.





i always leave your blog singing a song in my head; this time it's duffy.
glad to see things turned around in time for you day together. have you ever considered using a blood ketone meter? we just ordered one online but haven't had to use it yet.
Ah, yes. Good tune. We have used blood before but I guess we're most comfortable with urine. How's that for a sentence if taken out of context. Why do things the easier way, right?
My stomach hurts just reading that. I feel your pain. But those pics are the best, glad things got better.
I've noticed the same thing when correcting overnight highs. It's gotten to the point where if he's above 20 at midnight, I'll add a .1 or .2 to the recommended correction. That seems to do the trick for us, and by 3am, he's actually come down to the high 100's.
Oh, Carey. I want to kill diabetes. For reals. It's been a rough go for me over the past week or two - highs and lows with no good reason. The past two days I've gotten some mercy too. But it sure feels slim, that mercy - measly - in the face of all we face. Of course, you've got that smile - that one in that last picture. The smile of a little boy having a great day - and I guess that's mercy enough. Sending you the best thoughts. xoxo
The SMILE on Charlies face kicks diabetes ASS... Love to you and your Family !!!! ;)
Kelly: Thank you! I know you do feel my pain. I wish you didn't.
Mom2atype1: I'm assuming that's 200 and not 20. Ha! Thanks. Crazy how we find our little strategies.
Nicole: Sorry you're having a rough patch. For reals. Many thanks for the good wishes. It was a really good day, eventually.
theresa: thanks so much! maybe those smiles are that much sweeter after going through such hell to get there.
lol-you're right, at 20 i'm main-lining suger into him :)