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November 21st, 2008
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k. james

The waiting room in endocrinology was like an assembly line of children with diabetes. Each time one child went in, another appeared. Then another and another and another. Very sad.

 

I zoomed in on a cute little girl with shoulder-length hair and a top with purple and red hearts as she buried her face into her father's shirt as he talked to the receptionist. Maybe just diagnosed? Don't know for sure. She had a sort of worry that should never be on a child's face.

 

I leaned over to Susanne to point out the girl, but she said "I know." 

 

"These kids all have diabetes," I told Charlie, as we waited for his name to be called.

 

"But I don't see any pumps," he said.

 

"Sometimes pumps are sort of hidden underneath shirts," I told him.

 

In the event that anyone was looking for his, Charlie picked his shirt up and tucked it behind his pump, for all to see that he was a member of the club. He wears his badge with pride.

 

In the office, waiting for the CDE to arrive, Susanne reminded me that this A1c will not be good. She knows I'm prone to high hopes.

 

"So what do you think it will be?" I asked her.

 

"In the 9s," she said.

 

"I'm gonna say 8.5."

 

Twenty minutes and still no one has come into the office. Thirty minutes. Still no one. However, I did notice that the nurse who took Charlie's A1c, dropped off Charlie's medical history folder in a slot just outside the door of the exam room.

 

Hmm.

 

With still no one coming in to see us, I saunter out into the hall and take a little drive-by of the bulging folder. I notice a long yellow paper sticking out of it. If an A1c is written on it, I can't tell. It's a bad angle.

 

"I can't see it," I whisper to Susanne inside the room.

 

Susanne comes over all "pfft"-like and rips the yellow paper out of the folder and we scurry into the room with it.

 

We are disappointed to realize that it's just the receipt for our copay. $20. Fabulous. Not much excitement in that.

 

The nurses round the corners with stealth, turning in an out of the office hallways with medical history folders like the ghosts from Pac-Man. And like the ghosts, they are equally expressionless and unfriendly.

 

"They're coming!" I pressure Susanne as she nervously stuffs the yellow copay form back into the folder.

 

At 40 minutes, I said "screw it," and grabbed the whole folder from outside the door and ran into the room with it as if we were stealing the answers to next week's mid-term exam. Inside was a piece of paper fastened to Charlie's medical history with the number 8.1 written on it.

 

All things considered, it wasn't so bad.

 

We didn't even come close to beating Charlie's high score.

 

And that's fine by me.



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Please tell me you don't usually have to wait that long?!

The one time I had to wait for close to an hour outside the room and another 45 minutes in the room (at the hemotologist not endo) just for him to come in and say "everything is normal I meant to call you to cancel your appt" I complained heavily and got my copay back. Not the two hours of my life but at least the $$.


See what happens when Dr's make patients wait too long for a visit? They get into trouble! ....Looking through your child's medical record...what kind of parent's are you people??!!
8.1 is still very good!! Considering the near impossibilty of getting any good numbers out of a kid, you and Susanne are doing an awesome job.


Comparitivly speaking 8.1 is not too shabby. Riley's endo appointment is tomorrow. I always get nervous about the A1C. I don't know why, but I do.

I have snuck into the lab before and tried to peak at the A1C number on the machine. I don't know why I felt like I was doing something bad. It is my son's A1C after all.


8.1 is AWESOME! Congratulations and way to go to all of you!


A1c, CGM, blood glucose, endocrinoligist...the termanology we have had to learn since Jan. 2, 2008 (Happy New Year to us!)Carey, I too, have a 6 year old son and we are learning what "good numbers" mean. Would love to talk to you a little more about our light saber, baseball playing, almost first grade kiddo. I think our sons are a lot alike. Thanks for your blog - it gets us through some tough days!
From: Trev's mom


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Carey Potash
Carey is a full-time hater of diabetes. The benefits stink. His 6-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children. (Read More)

Latest Posts: The Adventures of Gleevec and Sutent | Permanent Remission? | It Was a Blizzard (5 Years Ago)

George Simmons
George Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)

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