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January 8th, 2009
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Our view of the endocrinologist and the diabetes educator’s role has gone through many peaks and valleys in the last five years. Like the various stages of grief, our emotions have fluctuated.

 

First came a frightened vulnerability.

 

"Oh my God! I can't believe this is happening. What do we do? Help us."

 

Then there was anger.

 

"We've done everything you said to do. It's not getting any better."

 

Then depression.

 

"This absolutely sucks."

 

Then skepticism.

 

"We're wasting our time. What can the doctors possibly tell us that we don't already know? We know our son more than they do."

 

Then acceptance.

 

"I guess we're just going to have good days and bad days. It's the nature of this disease. We can’t expect perfection."


And finally, where I am right now. Back to vulnerability.


Tomorrow morning we’ll go back to being the patient and let them be the doctors at Charlie’s quarterly appointment at Children’s Hospital. I plan to ask simply and humbly, “what can we do to make things better?”


The Phillies just won the World Series. There’s a symphony of beeping cars, screaming women and minor explosives blasting outside my window as I write this. I pray that come morning, my car is still properly resting on all four tires.


As for his A1c, I’m going to guess it will be more of the same. The usual 8.0 or 8.1.


Though it would be pretty sweet if we had our own reason for a celebratory beepity-beep on the car ride home.



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GO PHILLIES!!! WHOOOOOOOOOOO!!!!!!

Oh, and good luck Charlie!


Firstly, I hope Charlie had a great appointment.
Secondly, while I loved your descriptions of the stages we as parents go through, I took issue with your label of your current stage as vulnerable. I just don't like this word. I feel if you are vulnerable, then I guess I am too since I consider you a comrade in arms. I don't want to think of myself as vulnerable. There are ways to defend vulnerabilities, to compensate for them and remove them. But, aren't I doing everything I can. I mean I still need to let him live the life of a child.
Oddly enough, when I tried to find a better word, a word that expressed the resignation I feel and the sense of being at the whim of some sardonic master, I checked an online reverse dictionary for a word matching the definition "out of control". Offering number 31, right after "loose cannon" was "diabetic ketoacidosis".
Strange but true.


I just blogged about my feelings and the Endo today! You put it into much more the words I was looking for. I have totally gone through all the feeling you mention. In the beginning you do feel they are in control, thats for sure. At least you hope someone else is!

Good luck today, let us know how you feel AFTER the appointment goes down! LOL


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Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 6-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)

Latest Posts: Crazy Kenny's Test Strip Hut | One Pancreas On the Rocks | Rudolph the Diabetic

Michelle Kowalski
Michelle Kowalski, a writer, editor and photography hobbiest living in Phoenix, was diagnosed with Type 2 diabetes in February 2005. In January 2008, as part of her quest to start on an insulin pump, Michelle learned that she actually has type 1 diabetes. (Read More)

Latest Posts: Just One Small Change | Sensors! | How To Find a New Endo: When You Can't Ask Enough Questions

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