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May 16th, 2008
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Carey Potash

Carey is a full-time hater of diabetes. The benefits stink. His 5-year-old son, Charlie, was diagnosed with type 1 diabetes when he was 22 months old. Carey's parenting humor has appeared in various websites and print magazines. He resides in the suburbs of Philadelphia with his wife and three children.

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There's probably a good reason why iconic film characters don't tend to have diabetes. I was curious to see how diabetes might play out in a classic scene from a classic film.  Stay tuned for more to come. Here's the first installment. It comes from Star Wars Episode IV: A New Hope.

 

The scene:

 

After landing on Yavin IV, the Death Star plans are analyzed by the Rebel Alliance and a weakness is discovered that could potentially destroy the deadly space station. Teenage moisture farmer and Jedi-in-training Luke Skywalker, recently diagnosed with type 1 diabetes, is called upon to destroy the evil Death Star and save the Rebel base from total obliteration.

 

Luke's X-wing speeds down the trench; three TIE fighters, still in perfect unbroken formation, tail close behind.

 

Biggs looks around at the TIE fighters. He is worried.

  (READ MORE)



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I think Mousie nailed it in her comment from my last post. The age of 6 really is shaping up to be a time of new understanding. And yes, Charlie is clearly dealing with diabetes on a new level.

 

These days he's showing signs of wanting more control. He now loads the test strip into the meter, though he's not ready to test himself yet. He's also started reading labels for total carbs. A tug of war over a bag of crackers usually ensues when I try to make sure he's right about the carbs before I enter it into the pump. He's getting frustrated.

 

Charlie: Can I eat now?

 

Me: (pulling) I just want to check the carbs!

 

Charlie: (pulling) I told you! 16 carbs!

 

Me: (pulling) I. Just. Want. To. See. The.

 

Me: Shit!

  (READ MORE)



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On rare occasions, diabetes fades into the background like the hum of a distant freight train or barely audible elevator music. If I have nothing to write, that's likely a good thing. Last weekend was not one of those times.

 

On Friday night, Charlie muttered "damn, diabetes!" angrily after I put the kibosh on the candy push-pops being handed out at the baseball field.

 

On Saturday, in the shower, Charlie asked what all the little marks on his fingers were. He asked if the marks would go away. I weakly said "I think so."

  (READ MORE)



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Went to the elementary school art show last night. Lots of lovely art hanging from the walls, displayed in the cafeteria and in the classrooms. Paper mache dragons. Ceramic tribal masks. Robots made from junk. Seems Charlie's series on oceanic creatures urinating in the wild didn't make the cut. Whatever. I guess the art teacher and I will agree to disagree on what is art. I didn't see one thing getting peed on.

 

Seeing Charlie interact with his little classmates is a major highlight for me. Especially on a night like this where there's a little red carpet buzz in the air. Kindergarten girls with their tiny voices, saying "hi Charlie," in unison as they pass him in the hallway, absolutely makes my day.

  (READ MORE)



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His knees are bent.

 

Like a frog.

 

His nostril whistles.

 

He sleeps peacefully.

 

He's 56.

 

"Charlie," I whisper into the dead of night, giving him a slight nudge.

 

The ceiling fan hums.

 

"Charlie, you're low. Have some juice."

 

"Charlie!"

 

So many nights I've whispered these words into his sleeping ears. So many nights for four-and-a-half years. So many nights Susanne has. So many nights other moms and dads around the world whisper the very same words to their children in the darkness. We need a cure.

 

He keeps his eyes closed.

 

He just nods and opens his mouth when he feels the straw poking at his lips. (READ MORE)



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Our team, Charlie's Angels, has been raising money for the Juvenile Diabetes Research Foundation since 2003 – the year Charlie was diagnosed.

 

For the first few years, we sent out our fundraising letter to friends, family and co-workers and did remarkably well. Last year, however, I started to feel uncomfortable asking the same people to give so generously yet again. I felt like they were investors in a cure that I was falsely promising. A cure that was "closer than ever" or "within reach" or "right around the corner." To be honest, I really don't know how close we are to a cure. But, what else can I do? I can't cure Charlie. I can only raise money and give it to the people who say they possibly can. I'll sell it like a snake oil salesman if I must.

  (READ MORE)



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Andy Bell
Andy Bell has lived with diabetes since the age of 14. He controls his type 1 diabetes by taking multiple daily injections. Andy is 27 years old now and despite his diabetes, still maintains a very active lifestyle. Andy works for the Juvenile Diabetes Research Foundation (JDRF) in the National Outreach Department.(Read More)

Latest Posts: Uplifting Get Away | The Golden Question... | Early Morning Exercise

George Simmons
George Simmons is a father and husband living with type 1 diabetes. A self proclaimed "born again diabetic," George began blogging as a way to meet other people living with diabetes and learn more about managing his disease. (Read More)

Latest Posts: Eye Exam Anxiety | Broken Squirt Gun | Annoyed and Annoying

Our Other Bloggers: Lindsey Guerin, Rebecca Abma, Michelle Kowalski, Julia, Carey Potash, Kim Doty, Nicole Purcell, Scott Marvel, Kerri Morrone, Robert Hudson
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