Search
Blogabetes

dLife Daily Tips

Do you have hypoglycemic unawareness?

Read More View All Tips

dLife Weekly Poll

Has diabetes made it difficult to get/renew a driver's license?

February 10th, 2012
Category:
Type 1Type 2Oral MedsInsulin & Pumps
ChildrenFoodHighs & LowsRelationships
ComplicationsEmotionsIn the NewsFitness
Women's IssuesMen's IssuesReal Life


I wish I knew why it is that at the times we most need other people around us to comfort and support us, we find ourselves physically, technologically, financially, and psychologically unable to reach out to ask for that help.

 

I've been running these past few weeks trying to keep up with what's going on with my mom, while trying to find a job before unemployment runs out completely, while trying to get this gig selling cutlery going, while trying to deal with bills, the apartment, housework, and the upcoming Passover holiday. It's been overwhelming, to say the least. The days I would normally be spending out on demos and getting shopping done, I've spent running out to Queens. This weekend's rains left us largely without phone or Internet service, and to top it off, a completely unforeseen coffee spill on my notebook has me working off an external keyboard that is annoying and painful at best. Keeping the phone lines open for emergency communication leaves them unavailable to chat with friends... but how much would I tell friends and family anyway? Pieces of the picture don't show the entire landscape of why I'm feeling psychologically and emotionally paralyzed, and why I'm having trouble dealing with any single aspect of this conflation of issues.

 

Needless to say, I've not been doing anything positive for my own health, either. Lack of sleep, lack of time, and too many meals on the road are not doing well for my testing regimen, nor for following a reasonable diet, nor logging. The only reason I'm getting any exercise in is that I need to get to the office (three miles each way) by bicycle.

 

Also: I wish I had a magic wand to break through the infirmities that come with age or the complications of illness and disease.

 

As of this afternoon, Mom is still in cardiac intensive care. While the valve replacement went relatively well, it has been taking her longer than predicted to recover. The current news is that she needs a pacemaker, and her medical team is trying to time the procedure to be best for her health and overall recovery. What bothers me about the whole thing -- besides this being my mother and everything happening so quickly -- is the communications issue. Mom has been losing her hearing for a while, and she's had vision issues, so communicating with her is tiring and trying at times. Add to this the slowness of illness and the standard hospital pharmaceutical cocktails, and the issue is compounded. Add to the top of that all of us -- family and medical staff alike -- being so used to communicating with people who can see and hear reasonably well, that we sometimes forget to slow down, repeat, or ask for confirmation that Mom has received and processed the information we've tried to give her. I don't want Mom to lose the dignity of being told what is happening and why, in terms and media she can understand, and being able to make her own care decisions. Sometimes, though, it seems as if the medical staff says something once, sotto voce, at normal speaking speed, and either expects Mom to have heard/seen/processed, or for my sister and I to translate or make the decisions -- as if Mom were not right there in the room and competent to have a say in her own life!

 

Just like my mother's concerns about hospitalization and surgery are colored by her mother's experience, the issues surrounding my mother's ability to receive information are colored by my experience. While I was too young to recognize my great-grandmother's geriatric senile dementia, I saw her son's (my grandfather's) senses decline starting in his late sixties, and I saw the route by which my father's family's Alzheimer's develops. First, it is a deterioration of hearing, and sometimes vision. Then, along with the lack of ability to receive input comes the isolation concurrent with a deterioration in the ability to walk and carry about normal life errands. When we add to that the financial stresses of living on a fixed income that is insufficient to cover one's daily needs, one tends to further isolate one's self in one's abode, compounding all these modes of physical deterioration, leaving one to live more and more in memories and imagination, withdrawing from the world until one is no longer capable of communicating with it. One's sense of time twists and distorts, and stronger memories crowd out the weaker ones... It is a painful process to watch, made more painful by understanding that it is one I will more than likely experience myself in a generation's time. I've seen it happening with my father's sister, and now, my father (who still does not want me to know about it). I'm afraid that Mom is on the verge of starting down that same path.

 

And I'm afraid that if I can't quickly get a handle on everything else that I am supposed to be doing, so will I.




Login to rate
Rating (0):
0
Email this Comments (0):: Add a comment

Would you like to comment?

Join dlife for a free account, or Login if you are already a member.

Sign up for FREE dLife Newsletters

dLife Membership is FREE! Get exclusive access, free recipes, newsletters, savings, and much more! FPO

FPO

Congratulations!
You are subscribed!
Congratulations!
You are subscribed!
Congratulations!
You are subscribed!

Michelle Kowalski
Michelle KowalskiMichelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)
MikeDurbin
MikeDurbinMike was diagnosed with type 2 diabetes on December 29, 2008, and congestive heart failure the very next day. Talk about a double whammy for anyone, let alone a 24 year old.  He didn’t have to come up with New Year’s resolutions that year; his doctors did that for him.  That kind of humor has been instrumental in keeping him, and those around him, going over the last year and a half.
(Read More)
Our Other Bloggers: Nicole Purcell, Carey Potash, Brenda Bell, Lindsey Guerin, Megan, Robert Hudson, Julia, George Simmons, Scott Marvel, Kim Doty, Kerri Sparling,