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January 8th, 2009
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Kerri recently posted a blog on Six Until Me about her co-worker having "diabetes for the day." It was interesting to hear just a few details about an outsider's perspective on this disease. Even though it was only for a day, at least a small portion of what we go through hit home with him.

 

I've often mentioned to my mom how frustrating it is when people don't understand how difficult diabetes can be. They assume it's so easy to manage. You take a shot, you eat right, and you do what you're told. Magically, your A1c's are supposed to be within range. They don't understand how monotonous the shots, the eating right, the doing everything you're told gets. They don't understand how other things (even the smallest things) play a huge role in diabetes management. Sick days. Hormones. Stress.

 

My one line is always "If they could just live this for a day, be in my shoes for one day, then maybe they would catch a glimpse of diabetes life." Surely, you cannot grasp everything a diabetic goes through in one 24-hour period. You can't understand the fears, the longevity, and the emotions of this disease. You can't fathom how unpredictable it can be on a daily and hourly basis. You can't grasp 85% of what we deal with. At least that 15% might open a few doors to better understanding and more empathy.

 

My mom had the idea of wearing a "watch" that would read a fake blood sugar number. It would simulate a diabetic's struggle with numbers. You'd wake up at 150, drop to 80 after breakfast, spike to 270 after lunch, stay at 100 for hours, crash to 40 after a workout. I really wish that something like this was out there. If my friends, my brothers, my future husband could wear something like this, they might look at my life in a different way. Like I said, there's no way to grasp the bigger issues with diabetes. They won't feel the way that 40 actually feels. They won't thirst when they're 270. They won't fear that 270 will cause them long term complications, wondering if at 35 they'll have their sight or limbs. They won't stare into the future and wonder when diabetes will take everything away from them. They won't have a sick day where they debate whether the hospital is necessary to prevent DKA or worse.

 

But if they could just see how having to check your blood sugar in the middle of a big work project or first thing in the morning is aggravating. If they could feel the needles, see the calluses on their fingers, manage supplies, maybe they would appreciate more of what we do. If they had to treat lows, avoid eating when ketones are present, plan a schedule, maybe there would be a greater understanding. And maybe they'd be less apt to say "But it's so easy, just do THIS." Maybe.

 

My challenge is that everyone who cares about someone who is diabetic (or just wants to know more) should live diabetes for a day. Get a meter, check sugars, count carbs, inject insulin (saline), record everything, make decisions. All of the mundane things we deal with, you should do it. Otherwise, you will forever forget how hard diabetes is on a daily basis.



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I second the aggrivation we all deal with - if they only knew! What about the on going fight to keep our weight down, or the server that gets annoyed when you ask twice if the soda they are giving you is in fact Diet? and of course they're response is yes, but your bs#'s says differently...

They just have no clue!!


I don't drink diet soda -- seltzer will do me just fine. But I have had times shortly after diagnosis where I've asked for something unseasoned (sodium restrictions), it came back tasting saltier than the Dead Sea, and my blood pressure spiked 50 points, causing an angry call to the restaurant from My Other Half...


I thought the results of my co-worker's experiment were very interesting. It was cool to read about his mental perspectives, but it was also very intriguing to see how his numbers fluctuated throughout the day. I posted his results in the comments section here.


Years ago I did something with manageers and employees called "Walk in My Shoes" to learn and appreciate each other. Maybe we need to have a diabetic nationwide program that is similar.

They have those fake baby things a guy can wear; why not something for diabetic families/friends/co-workers to spend a day learning what a loved one truly goes through.
And soemthing to put in their shoes to send those ever loving shocks into the toes or creepy crawly shocks and burns into the feet. :) Nothing major like jumper cables but, just a few pulsations during the day to keep them "on their toes".

I really like the watch idea above to add as an aide in this "appreciation" kit.

Sue


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Lindsey Guerin
Lindsey is a typical, yet unique, Texas girl who loves shopping, movies and reading. She loves to travel and take risks. She dreams of diabetes cures, never-ending cheesecake and her own airplane. The rest you can discover in her blog!(Read More)

Latest Posts: Doctor, Doctor... | My Nine for 09 | Un[Site]ly Issues

Nicole Purcell
Nicole has lived successfully with type 1 diabetes for 25 years. She hopes that by writing about her experiences, she can help others to face diabetes - and its challenges - head on.(Read More)

Latest Posts: Blog Post Title... | "Just Where the H*ll have you Been, Young Lady?" | Family Onslaught

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