Well, Charlie has officially gone continuous. He’s CGM-ing. He’s transmitting. He’s in real-time.
It started a little iffy in the doctor’s office when after the sensor was put on Charlie and connected to the transmitter, the green light that was supposed to come on, didn’t. Not for a while.
I found it a little unsettling that the technology we will be relying upon to keep our son healthy and safe only started working after futzing around with it for 20 minutes. We ended up using the old standby for just about any household appliance – unplug and plug back in.
When the educator demonstrated the insertion technique on a mushy belly prop, she pulled the needle out with sleight of hand, cupping it like a magician would a disappearing quarter so that Charlie wouldn’t be alarmed by its size.
Charlie turned toward me and squeezed my arms tight and clenched his teeth as Susanne pulled the trigger. He didn’t react to the initial pop, but did let out an "oooooooooohhhh!!!" when the needle was eased back out.
We were getting closer and getting anxious. Charlie was doing great.
Drumroll please ...
And ...
Nothin’.
After several attempts and gentle taps, the green light wouldn’t come on. We positioned Charlie around like an antenna to get a signal.
The educator was beginning to think it was the sensor. She seemed disappointed.
"What do you want to do?" she asked us.
The options weren’t ideal. Do it all over again - the numbing of his tush, the insertion of another sensor, the blood. Or, go home with the hope that the green light would magically come on if just given more time.
She really didn’t want to send us home without it working. Nor did we want to.
While the three adults were pondering this, Sir Charles the Brave chimed in.
"I don’t want to do it over again but I will."
The educator perked her head up and smiled, impressed with Charlie’s response.
And then, thankfully, the green light came on. We were in business.
Eight months into pumping, I still wanted to throw the thing in the garbage. The CGM experience so far has been very different. We felt the benefits of it almost immediately.
Like on Saturday at Charlie’s baseball game. What would have been three to five blood sugar checks a week ago was now just a glance at the pump screen. Seeing those numbers in the low 200s seemed to be the confirmation Charlie needed to ease his mind that he was not in danger of a low. And when the CGM showed a number in the low 100s with two arrows pointing down, we soon learned that this meant he was likely low. And he was.
After years of being in the dark, seeing those numbers pop up on the screen is just about the coolest thing ever. Charlie, of course, can’t take his eyes off of it. Nor can I. At the most, the numbers have been off by about 30 to 35 points and at the least they’ve been off by two.
"I’m 164 and the CGM says 166!" Charlie shouted excitedly from the kitchen.
It’s early yet, but it’s already changing the way we, as a family, live with diabetes in our home. It’s changing the way we talk. It will certainly change the way I blog.
So far, so good.





Carey, can't wait to hear more about this from you. I have really been debating about doing this with Riley. I'm not sure if I'm ready to have something else attached to him. I want to hear more about the benefits for Riley and if it's worth the extra "robot parts". Glad it's working out for you guys so far.
I am glad it is working out so well for you guys. My son Sam has been on the dex cgm for over a year now and it has really changed the way we manage his diabetes.
Having a view into this transition in your life is amazing for me. As the mother of another 8 yr old t1 boy hearing the Charlie tales are occasionally eerily reminiscent of our own household. Now you could be a window into our own future.
We have talked about taking the step but with a A1C of 6.5 we're not really sure it is worth it to have that extra item attached. We are also unsure of if it will be covered especially in light of the good number.
Plus, Harry has seen them and has been pretty firm with his no thanks.
Now we can watch Charlie's transition unfold- thanks!
Carey, where does Charlie usually have his infusion set? My 10yo is interested in getting a CGM, but so far has worn the infusion set in his tush only. Unless I can get him to move it somewhere else, I can't see how he can have a CGM too.
Penny: We felt the same trepidation for a long time and I still can't believe he's wearing a CGM right now. Happened sort of quickly. Charlie really wanted this. As I've mentioned, the anxiety of not knowing his blood sugar had really gotten bad.
glatfelter4: Hi. I hope Sam is doing well on Dex. I've heard nothing but good things about it.
Cee: Happy to share our experiences. With an A1c of 6.5, I imagine you wouldn't want to change much. That's really incredible! However, as an expert in CGM (4 days, thank you very much), the low alarms could be something to consider at some point for some peace of mind. Especially for overnight. Charlie's is currently set to 85.
mom: right now Charlie has the infusion set on one side of his butt and the sensor/transmitter on the other side. It's not the most attractive look and I wouldn't recommend a thong at the beach, but he hasn't complained once about any discomfort. He was sliding around playing baseball tonight with no issues whatsoever.
Also curious, Carey, are you getting more sleep? Because that sounds like heaven to me.
Hi Carey,
I found your blog here through a maze of other blogs. My gal, Grace is 7 and has Type 1. Diagnosed January 2009. Just started the OmniPod a month ago. LIve in the same geographical area that you do, but we do Thomas Jeff and DuPont.
Your blog is great, thanks for sharing your life with Charlie. Good luck CGMing. I hope it brings you good numbers and control.
Penny (yes, another Penny!)
I love my CGM but we have our moments. Like Charlie, I like seeing where I am....it eases my mind. If you ever have problems with a sensor, DON"T take it out without calling Minimed....they can talk you through the problem and if they can't fix it and tell you to start over with another sensor, they will replace the sensor.
Mousie