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July 4th, 2009
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Nicole Purcell

Nicole Purcell lists having type 1 diabetes last when she's asked to provide information about herself - because that's where it belongs.



She is, first and foremost, a daughter, sister, aunt, partner, and friend and a professional fundraiser, writer, advocate, and clown. Diabetes is both incidental and central in her life - an afterthought that makes its way front and center more often than she'd like it to.



A native New Englander, Nicole has worked as a fundraising executive for various non-profit organizations since 1997 and keeps a blog at CuriousGirl.



Nicole’s foray into the world of parakeet training failed miserably; so she’s gone with plan B – taking her own calls, delivering her own mail, and eating her own beets. Her most recent obsession is the CD Fortress Round My Heart from Ida Maria…


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Did you ever have one of those days at work when you just couldn't make time for a break?  One of those days when you didn't stop to eat, drink, or go to the restroom?  One of those days when you were fully aware of the need to take a break, but you just couldn't stop for one?

 

Right about now, that's how life with diabetes is feeling for me. 

 

I just need a minute to breathe.  A minute to not think about this.  A minute wherein my mind isn't  consumed with my last inexplicable, frustrating number - or with the next test and the mystery and aggravation it could hold.  A minute to not think about the destruction this disease causes - the destruction that it is causing in me. 

 

And I know that I'm not going to get that minute. 

  (READ MORE)



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His hands move over my waist to my hips.  He brushes by my insulin pump, which feels to me about fifty times its actual size.  I wonder, does he notice it there beneath my clothes, beneath his hand? 

 

My bloodsugar is 355 mg/dl.  I feel yucky.  I know I'm spilling ketones.  When he kisses me, do I taste like fruit, like wine, like the acetone that's eating away at me?  Does he see the awful dry feeling behind my eyes; is he thinking I look as horrible as I feel? 

 

He takes my hand, lacing his fingers through mine.  I trace his palm with my fingertips.  Why do these calluses feel so obvious, so hard and unfeminine? 

 

We are heated and intense.  I am lost in this embrace. My head is floating somewhere in a passionate, dizzy ether. Or am I low?  And if I am, how can I stop and ask for time at this particular moment?  (READ MORE)



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Having been away for a weekend of fun since Friday morning, I feel like I've been living under a rock! Albeit a really fun rock, with a little alcohol, BBQ, and great music, but still a rock.

 

So, as I watched Barack Obama introduce his first Supreme Court appointment, Sonia Sotomayor, this morning, I was taken aback to discover that she has type 1 diabetes. That she was diagnosed at eight years old. That she's lived with type 1 for 46 years.

 

How incredibly inspiring for people with diabetes. Even more inspiring, I would imagine, for those raising children with type 1.

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Tied.  In a way that I hate to feel tied.

 

Lashed, tight to the feeling that I must succeed.  Bound to the knowledge that if I don't, the consequences could be (will be) disastrous. 

 

I am free spirited.  I throw myself into things with unbridled verve.  It's something I like about myself.  It's something that has often served me well.   It has challenges, of course, like the times I fell while rollerskating down the bulkhead.  But it is largely an advantage.  

 

Having an A1C test, waiting on the result, receiving it - all of these steps are agonizing, and they drain every ounce of bohemian lightheartedness.  It's frustrating. 

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HAVE BEEN APPROVED FOR CGMS.  *STOP*

 

CANNOT BELIEVE IT ONLY TOOK ONE LETTER.  *STOP*

 

CANNOT WAIT TO GET STARTED.  *STOP*

 

ANY ADVICE FROM MINIMED USERS? *STOP*

 

NOT LOOKING FORWARD TO TWO SITES.  *STOP*

 

NEED TO STOP BEING SO VEIN.  *STOP*

 

MORE ABOUT THIS VERY TOPIC AS SOON AS I BEGIN.  *STOP*

 

YAY *STOP* (READ MORE)



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The fact that I have diabetes is not the first thing most people learn about me.  In reality, it's often one of the last things I reveal about myself.  An exception to this rule is disclosure in the workplace. 

 

Because I am hypoglycemic unaware, and because I don't think it's fair for a person to find out about my diabetes because I've either lost consciousness or behaved aggressively, I typically let the people I work with know what they might be up against.   It's never really "comfortable" to disclose - as I'm never sure how people might react - but I find that it's absolutely necessary.  

  (READ MORE)



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Brenda Bell
Brenda was diagnosed with high blood pressure, high cholesterol, and Type 2 diabetes in July 2002. After a rocky start, her diabetes has been diet-controlled since January 2004 and she hopes to keep it that way for as long as possible. (Read More)

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